As skin patients sit and wait… - Canadian Dermatology Association
Transcription
As skin patients sit and wait… - Canadian Dermatology Association
September 2013 As skin patients sit and wait… Canadian Skin Patient Alliance (CSPA) Special Guest Editorial Your waiting rooms in Canada are full… full of skin patients waiting to see dermatologists. They are the lucky ones. They are actually in the door! But what about all the other patients waiting for their turn? Our research shows there are thousands waiting to see a dermatologist, some for up to 2 years. What patients may not be saying to you When patients call us, they tell us things they might not always tell you. When they finally get in the door to see a dermatologist they are so grateful that some may minimize the impact of their condition on their lives – they don’t want to be that patient that is a burden. They want you to want to see them again and to take on their treatment. So some won’t want to complain that while they were waiting to see you, they missed work, or avoided social events or lost many nights’ sleep. Fundamentally they know the dermatologists aren’t to blame. Most dermatologists are working very long hours and seeing many patients every day. The short supply affects patients and dermatologists alike and true systemic change is required to relieve the pressure. How can we speed things up in the meantime? When your patients express concern or frustration about wait times, please direct them to the CSPA at [email protected] . The more skin patients who are willing to help us with advocacy by presenting the patient perspective, the more likely we are to help bring in more residency positions, or better billing codes rates that better support the work done by dermatologists on tougher cases. Also, Skin Deep, the CSPA’s report card found that countries where dermatologists made greater use of dermatology nurses – for more routine procedures reported much shorter wait lists and high rates of patient satisfaction. Many of you already use nurses under supervision to do more routine education of patients and more routine procedures under supervision. As patients we are highly supportive of this practice. Not all dermatologists see all patients – a little known reality Some patients who call us are frustrated because after months of waiting, have been told by the dermatologist that their case is too severe, or too complex, or simply that they don’t handle patients with their disease. While most understand the importance of specialties within dermatology, it is very difficult to start back at the beginning of a wait list cycle. It would be helpful if the referring physicians were better equipped to align patient needs to practice preferences. Cosmetic consultation wait lists? Unlike other specialties, dermatologists are also known for their work in cosmetic dermatology procedures. Some patients who contact us let us know that they can get a cosmetic consultation with a dermatologist within a few days or weeks, whereas the appointment to address their skin disease with the same doctor in the same clinic can take months or in some provinces, years. Again, it’s a reality, but one that some patients struggling with a debilitating skin condition grapple with. The part you already know Untreated and undiagnosed dermatology patients do not make the most productive employees. Some suffer from severe acne, rashes, blisters, hair loss, wounds and oozing skin. Facing their work colleagues can seem like a mission impossible. Some lose their employment due to their skin condition since it interferes with the quality of work they can offer their employers. Consequently, some may also lose their health benefits making the battle that much more complex and discouraging once treatment options are being considered. It’s a vicious catch twenty-two. All dermatologists know too well that some skin conditions predispose patients to co-morbities and health issues. Depression, shame and anxiety about the unknown exacerbate health issues further. Given that the psycho-social issues associated with skin diseases can sometimes be quite profound, this wait times issue needs attention. As patients we are willing to lend out support to any initiatives that would address the underlying systemic issues that are causal. We need to be able to see dermatologists in order to be well. Editorial Board/ Conseil de rédaction Regional Editors / Rédacteurs régionaux National Editor/ Rédacteur en chef Benjamin Barankin, MD Toronto, ON Charles W. Lynde, MD Markham, ON Marc Boucier, MD Moncton, NB Executive Director / Directeure générale Peter R. Hull, MD Saskatoon, SK Chantal Courchesne Ottawa, ON Statements and opinions expressed in the CDAeB reflect the opinions of the authors and not necessarily the CDA. The CDA does not assume responsibility or liability for damages arising from errors or omissions, or from the use of information or advice contained in the CDAeB articles or letters. Les textes et les opinions publiés dans le eBACD reflètent les points de vue de leurs auteurs et non pas nécessairement ceux de l’ACD. L’ACD ne peut être tenue responsable des dommages qui pourraient résulter d’erreurs ou d’omissions rélées à l’utilisation de renseignements ou de conseils inclus dans les articles ou lettres apparaissant dans le eBACD. Robert Jackson, MD Ottawa, ON Ian Landells, MD St. John’s, NL Catherine McCuaig, MD Montréal, QC Kathleen Moses, MD Ottawa, ON Paul Kuzel, MD Edmonton, AB G. Daniel Schachter, MD Toronto, MD Victoria Taraska, MD Winnipeg, MB Catherine Zip, MD Calgary, AB The Canadian Dermatology Association eBulletin is issued monthly as a forum for Association News, information of interest to members and for members’ opinions. Please notify the Executive Director of any change in address. L’Association canadienne de dermatologie publie chaque mois le eBulletin en tant que forum de nouvelles de l’Association, d’informations qui pourraient intéresser nos membres, ainsi que pour recueillir leurs opinions. Prière d’aviser la Directeure générale pour tout changement d’adresse. CHANTAL COURCHESNE EXECUITVE DIRECTOR / DIRECTEURE GÉNÉRALE 425-1385 rue, Bank Street, Ottawa, ON K1H 8N4 Tel: (613) 738-1748 / 1-800-267-3376 | Fax: (613) 738-4695 [email protected]
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