FASD Resource Guide

Transcription

FASD Resource Guide

FNQLHSSC / CSSSPNQL
Guide des ressources ETCAF
Ensemble des troubles causés par l’alcoolisation foetale
FASD Resource Guide
Fetal Alcohol Spectrum Disorder
Guide des ressources ETCAF (Ensemble des troubles causés par l’alcoolisation foetale)
FASD Resource Guide (Fetal Alcohol Spectrum Disorder)
Responsable du projet / Project Director
La Commission de la santé et des services sociaux des Premières Nations du Québec et du Labrador (CSSSPNQL)
First Nations of Quebec and Labrador Health and Social Services Commission (FNQLHSSC)
250, Place Michel Laveau, Wendake, Québec G0A 4V0
Téléphone / Telephone(418) 842-1540
Télécopieur / Fax (418) 842-7045
Site web / Web Site: www.cssspnql.com
Graphisme/Graphism
Christiane Vincent, Wendake
La CSSSPNQL désire remercier Linda Simons Management Services pour la révision et mise à jour du Guide des
ressources ETCAF
The FNQLHSSC would like to extend its thanks to Simon Management Services for the revision and updating of this
FASD Resource Guide.
Ce projet a été rendu possible grâce à la participation financière de Santé Canada
This project was made possible by the financial contribution of Health Canada.
2006
TABLE DES MATIÈRES
TABLE OF CONTENTS
INTRODUCTION
5
INTRODUCTION
5
OVERVIEW OF RESOURCE GUIDE
6
APERÇU
6
ENGLISH LANGUAGE RESOURCES
7
RESSOURCES DE LANGUE FRANÇAISE
14
1.0
Books
7
1.0
Livres
14
2.0
Reference Manuals 15
2.0 Ouvrages de référence
24
3.0 Educational Resources and Materials
28
3.0
Outils pédagogiques
35
4.0
Video, DVD and Cassette Resources 37
4.0
Vidéos 48
5.0 Materials and Didactic Resources
50
5.0 Matériel didactique
53
6.0 Information Websites 56
6.0
Sites Web 61
7.0
Support Groups and Websites 63
7.0
Services d’aide
67
8.0
Associations 69
8.0
Associations
72
9.0
Clinics
75
9.0 Cliniques
79
10.0 Educational and Training Centres 82
10.0 Formation
84
11.0 Documentation Centers
86
11.0 Centres de documentation
87
12.0 Information and Material Resources for
professionals
89
12.1 Websites 99
12.0 Outils destinés aux professionnels
101
12.1 Sites Web
105
INTRODUCTION
INTRODUCTION
Preamble
This resource guide was written for caregivers,
educators, parents, families and professionals who
are involved in caring for, educating or living with
children, adolescents or adults with Fetal Alcohol
Syndrome Spectrum Disorder. The ability to access
current and accurate information about FASD is critical
in becoming a source of help and hope for these
children, adolescents and families living with FASD.
Préambule
Le présent guide de ressources est s’adresse aux
éducateurs, éducatrices, parents et professionnels qui
oeuvrent ou vivent auprès d’enfants, d’adolescents ou
d’adultes atteints de l’ensemble des troubles causés
par l’alcoolisation fœtale (ETCAF). Afin de leur venir en
aide et de leur redonner espoir, il est nécessaire de leur
donner accès à des sources d’information fiables et
récentes en la matière.
The goal of this resource guide is to encourage you
to learn more about FASD, including what causes
it, how to prevent it, and how FASD impacts on the
everyday lives of First Nations and Inuit children, their
parents and our communities. It is hoped that these
resources will enable the Community Health, Family,
Childcare and Education Programs to provide more
appropriate learning environments for FASD children
and more effective strategies for the integration of
FASD adolescents and adults into community life.
The guide will provide links with available networks
that can provide information and support to program
workers, and to the individuals, parents and families
coping with FASD.
Le but du présent guide est d’encourager les lecteurs
à en apprendre davantage sur l’ETCAF, ses causes, les
mesures préventives qui existent et ses effets sur la
vie quotidienne des enfants des Premières Nations
et inuits qui en sont atteints, celle de leurs parents
et de leurs communautés. Les différents outils qui
y sont énumérés visent à encourager les différents
programmes communautaires de santé, d’éducation
et d’aide à l’enfance et à la famille de créer des milieux
d’apprentissage mieux adaptés aux besoins des
enfants atteints de l’ETCAF et de mettre en œuvre des
stratégies plus efficaces favorisant l’intégration des
adolescents et des adultes atteints de cette maladie
dans la vie communautaire. Le présent guide permet
aux professionnels du milieu ainsi qu’aux personnes
touchées de près ou de loin par cette maladie de
trouver les renseignements et l’aide dont ils ont besoin
auprès de différents réseaux.
OVERVIEW OF RESOURCE GUIDE
APERÇU
The resource guide listings are divided into three
main sections: English Language Resources, English
Language Professional Resources, and French
Language Resources (which includes professional
resources).
Le présent guide est divisé en trois grandes
parties : ressources générales disponibles
en anglais, ressources professionnelles
disponibles en anglais et ressources
disponibles en français (ressources
professionnelles comprises).
Each section is then divided according to the Type
of Resource, whether it is a book, video, reference
manual, didactic material (poster, brochure, display,
etc.), documentation center, educational material,
training center, support group, website, association or
clinic.
The resources are numbered for ease of reference, but
are not alphabetized. The following listing is by section
and type. It provides a complete list of all of the
resources with reference number and page number for
location in the directory.
The French language resources are listed in the red
section of the document and in the blue section for
the English version. When available in both languages,
it is mentioned in the text description.
Chaque partie est ensuite divisée en sous
parties, par type de ressource, selon qu’il
s’agit d’un livre, d’une vidéo, d’un manuel de
référence, d’un outil pédagogique (affiche,
brochure, dépliants, etc.), d’un centre de
documentation, d’un centre de formation,
d’un groupe d’entraide, d’un site Internet,
d’une association ou d’une clinique.
Pour vous permettre de vous y retrouver
facilement, un numéro de référence a été
attribué à chaque ressource. Veuillez noter
que celles-ci sont classées par type et non par
ordre alphabétique. Vous trouverez ci-dessous
une liste exhaustive des ressources indiquées
dans le répertoire. Les numéros de référence
et les numéros de pages indiqués vous
permettront de vous rendre rapidement à la
fiche correspondante du répertoire.
Les ressources de langue française sont
répertoriées dans la section en rouge du
document et respectivement dans la section
bleue pour l’anglais. Lorsque disponibles dans
les deux langues, il en est fait mention dans le
texte descriptif.
Books 1
1.0
Books
TITLE
MY NAME IS AMANDA AND I HAVE FAE
Author/Agency:
Topic:
General Audience: Description:
Publisher:
Distributor 1:
Distributor 2:
TITLE
Author/Agency:
Topic:
Publisher:
Distributor: TITLE
Author/Agency:
Topic:
Publisher:
Distributor 1: Distributor 2:
FASNET Information Series 1997
FAS/E in children
A book for young children with FAS/E
Paper. 16 pages. A booklet about Amanda and her brother Jonathan who both have
FAS/E. It explains in a very simple way what FAS/E is and how children are affected by it.
FAS/E Support Network of BC
Tel.: 604-607-7715, Fax: 604-607-7751
On-line purchase $10.00 Web Site: www.fetalalcohol.com
FAS Bookshelf Item Number: B -109 $10.00
#438-6540 E. Hastings St., Burnaby, B.C. V5B 4Z5
Tel.: (604) 942-2024Fax: (604) 942-2041
Web Site: www.fasbookshelf.com
LETTERS TO OUR CHILDREN, LETTERS FROM OUR CHILDREN: LIVING WITH FETAL
ALCOHOL SYNDROME AND ALCOHOL RELATED EFFECTS
Dorothy E. Badry & Liz Lawryk (Editors) Alberta Association for Community Living
FASD
General
This is not a clinical textbook but a collection of stories written from the heart by parents,
relatives, and caregivers who love their children and children who know they live life
with a difference. This book is about hope.»
FAS/E Support Network of BC and also FAS Bookshelf
On-line purchase $25.00
Tel.: 604-607-7715 Fax: 604-607-7751
Web Site: www.fetalalcohol.com
FANTASTIC ANTONE SUCCEEDS
Edited by Kleinfeld, Morse and Wescott (1993)
Experiences in educating children with Fetal Alcohol Syndrome.
Caregivers and parents
Alcohol-affected children can achieve much more than the stereotypes suggest—
experienced parents and teachers offer the “wisdom of practice”. Parents and teachers of
children with FAS/E offer insights, strategies, and hope. The book provides practical tools
and strategies that can help alcohol-affected individuals and their families lead happier,
more productive lives.
University of Alaska Press,
PO Box 756240, Fairbanks, AK 99775 Tel.: 1-888-252-6657,
Fax: 907-474-5502
E-mail: [email protected] Web site: www.uaf.edu/uapress
FAS/E Support Network On-line purchase $35.00
Tel.: 604-607-7715 Fax: 604-607-7751
FAS Bookshelf Item Number: B -120
$28.00
Tel.: (604) 942-2024Fax: (604) 942-2041
FASD Resource Guide
1
Books
TITLE
Author/Agency:
Topic:
Additional Material:
Publisher:
TITLE
Author/Agency:
Topic:
Publisher:
Distributor 1:
Distributor 2: TITLE
Author/Agency:
Topic:
Publisher: Distributor 1: Distributor 2:
FASD Resource Guide
FANTASTIC ANTONE GROWS UP
Edited by Kleinfeld, Morse and Wescott (2000)
Adolescents and Adults with Fetal Alcohol Syndrome.
Families and workers
This is a sequel to the book “Fantastic Antone Succeeds”. It provides a guide to life with
an adolescent or young adult with FAS and other alcohol-related disabilities. It describes
a wide range of outcomes and what success means for adolescents and adults with FAS/
E. Drawing on the wisdom of experience, this book offers specific, concrete techniques
for dealing with school, emerging sexuality, employment, entanglements with the law,
and independent living. It includes a compilation of articles with over 35 contributors.
Previous book “Fantastic Antone Succeeds”
University of Alaska Press, PO Box 756240, Fairbanks, AK 99775
Tel.: 1-888-252-6657
Fax: 907-474-5502
E-mail: [email protected] Web site: www.uaf.edu/uapress
Tel.: 604-607-7715 Fax: 604-607-7751
FAS Bookshelf
Item Number: B-119
$28.00
Tel.: (604) 942-2024 Fax: (604) 942-2041
DEAR WORLD WE HAVE FAS/E - EXPERIENCES OF YOUNG ADULTS
FASD
General
Paper. 20 pages. «This booklet was written with the help of a group of young people with
FAS/E. It is meant to be a guide to help other young people with FAS/E understand what
FAS/E is and what it means to them.»
FAS/E Support Network of BC, on-line purchase $12.50
Tel.: 604-607-7715 Fax: 604-607-7751
FAS Bookshelf Item Number: B-108
$12.00
Tel.: (604) 942-2024Fax: (604) 942-2041
FAS/E AND EDUCATION: THE ART OF MAKING A DIFFERENCE
Schooling and FASD
Parents
A parents’ handbook – what parents need to know to advocate within the education
system.» This book answers questions often asked by parents about their child’s
schooling.
FAS/E Support Network of BC On-line purchase $17.50
Tel.: 604-607-7715 Fax: 604-607-7751
FAS Bookshelf Inc. Item Number: B –106
$17.00
Tel.: (604) 942-2024Fax: (604) 942-2041
Books 1
TITLE
Author/Agency:
Topic:
Publisher:
Distributor 1: Distributor 2: TITLE
Author/Agency:
Topic:
Publisher:
Distributor: TITLE
Author/Agency:
Topic:
Publisher:
Distributor: SO YOUR CHILD HAS FAS/E
Concerns of parents with FASD children
Parents and caregivers
This book is a short, easy to read explanation of what to expect after an FAS/E
diagnosis has been made.
Tel.: 604-607-7715 Fax: 604-607-7751
FAS Bookshelf Inc. Item Number: B –107
$12.00
Tel.: (604) 942-2024Fax: (604) 942-2041
OUR FASCINATING JOURNEY - 2nd edition
Jodee Kulp
Issues of a family raising a child with FASD
Parents, Caregivers and Community workers
Filled with practical ideas and stories to help you help a FAS individual become the best
he or she can be.
Better Endings New Beginnings
Cost: $24.95 (US)
6289 Brunswick Avenue North, Brooklyn Park, MN 55429
Tel.: (763) 531-9548Fax: (763) 533-3223
E-mail: [email protected]
Order form online: www.betterendings.org/justice/famord.htm
BEST I CAN BE
Liz Kulp
FASD
Families and caregivers coping with FASD
This book tells the story of a girl who suffers from FAS, and her journey with her adoptive
parents towards education and independence. Short read, but packed with information,
thorough lists of resources, home school supplies that worked, etc., and, most valuable
of all, a family’s perspective on the trials and successes of dealing with this syndrome.
Liz, the daughter, was adopted soon after birth, and couldn’t stand being touched
until nearly her 10th year. Her parents home schooled her from fourth grade on, after
finding that the schools couldn’t really give their daughter the help she needed. There
are segments written by Liz throughout the book, written in her own hand, about her
struggles, difficulties, and successes.
Cost: $12.95 (US)
Tel.: (763) 531-9548 Fax: (763) 533-3223 E-mail: [email protected]
Order form online: www.betterendings.org/justice/famord.htm
FASD Resource Guide
1
Books
TITLE
Author/Agency:
Topic:
Publisher:
Distributor: TITLE
Author/Agency:
Topic:
Publisher:
Distributor 3:
FASD Resource Guide
FETAL ALCOHOL SYNDROME: PRACTICAL SUGGESTIONS AND SUPPORT FOR
FAMILIES AND CAREGIVERS
Kathleen Tavenner Mitchell, MHS, LCADC
FASD
An indispensable resource for those raising or working with individuals with FASD is now
available from NOFAS. The thirty-five page guide was written by NOFAS vice president
and spokesperson, Kathy Mitchell, the biological mother of an adult daughter with FAS.
Kathy’s thoughtful and informative words of wisdom and practical strategies are drawn
from her experiences as a parent, advocate, counselor, and national leader on FASDrelated issues.
National Organization on Fetal Alcohol Syndrome
Cost: $15.00 (US)
900 17th Street, NW, Suite 910 Washington, DC 20006
Tel.: (202) 785-4585, +1 (800) 66NOFAS
Fax: (202) 466-6456
Order online: http://www.nofas.org/estore
FETAL ALCOHOL SYNDROME: A GUIDE FOR FAMILIES AND COMMUNITIES
Ann Streissguth, PhD (1997).
Issues surrounding FASD
Community workers, professionals and families
Paperback. 224 pages. This author has dedicated her professional career to the study of
FAS and is recognized as the country’s leading authority on the issue. In this volume,
Dr. Streissguth draws on her life’s work and writes on the essential issues surrounding
FAS, including diagnosis, brain damage, physical and behavioral manifestations, and
services for high-risk mothers. Also included are case studies, photos, illustrations, and
empirical research highlighting the cultural, racial, and economic diversity of FAS.
Paul Brookes Publishing.
Cost: $26.00 (US)
Tel.: (202) 785-4585, +1 (800) 66NOFAS Fax: (202) 466-6456
Order online: www.nofas.org/estore
FAS Bookshelf Inc. Item Number: B –129 $34.00 (CDN)
Tel.: (604) 942-2024Fax: (604) 942-2041
Brookes Publishing ISBN 1-55766-283-5
Paperback / illus. 336 pages / 6 x 9 1997 / $24.95 (US) Stock# 2835
Order Online at:
Web Site: www.brookespublishing.com/store/books/streissguth-2835/index.htm
10
Books 1
TITLE
Author/Agency:
Topic:
Publisher:
Distributor: TITLE
Author/Agency:
Topic:
Publisher:
Distributor: TITLE
Author/Agency:
Topic:
Publisher:
Distributor:
DAMAGED ANGELS: A MOTHER DISCOVERS THE TERRIBLE COST OF ALCOHOL IN
PREGNANCY
Buxton, B. (2004). Knopf Canada
FASD (issues of caring for)
caregivers and community workers
Paperback. 336 pages. This book “weaves the story of (the author’s) children and many
other individuals together with the best opinions for treatment and intervention that are
in the literature and being presented in work shops. This is a …story of family hopes and
frustrations, and eventual successes and failures. It is a must read for anyone caring for a
person with FASD or considering it.”
Knopf Canada
FAS Bookshelf Item Number B-135
$22.00
Tel.: (604) 942-2024Fax: (604) 942-2041
THE BROKEN CORD
Dorris, M. (1989). Harper Collins.
FASD
General interest
Paperback. 288 pages. This book was written by Michael Dorris to chronicle the life of
his son, Adam who was born with FAS. It received the 1989 National Book Critics Circle
Award and the 1989 Christopher Award. The American Library Association, Booklist, and
Library Journal also named it as a Notable Book of 1989.
Harper Collins.
$18.00
Tel.: (604) 942-2024Fax: (604) 942-2041
AND HAVE NOT LOVE
Leon’s Mom. (1997). Cowichan Valley FAS Action Team.
Difficulties of parenting teens and young adults with FASD
First Nations families and caregivers
Spirobound. 36 pages. This book of poems is the author’s way of sharing with her
support group the difficulties of parenting teens and young adults struggling with
alcohol related birth defects.
Cowichan Valley FAS Action Team.
$7.00
Tel.: (604) 942-2024Fax: (604) 942-2041
11
FASD Resource Guide
1
Books
TITLE
Author/Agency:
Topic:
Publisher:
Distributor: TITLE
Author/Agency:
Topic:
Publisher:
Distributor: TITLE
Author/Agency:
Topic:
Publisher:
Distributor: FASD Resource Guide
TRYING DIFFERENTLY: A GUIDE FOR DAILY LIVING AND WORKING WITH FAS AND
OTHER BRAIN DIFFERENCES
Fetal Alcohol Syndrome Society Yukon (FASSY). (2002).
FASD Strategies
Paper booklet (8.5 X 4 inches). 71 pages. “This is a booklet of strategies that work,
gathered from parents and caregivers throughout the Yukon, Canada, and the US.
Because people with FAS are unique, and specific strategies work for specific people, we
suggest you try what sounds right for you and your situation, and if it doesn’t work, try
something else. No one has all the answers, but we know … that ‘trying differently’ will
make a difference in everyone’s lives.”
2nd Edition. FASSY.
FAS Bookshelf
Item Number B-133
$15.00
Tel.: (604) 942-2024 Fax: (604) 942-2041
BEAUTIFUL SMILES, GENTLE SPIRITS
Michaud, M. & Michaud, S. (2003)
FASD
General interest
Paperback. 200 pages. This book helps to “build on the momentum that FASD awareness
needs. From the street level, (it) makes the case that this momentum requires judicial
education, a standardized screening procedure, resources and an accessible ‘port of
entry’ into FASD assessments within the court system, and lots and lots of perseverance.”
Temeron Books Inc.
$24.00
Tel.: (604) 942-2024 Fax: (604) 942-2041
ALCOHOL RELATED BIRTH DEFECTS.
Schneider, B. (1999). Brighter Futures
Introduction to FASD
General information for parents or community workers
Booklet. 36 pages. This illustrated booklet with point-form notes provides a “reader
friendly” introduction to ARBD and offers strategies to help children affected.
Brighter Futures.
FAS Bookshelf
Item Number B-136 $5.00
Tel.: (604) 942-2024 Fax: (604) 942-2041
12
Books 1
TITLE
Author/Agency:
Topic:
Publisher:
Distributor:
TITLE
Author/Agency:
Topic:
Publisher:
Distributor:
TITLE
Author/Agency:
Topic:
BUT MICHAEL MAKES ME LAUGH
Stetina, L. (2003). InterAgency FAS Program.
Picture book of basic information on FASD
Young Children
Paperback. 14 pages. This children’s picture book tells the story of a young boy who is
having a challenging day at school … until a classmate says, “but Michael makes me
laugh!” It is intended to provide basic information and encourage discussion on FASD for
young children in the classroom.
InterAgency FAS Program.
$5.00
Tel.: (604) 942-2024 Fax: (604) 942-2041
CHILDREN OF PRENATAL SUBSTANCE ABUSE
Shirley N. Sparks, Singular Publishing Group, 1992
Information on FASD
General
A comprehensive, informational, well-researched and easy-to-read book. Presents an
accurate profile of drug affected children and insight into the behaviors and problems
faced by these children, as well as segments on addiction, treatment, prevention, and
current research.
Singular Publishing Group
Thomson Learning$48.95 US
PO Box 6904, Florence, KY 41022
Tel.: (859) 525-6630 or (800) 842-3636
Fax: (859) 647-5023
Web Site: www.thomson.com
A BABY BROTHER IS BORN TO (1993)
National Organization on Fetal Alcohol Syndrome (NOFAS) and Heartsprings Inc.
FASD
Families
A little, interactive book about welcoming a baby brother or sister into the world,
designed to be customized with the name of the child awaiting the birth of his/her
baby brother/sister. It is best read as a story/workbook, and presents why drinking
during pregnancy is dangerous, in a simple yet beautiful way. In English and Spanish,
with drawings by the celebrated Native American artist Sam English and text by Native
American poet Luci Tapahonso.
Available Languages: English and Spanish
Publisher:
NOFAS
Distributor: NOFAS $10.00 US
900 17th Street NW, Suite 910
Washington, DC 20006
Tel.: (202) 785-4585 or (800) 66-NOFAS Fax: (202) 466-6456
Email: [email protected]
Web Site: www.depts.washington.edu/fadu
13
FASD Resource Guide
1
Livres
RESSOURCES EN FRANÇAIS
RESSOURCES DE LANGUE FRANÇAISE
1.0
Livres
TITRE
ENFANTS DE L’ALCOOL
Auteur / organisme :
Sujet :
Destinataire(s) :
Description:
Éditeur :
Distributeur : TITRE
Sujet :
Destinataire(s) :
Description:
Louise Loubier-Morin
Renseignements
Général
Informations et perspectives de Mme Louise Loubier-Morin qui a travaillé dans ce
domaine depuis 30 années.
SAFERA
SAFERA Prix :40$ canadiens; frais de port et de manutention inclus
845 Chemin du Bord de l’eau, St-Henri de Lévis, Québec, G0R 3E0.
Tél.: 1-418-882-2488 Téléc.: 1-418-882-6373
Courriel : [email protected] Site web : www.safera.qc.ca
L’ENFANT BRISÉ : LES EFFETS DE L’ALCOOLISME PRÉNATAL
Éditeur :
Dorris, Michael
Biographique
Général
Quels sont les effets de l’alcool sur le foetus? L’auteur a adopté un enfant atteint du
syndrome alcoolique fœtal. Par ce récit biographique, il raconte les conséquences sur la
vie de l’enfant et sur la vie familiale.
Paris : Denoël, 1991. 375 p. (Médiations)
Site web : Non disponible
TITRE
L’ENFANT DES TEMPÊTES
Sujet :
Destinataire(s) :
Description:
Éditeur :
TITLE
Sujet :
Destinataire(s) :
Description:
Éditeur :
Distributeur : Lesley, Craig
Biographique
Général
Un jeune professeur adopte un enfant originaire de l’Alaska. L’enfant présente des
troubles de comportement, le syndrome d’alcoolisation foetale. Nouveau père, nouveau
fils, c’est l’histoire de l’acceptation des limites de l’un par l’autre.
Paris: Albin Michel, 2001. 408 p.
AU-DELÀ DE LA DÉFICIENCE PHYSIQUE OU INTELLECTUELLE: UN ENFANT À
DÉCOUVRIR
Ferland, Francine 2001. (Collection de l’Hôpital Sainte-Justine pour les parents)
Réponse aux questions des parents et suggestions
Parents
L’enfant qui présente une déficience physique, intellectuelle ou sensorielle est avant tout
un enfant et ses parents sont d’abord des parents. Comment ne pas laisser la déficience
prendre toute la place ? Comment favoriser le développement de l’enfant tout en
répondant aux besoins de la famille? Comment découvrir le plaisir avec lui ? Cet ouvrage
répond à ces questions et contient des suggestions simples et applicables au quotidien.
224 p
Montréal : Éditions de l’Hôpital Sainte-Justine, 2001.
Hôpital Sainte-Justine
3175, ch. de la Côte-Sainte-Catherine, Montréal (Québec), H3T 1C5
Tél. : (514) 345-4678 Téléc. : (514) 345-4806
Site web : www.hsj.qc.ca/
14
Reference Manuals 2
2.0
Reference Manuals
TITLE
DIRECTORY OF FETAL ALCOHOL SPECTRUM DISORDER (FASD) INFORMATION
AND SUPPORT SERVICES IN CANADA
Author/Agency:
Topic:
Canadian Centre on Substance Abuse
References
Caregivers and service providers
Canadian Centre on Substance Abuse, 2005. 110 p. Includes an index of organizations
and listing of information/resources. Revised September 2005
Available Languages: English and French
On website
Publisher:
Canadian Center on Substance Abuse
300 – 75, rue Albert St. Ottawa, ON K1P 5E7
Tel.: / Fax: (613) 235-4048 E-mail: [email protected]
Distributor:
Canadian Centre on Substance Abuse – available in PDF format on-line or in print by
request. Record: 8036 8036-2
Web Site: www.ccsa.ca
TITLE
Author/Agency:
Topic:
Publisher:
Distributor 1: Distributor 2: TITLE
Author/Agency:
Topic:
Publisher:
Distributor: A LAYMAN’S GUIDE TO FETAL ALCOHOL SYNDROME AND POSSIBLE FETAL
ALCOHOL EFFECTS
Berg, S., Kinsey, K., Lutke, J., & Wheway, D. (1995) FASNET Information Series.
General overview of FASD
Community Workers
Paper. 52 pages. This guide answers many of the frequently asked questions about FAS/E
including history, diagnosis, and characteristics of children with FAS/E at different stages
of their lives.
The FAS/E Support Network
The FAS/E Support Network, Surrey, B.C.
Tel.: 604-607-7715 Fax: 604-607-7751
Item Number B-105
$17.00
FAS Bookshelf
Tel.: (604) 942-2024Fax: (604) 942-2041
FASD TOOLKIT FOR ABORIGINAL COMMUNITIES
Ontario Federation of Indian Friendship Centres
Resources for frontline workers
Caregivers and community workers
This Tool Kit was prepared as a “user-friendly” resource to help front line workers working
with children, youth, adults and families affected by Fetal Alcohol Spectrum Disorder. It
was prepared with the generous support of the Public Health Agency of Canada.
219 Front Street East, Toronto, ON M5A 1E8
Tel.: (416) 956-7575
Fax: (416) 956-7577
This document is available on the internet at: Web Site: www.ofifc.org
15
FASD Resource Guide
2 Reference Manuals
TITLE
Author/Agency:
Topic:
Available Languages:
Publisher:
Distributor: ENGLISH LANGUAGE RESOURCES
A RESOURCE MANUAL FOR COMMUNITY-BASED PREVENTION OF FETAL
ALCOHOL SYNDROME AND FETAL ALCOHOL EFFECTS
Health Canada
FASD Prevention
Community Workers
1997. Part of the Health Canada “It Takes A Community” Report.
English and French
Health Canada
Reprint 1997, 2001 ISBN: 0-662-25944-0, Cat. H34-84/1997E
Download as a PDF Document along with the It Takes A Community Report
First Nations and Inuit Health Branch,
Health Canada, Ottawa, Ontario.
Tel.: (613) 954-8641
Fax: (613) 954-8107
Available online at:
www.hc-sc.gc.ca/fnih-spni/pubs/preg-gros/2001_takes-prend-commun/index_e.html
TITLE
IT TAKES A COMMUNITY 1997
TITLE
ENHANCING FETAL ALCOHOL SYNDROME (FAS)-RELATED INTERVENTIONS AT
THE PRENATAL AND EARLY CHILDHOOD STAGES IN CANADA
Author/Agency:
Topic:
Health Canada
Community-based prevention of FASD
First Nations community workers
Framework for the First Nations and Inuit Fetal Alcohol Syndrome and Fetal Alcohol
Effects Initiative and includes A Resource Manual for Community-based Prevention of
Fetal Alcohol Syndrome and Fetal Alcohol Effects listed in REF#04
Publisher:
Prepared by the FAS/FAE Technical Working Group, National Steering Committee,
First Nations and Inuit Health Branch, Health Canada
English: Reprint 1997, 2001 ISBN: 0-662-25944-0, Cat. H34-84/1997E
Distributor:
First Nations and Inuit Health Branch,
Health Canada, Ottawa, Ontario.
Tel.: (613) 954-8641 Fax: (613) 954-8107
Available online at:
www.hc-sc.gc.ca/fnih-spni/pubs/preg-gros/2001_takes-prend-commun/index_e.html
Author/Agency:
Topic:
FASD Resource Guide
Margaret Leslie et Gary Roberts (2001)
Report on Improving Prenatal and Early Childhood FASD Prevention Activities using
Headstart and other programs.
General
Health Canada’s Community Based Programs addressing prenatal and early childhood
issues, including Community Action Program for Children (CAPC), Canada Prenatal
Nutrition Program (CPNP), and Aboriginal Head Start (AHS) projects across the country,
hold great potential in reducing the harms associated with substance use during
pregnancy because of their concern for the overall health of pregnant women, families
and young children. Whether an individual child will have FAS or related effects1appears
to depend on a number of factors in addition to alcohol exposure, including prenatal
health, nutrition, and other drug use, lifestyle and socio-economic factors. Therefore,
substance use and pregnancy issues are best addressed in the context of the overall
health of a family and a comprehensive, integrated response by communities, as
represented by the CAPC, CPNP and AHS projects.
16
Reference Manuals 2
The purpose of this project was to search among programs for FAS-related activity in
the prenatal and early childhood stages. This report examines the gaps and identifies
good practices that will be shared with Health Canada projects to facilitate learning and
development.
Publisher:
Distributor: Record: 9100 (CCSA listings)
Centre canadien de lutte contre l’alcoolisme et les toxicomanies
75, rue Albert, bureau 300, Ottawa (Ontario) K1P 5E7
Tel.: (613) 235-4048
Fax: (613) 235-8101
E-mail : [email protected]
TITLE
Author/Agency:
Topic:
Publisher:
Distributor: TITLE
Author/Agency:
Topic:
Publisher:
Distributor:
FAS: PARENTING CHILDREN AFFECTED BY FETAL ALCOHOL SYNDROME: A GUIDE
FOR DAILY LIVING
BC Ministry for Children and Family Development and Special Needs Adoptive Parents
(1999)
Parent guide
Parents
Information and coping strategies for parents
BC Ministry of Child and Family Services
For print copy: Document No. MCF 089
Warehouse Services,
724 Vanalman Avenue, Victoria, BC V8V 1X4
Tel.: (250) 952-4563
ABORIGINAL APPROACHES TO FETAL ALCOHOL SYNDROME/FETAL ALCOHOL EFFECTS
A Special Report by the Ontario Federation of Indian Friendship Centres - Kim Anderson,
Editor. Fall, 2002
Stories of work being done around FASD in First Nation communities
First Nations Community workers
This report has been commissioned by the Ontario Federation of Indian Friendship
Centres as a way of documenting and celebrating some of the good work that is being
done around FAS/E in our communities. You will find information and inspiration
about parenting children and youth with FAS/E, fetal alcohol syndrome in the schools,
community based programming, prevention work, and alternative justice for alcohol
affected offenders. We are happy to present the stories of birth and adoptive parents,
as well as the story of Francis Perry, a young Mi’kmaw man with FAS, as told in his own
words.
219 Front Street East, Toronto, Ont. M5A 1E8
Tel.: 416-956-7575
Fax: 416-956-7577
Available online in PDF format: http://firstnation.com/healing/fasfae.pdf
Web Site: www.ofifc.org
17
FASD Resource Guide
2 Reference Manuals
TITLE
FAS TOOL KIT
TITLE
PARENTING CHILDREN AFFECTED BY FETAL ALCOHOL SYNDROME:
A GUIDE FOR DAILY LIVING – 2nd edition
Graefe, S. (1998). Society of Special Needs Adoptive Parents
Author/Agency:
A project by the Canadian Centre on Substance Abuse in collaboration with the
Breaking the Cycle Program and funded by Health Canada and the Office of Learning
Technologies, HRDC
Topic:
Information on FASD
General Audience: Community workers, professionals and families
Description:
Complete binder of information, resources and links on FASD. The materials cover topics
of women at risk, alcohol-affected children, alcohol-affected parents, FAS community
development, a FAS Monograph, FAS resources and websites.
Publisher:
Canadian Centre for Substance Abuse and available online
Web Site: www.ccsa.ca/toolkit
Author/Agency:
Topic:
Publisher:
Distributor: Strategies for caring for FASD children
Paper. 75 pages. This parent/caregiver guide outlines the challenges faced by parents of
children affected with FAS/E. It contains many easy to implement strategies.
This resource is now out-of-print however it is available online.
Society of Special Needs Adoptive Parents, BC
Available for download as PDF document:
Web Site: www.mcf.gov.bc.ca/publications/ecd/fas_guide1.pdf
TITLE
FETAL ALCOHOL SPECTRUM DISORDER (FASD)
TITLE
LIVING WITH FASD: A GUIDE FOR PARENTS – 3rd edition
Author/Agency:
Topic:
Publisher:
Distributor: Author/Agency:
Publisher:
Public Health Canada
General Information on FASD in Canada
General
Answers to some frequently asked questions about FASD
English and French
Public Health Canada Booklet No. 4200
Cat. No. : H124-4/2004
Available as PDF document online: http://www.phac-aspc.gc.ca/fasd-etcaf/faq_e.html
Graefe, S. (2003). Society of Special Needs Adoptive Parents
Parents and Caregivers
Paperback. 128 pages. “Bringing up-to-date and comprehensive information about FASD,
this edition includes the latest Institute of Medicine diagnostic criteria and terms, special
considerations for infants and adolescents, parent needs, and an expanded resource list.
Previous edition listed above
Society of Special Needs Adoptive Parents/Ben Simon Press.
$25.00
Tel.: (604) 942-2024
Fax: (604) 942-2041
18
TITLE
Author/Agency:
Topic:
Publisher:
Distributor: TITLE
Author/Agency:
Topic:
Publisher:
Distributor: TITLE
Author/Agency:
Topic:
Publisher:
Distributor: Reference Manuals 2
LIVING AND WORKING WITH FETAL ALCOHOL SYNDROME/EFFECTS
Mayer, L. (ed.) (1999). Interagency FAS/E Program
Readings in FASD
General interest to parents, caregivers and community workers
Spirobound. 137 pages. This book’s units include: Living with FAS/E
(Birth Mothers’ Stories, My Gift to My Daughter, My Body always wants to move),
Working with FAS/E (Building a Program from the Ground Up), Living and Working with
FAS/E (Communicating with FAS/FAE Children, Reframing Perceptions: How Children
with FAS/E Sense the World…)
Interagency FAS/E Program.
$20.00
Tel.: (604) 942-2024
Fax: (604) 942-2041
YOUNG ADULTS WITH FETAL ALCOHOL SYNDROME OR FETAL ALCOHOL
EFFECTS: EXPERIENCES, NEEDS, AND SUPPORT STRATEGIES- A REPORT
Rutman, D. & Copeland, B. (1996) University of Victoria
FASD Research Project Report
Community workers and families
85 pages. Paper. This research project sought to examine the experiences and support
needs of individuals and families who are dealing with age of majority transitions and/or
parenting while affected by fetal alcohol. The researchers interviewed a number of
young adults with FAS/E to discuss issues relating to adolescence and adulthood,
including pregnancy, parenting and developing independent living skills.
University of Victoria School of Social Work
FAS Bookshelf
Item Number B-124 $10.00
Tel.: (604) 942-2024
Fax: (604) 942-2041
WORKING WITH FAMILIES AFFECTED BY FETAL ALCOHOL S
YNDROME/EFFECTS – A REPORT
Rutman, D. & Normand, C. (1996) University of Victoria
Research Report on issues related to serving children and families with FASD
Community workers
50 pages. Paper. This report is a “companion” to Caring for Children with F.A.S. It focuses
on workers’ discussion of their experiences and key issues faced in serving young
people affected by FAS and their families, as well as workers’ own needs for FAS-related
resources, education, and training.
University of Victoria School of Social Work
FAS Bookshelf
Item Number B-125
$10.00
Tel.: (604) 942-2024
Fax: (604) 942-2041
19
FASD Resource Guide
2 Reference Manuals
TITLE
Author/Agency:
Topic:
Publisher:
Distributor: TITLE
Author/Agency:
Topic:
Publisher:
Distributor: TITLE
Author/Agency:
Topic:
Publisher:
CARING FOR CHILDREN WITH FETAL ALCOHOL SYNDROME-A REPORT
Rutman, D. & Normand, C. (1996) University of Victoria
Research Report
Community Workers and Parents of FASD children
A research project. This report profiles the experiences, challenges, accomplishments,
and needs of children affected by fetal alcohol and their parents from the perspective of
the parents.
University of Victoria School of Social Work.
FAS Bookshelf
Item Number B-126
$10.00
Tel.: (604) 942-2024
Fax: (604) 942-2041
ADULTS LIVING WITH FAS/E: EXPERIENCES AND SUPPORT ISSUES IN
BRITISH COLUMBIA
Rutman, D., La Berge, C. & Wheway, D. (2002) (FASNET)
Research Report on individuals with FASD
Community workers & FASD individuals and their families
Paper. 159 pages. This research report includes excerpts of life stories of individuals with
FAS as well as a discussion of a number of issues and experiences that participants have
told about day-to-day living with FAS/E. These issues and experiences have been divided
into different topic areas (e.g. accomplishments, employment, education, parenting with
FAS/E, independence, justice…. The Implications section outlines directions for
supportive policies and effective practices for adults living with FAS/E as identified
through this research.
FAS Support Network of B.C.
FAS Bookshelf Item Number B-132 $35.00
Tel.: (604) 942-2024
Fax: (604) 942-2041
SPECIAL DELIVERY: A SIMPLE GUIDE FOR PARENTING SUBSTANCE EXPOSED
BABIES
Smith, S. & Harasimiuk, W. (2001)
Babies with FASD or other substance abuse effects
Parents
Paper. 36 pages. “This book…(provides) caregivers of babies affected by substance use
with information on parenting these special babies. (It) is not meant to be a medical
guide, but offers advice on how to cope with the special needs of an infant affected by
prenatal substance exposure.”
Healthiest Babies Possible/Northern Family Health Society-Prince George
Tel.: (604) 942-2024
Fax: (604) 942-2041
20
TITLE
Author/Agency:
Topic:
Publisher:
FETAL ALCOHOL SYNDROME/EFFECTS: DEVELOPING A COMMUNITY
RESPONSE
Turpin, J. (1999)
FASD Interdisciplinary perspectives
Community Workers
Paperback. 111 pages. “FAS and FAE are serious problems in many northern
communities… The intent of this book is to provide a practical resource that reflects a
multidisciplinary perspective on the problem of Fetal Alcohol Syndrome.”
Fernwood.
Tel.: (604) 942-2024
Fax: (604) 942-2041
TITLE
VOICES FROM THE FIELD - AN ABORIGINAL VIEW ON FAS/FAE
TITLE
FETAL ALCOHOL SYNDROME
Author/Agency:
Topic:
Della Maguire, Executive Director and Founder Mi’kmaq First Nation Healing Society
FASD from First Nations Perspective
Community Workers
When we read the CEECD papers, FAS/FAE comes across as a women’s problem. “There is
a need for more sensitivity and it should be stressed that FAS/FAE is not only a women’s
issue,” Maguire states. The Aboriginal people look at a community holistically and
therefore they talk about the partner, family and community as well. All problems are
considered collectively. According to Maguire, Aboriginal communities lack this type of
research information. There is a strong need to go beyond what already exists. Aboriginal
people should be more involved in the research in order to make it relevant to their
communities.
Publisher:
Centre for Excellence in Early Childhood
Distributor: Centre for Excellence in Early Childhood Online Encyclopedia
Web Site: http://www.excellence-earlychildhood.ca/documents/MaguireANG.pdf
Author/Agency:
Topic:
Encyclopedia On Early Childhood Development - Online
Various related articles on FASD
General
Fetal Alcohol Syndrome (FAS) and a spectrum of associated disorders, sometimes called
Fetal Alcohol Spectrum Disorders (FASD), is a permanent birth defect caused by maternal
consumption of alcohol during pregnancy. The term fetal alcohol effects (FAE) or alcoholrelated neurodevelopmental disorder (ARND) is applied to children whose mothers
are known to have drunk heavily during pregnancy and who exhibit some, but not all,
features of alcohol-related facial malformation. FASD is the leading cause of mental
retardation in the Western world and is entirely preventable. It has been estimated that
one in 1000 children born suffers from FAS, and one in 100 suffers milder effects (FAE)
of maternal prenatal alcohol exposure. The encyclopedia presents various articles on
FAS/FAE from experts in the field.
Publisher:
Centre for Excellence in Early Childhood
Distributor: Web Site: http://www.excellence-earlychildhood.ca/theme.asp?id=6&lang=EN
21
FASD Resource Guide
2 Reference Manuals
TITLE
Author/Agency:
Topic:
Publisher:
FETAL ALCOHOL SPECTRUM DISORDERS: A COLLECTION OF INFORMATION FOR
PARENTS AND PROFESSIONALS
Diane Malbin, MSW
Information on FASD
Parents and professionals
This collection is organized around the following topics:
1. Diagnosis of FAS/ARND and the range of effects,
2. A framework for understanding behaviors and overlapping diagnoses,
3. How it is that good parenting and professional techniques seem ineffective, and
4. Guidelines for developing effective supports at home, school and the community.
183 pages, Second Edition, illustrated, revised 2006
FASCETS Inc.
FASCETS Cost: $25.00 (US)
PO Box 83175, Portland, OR 97283 USA
Tel./fax: 503-621-1271
Web Site: www.fascets.org
TITLE
ALCOHOL-RELATED BIRTH DEFECTS. 1999
TITLE
BEST PRACTICES: FAS/FAE AND THE EFFECTS OF OTHER SUBSTANCE USE DURING
PREGNANCY
Author/Agency:
Topic:
Breton, AB: Brighter Futures
FASD
Parents
This booklet describes ARBDs and characteristics found in infants and young children
and provides parenting tips for people who have children with alcohol-related birth
defects; includes illustrations
Available Languages: English (May be translated into French through CCSA)
Publisher:
Breton, AB: Brighter Futures
Distributor:
To order: Brighter Futures, Box 779, Breton, AB T0C 0P0.
Tel.:(780) 696-2543
Fax: (780) 696-2564
Also available through the Canadian Centre on Substance Abuse
Author/Agency:
Topic:
Health Canada, December 2000
Best practices for FASD
Community Workers
This review of the literature identifies best practices for prevention, identification and
intervention in regard to FAS/FAE and the use of other substances during pregnancy.
Publisher:
Health Canada
Distributor: Public Health Agency of Canada
Available as a PDF Document download:
http://www.phac-aspc.gc.ca/fasd-etcaf/publications_e.html (English publications)
FASD Resource Guide
22
TITLE
Author/Agency:
Topic:
Publisher:
Distributor:
TITLE
Author/Agency:
Topic:
Publisher:
Distributor: TITLE
Author/Agency:
Topic:
Publisher:
THE FASLINK CD
Fetal Alcohol Disorders Society
FASD
Families and professionals
The FASlink CD is an ideal resource for families and professionals who deal with FASD
issues. It deals with diagnostic, medical, educational, behavioral, social and justice issues
that affect individuals prenatally exposed to alcohol. The FASlink CD contains more than
70 key articles and presentations. List of articles on website.
FASlink
This CD is a fund raiser for FASlink. Donation of $20.00 or more each, shipping
included.
Address: 2445 Old Lakeshore Road, Bright’s Grove, Ontario, N0N 1C0
Tel.: (519) 869-8026
E-Mail: [email protected]
Web Site: www.faslink.org or http://www.acbr.com/fas/
FETAL ALCOHOL SYNDROME AND FETAL ALCOHOL EFFECTS: AN INFORMATION
BOOKLET FOR AMERICAN INDIANS
National Indian Child Welfare Association
FASD
Families and community workers
An easy-to-read, 24-page booklet brings together various facts, stories and expert
information about the devastating effects of alcohol consumption during pregnancy and
breast-feeding. It was designed for American Indians, but the information is relevant to
everyone.
5100 SW Macadam Ave, Suite 300
Portland, OR 97201, USA.
Tel.: (503) 222-4044
Fax: (503) 222-4007
ADOPTION PIECE BY PIECE: LIFELONG ISSUES, A TOOLKIT FOR PARENTS, AND
SPECIAL NEEDS
Edited by Sara Graefe | Foreword by Brad Watson | 3 Volumes
Special Needs children
Parents and professionals dealing with special needs and, singly or together, for every
adoptive family
This trilogy is for newly adoptive parents and professionals alike. The books cover
everything from adopting a child who has Fetal Alcohol Spectrum Disorder (FASD)
to receiving the help your child needs from his or her family doctor or teacher. This
series represents a comprehensive collection of articles from experienced parents and
professionals on a variety of topics related to adoption. A must for any adoptive parent
or professional who deals with the complex issues around adoption.
BC Society for Adoptive
SNAP Groundwork Press $28.95 each, $69.95, 3 volume set
101-2780 East Broadway, Vancouver, BC V5M 1Y8
Order online from:
Web Site: http://www.groundworkpress.com/_snap/gp_bookcatalogue.php
23
FASD Resource Guide
2 Ouvrages de référence
2.0 Ouvrages de référence
TITRE
RÉPERTOIRE CANADIEN DES SERVICES D’INFORMATION ET DE SOUTIEN SUR
L’ENSEMBLE DES TROUBLES CAUSÉS PAR L’ALCOOLISATION FŒTALE (ETCAF)
Sujet :
Destinataire(s) :
Description :
Ouvrage de référence
Fournisseurs de services
Centre canadien de lutte contre l’alcoolisme et les toxicomanies, 2005. 110 p. Liste
d’organismes et de sources d’information. Révisé en septembre 2005.
Langues :
Anglais et français
Outils supplémentaires : Site Web de l’organisme
Éditeur :
75, rue Albert, bureau 300, Ottawa (Ontario) K1P 5E7 Tél. : (613) 235-4048 Courriel : [email protected]
Distributeur : CCLAT – Disponible sur demande en PDF (format électronique ou imprimé)
Document : 8036 8036-2
Centre canadien de lutte contre l’alcoolisme et les toxicomanies Site web : www.ccsa.ca
TITRE
Sujet :
Destinataire(s) :
Description :
Langues :
Éditeur :
Sujet :
Destinataire(s) :
Description :
Langues :
Éditeur :
Distributeur : MANUEL DE RESSOURCES À L’USAGE DES PROGRAMMES COMMUNAUTAIRES DE
PRÉVENTION ET D’INTERVENTION EN MATIÈRE DE SYNDROME D’ALCOOLISME
FŒTAL ET DES EFFETS DE L’ALCOOL SUR LE FŒTUS
Santé Canada
Prévention de l’ETCAF
Intervenants communautaires
Fait partie du rapport de Santé Canada intitulé Ça prend une communauté.(1997)
Santé Canada
Réimpression 1997, 2001 ISBN: 0-662-25944-0 Cat. H34-84/1997F
Document complet téléchargeable en format PDF.
Direction générale de la santé des Premières nations et des Inuits, Santé Canada,
Ottawa (Ontario). Tél. : (613) 954-8641
Téléc. : (613) 954-8107
Disponible sur Internet Site web : www.hc-sc.gc.ca/fnih-spni/pubs/preg-gros/2001_
takes-prend-commun/index_f.html
ÇA PREND UNE COMMUNAUTÉ (1997)
Santé Canada
Prévention de l’ETCAF en milieu communautaire
Intervenants des communautés des Premières Nations
Cadre de travail pour l’Initiative des Premières nations et des Inuits sur le syndrome
d’alcoolisme fœtal et les effets de l’alcool sur le fœtu.
Préparé par le groupe de travail technique sur le SAF/EAF, Comité directeur national,
Direction générale de la santé des Premières nations et des Inuits, Santé Canada
Français : Réimpression 1997, 2001 ISBN: 0-662-25944-0 Cat. H34-84/1997F
Direction générale de la santé des Premières nations et des Inuits, Santé Canada,
Ottawa (Ontario). Tél. : (613) 954-8641
Téléc. : (613) 954-8107
Disponible sur Internet : www.hc-sc.gc.ca/fnih-spni/pubs/preg-gros/2001_takes-prendcommun/index_f.html (version française)
24
TITRE
Sujet :
Destinataire(s) :
Description :
Ouvrages de référence 2
AMÉLIORATION DES INTERVENTIONS CONTRE LE SYNDROME D’ALCOOLISME
FOETAL (SAF) AU STADE PRÉNATAL ET DANS LA PETITE ENFANCE AU CANADA.
Margaret Leslie et Gary Roberts (2001)
Report on Improving Prenatal and Early Childhood FASD Prevention Activities using
Headstart and other programs.
Grand public
Les programmes d’action communautaire de Santé Canada qui visent le stade
prénatal et la petite enfance, qu’il s’agisse du Programme d’action communautaire
pour les enfants (PACE), du Programme canadien de nutrition prénatale (PCNP) ou du
Programme d’aide préscolaire aux Autochtones (PAPA) à l’échelle nationale, peuvent
réduire considérablement les méfaits causés par la toxicomanie en période de grossesse,
puisqu’ils ont pour objet la santé générale des femmes enceintes, des familles et des
jeunes enfants. Le fait qu’un enfant souffre du syndrome d’alcoolisme fœtal (SAF) ou des
effets de l’alcool sur le fœtus (EAF) semble dépendre de divers facteurs qui s’ajoutent à
celui de l’exposition à l’alcool : santé, nutrition, autres toxicomanies prénatales, mode
de vie et facteurs socioéconomiques. On peut donc mieux s’attaquer aux questions
de toxicomanie prénatale dans le contexte de la santé familiale en général et d’une
intervention globale et intégrée des collectivités dans le cadre des projets PACE, PCNP et
PAPA.
Langues :
Éditeur :
Distributeur : Cette étude a pour but d’identifier les activités de lutte contre le SAF au stade prénatal et
dans la petite enfance dans le cadre des programmes mentionnés ci-dessus. Ce rapport
traite des lacunes et des pratiques exemplaires à faire connaître aux responsables des
projets de Santé Canada en vue de faciliter l’apprentissage et le développement.
Document 9100 (Répertoires du CCLAT)
Téléphone : (613) 235-4048; télécopieur : (613) 235-8101
Courriel : [email protected]
Site web : www.ccsa.ca
TITRE
LA TROUSSE DU SAF
Sujet :
Destinataire(s) :
Description :
Langues :
Éditeur :
Projet réalisé par le Centre canadien de lutte contre l’alcoolisme et les toxicomanies, en
collaboration avec le programme Breaking the Cycle et cofinancé par Santé Canada et le
Bureau des technologies d’apprentissage de DRHC.
Information sur le SAF.
Intervenants communautaires, professionnels et parents
Fournit des renseignements complets sur le SAF ainsi qu’une liste de ressources et de
liens qui s’y rapportent. Sujets abordés : les femmes à risque, les enfants touchées par le
SAF, les parents touchés par le SAF et l’intervention collective. Par ailleurs, ce document
renferme une étude détaillée sur le SAF, une liste de ressources et de sites Web sur le SAF.
Disponible sur Internet Site web : www.ccsa.ca/toolkit/Introductionf.htm
25
2 Ouvrages de référence
TITRE
L’ENSEMBLE DES TROUBLES CAUSÉS PAR L’ALCOOLISATION FŒTALE (ETCAF)
Sujet :
Destinataire(s) :
Description :
Langues :
Éditeur :
Distributeur : Agence de santé publique du Canada
Renseignements généraux sur l’ETCAF au Canada
Grand public
Réponses à quelques questions fréquemment posées concernant l’ETCAF.
Agence de santé publique du Canada, livret no 4200
No de Cat. : H124-4/2004
Disponible sur Internet en format PDF :
Site web : www.phac-aspc.gc.ca/fasd-etcaf/faq_f.html (Français)
TITRE
PARENTS D’ENFANTS TOUCHÉS PAR LE SYNDROME D’ALCOOLISME FŒTAL :
UN GUIDE POUR LE QUOTIDIEN
Sujet :
Destinataire(s) :
Description :
Éditeur :
Sujet :
Destinataire(s) :
Description :
Éditeur :
Sujet :
Destinataire(s) :
Description :
Society of Special Needs Adoptive Parents
Enfants atteints du SAF
Parents, professeurs, travailleurs sociaux et professionnels
Un guide pour faciliter le quotidien de tous ceux qui s’occupent d’enfants atteints du
SAF (parents, professeurs, travailleurs sociaux, médecins, etc.). Contenu : Définitions.
Manifestations courantes. Idées fausses. Suggestions pour parents. Valeurs guides pour
le quotidien. Considérations spéciales pour nourrissons. Considérations spéciales pour
adolescents. Besoins des parents. Parler à l’enfant du SAF. 82 p.
Vancouver Society of Special Needs Adoptive Parents, 1998.
Conseil d’adoption du Canada: 1-888-54-ADOPT
CE QUE LES ÉDUCATEURS DES JEUNES ENFANTS ET FOURNISSEURS DE SOINS
DOIVENT SAVOIR AU SUJET DU SYNDROME D’ALCOOLISME FŒTAL (SAF)
Manitoba Child Care Association – Enfants en santé Manitoba
Enfants atteints du SAF
Les éducateurs et les fournisseurs de soins
Un guide pour faciliter le quotidien de tous ceux qui s’occupent d’enfants atteints du
SAF Contenu: Définitions. Manifestations courantes. Idées fausses. Suggestions. Valeurs
guides pour le quotidien. Considérations spéciales. 40 p.
Manitoba Child Care Association
Enfants en santé Manitoba
Tél: (204) 945-2266 ou 1-888-848-0140
Téléc. : (204) 948-2585 Site web : non listé
COMMENTAIRES DES MILIEUX – UNE VISION AUTOCHTONE DU SAF/EAF
Della Maguire, directrice générale et fondatrice de la Mi’kmaq First Nation Healing
Society
L’ETCAF du point de vue des Premières Nations
À la lecture des articles du CEDJE, le SAF/EAF ressort comme un problème de femmes.
Selon Mme Maguire, « Il faut sensibiliser les gens au fait que le SAF/EAF n’est pas un
problème qui concerne uniquement les femmes ». Les Autochtones portent un regard
holistique sur la communauté et en conséquence, ils incluent aussi le partenaire,
la famille et la communauté. On considère tous les problèmes de façon collective.
Mme Maguire affirme que ce type de recherche fait défaut dans les communautés
autochtones et qu’il y a un grand besoin d’aller au-delà de ce qui existe déjà.
26
Ouvrages de référence 2
Langues :
Éditeur :
Distributeur : Les Autochtones devraient s’impliquer davantage dans la recherche afin de la rendre
pertinente pour leurs communautés.
Centre d’excellence pour le développement des jeunes enfants
Centre d’excellence pour le développement des jeunes enfants, Encyclopédie sur le
développement des jeunes enfants
Site web : www.excellence-earlychildhood.ca/documents/MaguireFR.pdf
TITRE
LE SYNDROME D’ALCOOLISATION FŒTALE
Sujet :
Destinataire(s) :
Description :
Langues :
Éditeur :
Sujet :
Destinataire(s) :
Description :
Langues :
Éditeur :
Distributeur :
Encyclopédie sur le développement des jeunes enfants – en ligne
Divers articles sur l’ETCAF
Grand public
Le syndrome d’alcoolisation fœtale (SAF) et l’ensemble des troubles associés, parfois
appelé ensemble des troubles causées par l’alcoolisation fœtale (ETCAF) est une
anomalie congénitale permanente causée par la consommation maternelle d’alcool
pendant la grossesse. Les expressions effets d’alcoolisation fœtale (EAF) ou troubles
neurodéveloppementaux liés à l’alcool (TNLA) s’appliquent aux enfants dont on sait
que les mères ont consommé de grandes quantités d’alcool pendant la grossesse
et qui manifestent certaines des caractéristiques de malformation faciale reliée à
l’alcool. L’ETCAF est la cause principale de retard intellectuel en Occident et peut être
entièrement évité. On estime qu’un enfant sur 1 000 souffre de SAF, et qu’un sur 100
souffre d’effets modérés (EAF) de l’exposition maternelle prénatale à l’alcool.
Cette encyclopédie présente divers articles d’experts en matière de FAS/EAF.
Centre d’excellence pour le développement des jeunes enfants
Site web : www.excellence-earlychildhood.ca/theme.asp?id=6&lang=FR
MEILLEURES PRATIQUES : SYNDROME D’ALCOOLISME FOETAL/EFFETS DE
L’ALCOOL SUR LE FOETUS ET LES EFFETS DES AUTRES DROGUES PENDANT
LA GROSSESSE.
Santé Canada, décembre 2000
Meilleures pratiques en matière d’ETCAF
Cette analyse documentaire dégage les meilleures pratiques de prévention,
d’identification et d’intervention en matière de SAF/EAF et d’utilisation d’autres
substances pendant la grossesse.
Santé Canada
Agence de santé Publique du Canada
Disponible sur Internet en format PDF :
Site web : www.phac-aspc.gc.ca/fasd-etcaf/publications_f.html
(publications en français)
27
3
Educational Resources and Materials
3.0 Educational Resources and Materials
TITLE:
STOP FETAL ALCOHOL SYNDROME/FETAL ALCOHOL EFFECTS NOW!
TITLE
MOTIVATING PREGNANT WOMEN TO ADDRESS SUBSTANCE USE ISSUES:
A CONVERSATION WITH MARLENE THIO-WATTS
Author/Agency:
Topic:
Publisher:
Distributor: Author/Agency:
Topic:
Publisher:
Distributor: TITLE
Author/Agency:
Topic:
Publisher:
Health Canada
Prevention
General
Pamphlet with information on FASD, characteristics and prevention
English and French
Health Canada
Health Canada Cat. no H21-177/2001E
ISBN 0-662-31044-6
PDF format available on-line Web Site: http://www.hc-sc.gc.ca/fnih-spni/pubs/preg-gros/
stop-arret-syndrome/index_e.html
CCSA 2001
Prenatal programs
Caregivers and community workers
Discussion by Margaret Leslie with Marlene Thio-Watts of Northern Family Health
Society, Prince George, BC on a holistic approach that works well with pregnant women.
Key to successfully identifying risk of substance use during pregnancy is using effective
approaches and the right environment. The 4-page document outlines this approach.
CCSA
Record: 8857 available in PDF format on-line
Web Site: www.ccsa.ca/
HELPING COMMUNITIES RESPOND TO ALCOHOL USE AND PREGNANCY ISSUES:
A CONVERSATION WITH JUDY KAY
Margaret Leslie for CCSA, 4 pages, 2001
Support and education programs
Care-givers, parents and educators
Judy Kay works for Healthy Generations Family Support Program (formerly FAS/FAE
Support Program), Sioux Lookout, in Ontario. They believe that early identification is
a key step to understand the root cause of a child’s behavioral and learning problems.
She describes how it becomes really obvious that a service offering support around FAS
or alcohol and pregnancy has to provide a wrap-around holistic support, in a way that
doesn’t just focus on such hard issues.
Online
Canadian Centre for Substance Abuse
CCSA Record 8859 available in PDF format on-line
28
TITLE
TRAIN THE TRAINER MODEL FOR FASD
TITLE
BREAKING THE CYCLE EARLY INTERVENTION PROGRAM
Author/Agency:
Topic:
National Indian and Inuit Community Health Representatives Organization (NIICHRO)
Training program
First Nations and Inuit Community Front-line Workers
Through funding from Public Health Agency of Canada’s FAS/FAE Strategic Project Fund,
NIICHRO developed and delivered a Train-the-Trainer model in both official languages for
First Nations and Inuit Community Health Representatives and other front-line workers
in Aboriginal communities.
None provided
Publisher:
NIICHRO and Public Health Agency of Canada
Distributor: NIICHRO
P.O. Box 1019 Kahnawake QC J0L 1B0
Tel.: (450) 632-0892Fax: (450) 632-2111
Web Site: http://www.niichro.com
Author/Agency:
Margaret Leslie, Director, Early Intervention Programs
107 - 761 Queen St. West Toronto ON M6J 1G1
Tel.: (416) 364-7373, ext. 204Fax: (416) 364-8008
Web Site: http://www.breakingthecycle.ca
Topic:
Training Programs and Development
General Audience: Frontline Workers
Description:
Breaking the Cycle has engaged in knowledge exchange activities which have resulted in
the development of the following FASD resources:
1. Enhancing Fetal Alcohol Syndrome (FAS)-related Interventions at he Prenatal and
Early Childhood Stages in Canada. Ottawa: Health Canada (M. Leslie & G. Roberts)
2001 (www.ccsa.ca);
2. Demonstration Project to Provide On-Line Training and Consultation on EvidenceBased Practices for Front-Line Practitioners in Health Canada’s CAPC/CPNP Network
(2002) ;
3. Different Directions: Understanding Fetal Alcohol Syndrome: A Train the Trainer
Manual (2002), and three accompanying training videos:
i. Different Directions: Understanding FAS (2002),
ii. Different Directions: Community Prevention (2003),
iii. Different Directions: Early Interventions in FAS (2004);
4. The SMART GUIDE: Motivational Approaches Within the Stages of Change for
Pregnant Women Who Use Alcohol: A Training Manual for Service Providers
Kingston: AWARE (W. Reynolds & M. Leslie 2002);
5. Nurturing Change: Working Effectively with High Risk Women and Children to
Prevent and Reduce Harms Associated with FASD. Ottawa: Health Canada (M. Leslie
& G. Roberts 2004) (www.mothercraft.org; www.ccsa.ca)
Publisher:
Health Canada et al.
Distributor: Canadian Centre on Substance Abuse
300 – 75, rue Albert St. Ottawa, ON K1P 5E7
Tel.: / Fax: (613) 235-4048
29
FASD Resource Guide
3
3
TITLE
Author/Agency:
Topic:
Publisher:
Distributor: TITLE
Authors:
Topic:
Publisher:
TITLE
Author/Agency:
Topic:
Publisher:
TITLE
Author/Agency:
Topic:
Publisher:
FASD Resource Guide
AWARENESS OF CHRONIC HEALTH CONDITIONS - WHAT THE TEACHER NEEDS TO
KNOW (1995)
Ministry of Education – Special Education
Teaching students with chronic health conditions includ. FASD
Teachers K - 12
This resource book contains information designed to assist classroom teachers in
understanding the implications for classroom instruction and management of a number
of chronic health conditions. This document includes a chapter on FAS.
Ministry of Education – Special Education
Coordinator, Special Education
Special Programs Branch
Ministry of Education, Skills and Training
P.O. Box 9165 STN Prov Govt, Victoria, B.C. V8W 9H4
Fax: (604) 356-7631
Province of British Columbia, Ministry of Education.
Catalogue #RB0057
Web Site: www.bced.gov.bc.ca/specialed/fas/welcome.htm
RISK AND REALITY: TEACHING PRESCHOOL CHILDREN AFFECTED
BY SUBSTANCE ABUSE (KIT)
Brady, J.P. & Grollman, S. 1994, 76p. Rockville, MD: Department of Health and Human
Services and US Department of Education.
Preschool Teaching Kit for Special Needs
Preschool Teachers
Education Kit for Preschool Teachers
Department of Health and Human Services and US Department of Education.
THINK ALOUD – INCREASING SOCIAL & COGNITIVE SKILLS – A PROBLEMSOLVING PROGRAM FOR CHILDREN
Bash, M.A. & Camp, B.W. (1985) Champaign, IL: Research Press
Skills Building and Problem solving for Elementary Students
Teachers and educators
Available in 3 books: Grades 1-2 (307 p.), Grades 3-4 (277 p.), Grade 5-6 (285 p.)
Research Press
Web Site: www.bced.gov.bc.ca/specialed/fas/books.htm
REACHING OUT TO CHILDREN WITH FAS/FAE: A HANDBOOK FOR TEACHERS,
COUNSELLORS AND PARENTS WHO WORK WITH CHILDREN AFFECTED BY FETAL
ALCOHOL SYNDROME AND FETAL ALCOHOL EFFECTS
Davis, D. (1994). West Nyack, N.Y: The Centre for Applied Research in Education, 192 p.
Education
Teachers, counsellors and parents
A handbook with a wealth of ready-to-use information about FAS, plus dozens of
classroom-tested activities and procedures. Listed by BC Ministry of Education, Special
Education at http://www.bced.gov.bc.ca/specialed/fas/books.htm
The Centre for Applied Research in Education
Order from: Wisconsin Clearinghouse, University of Wisconsin-Madison, Dept. 6C, PO Box
1468, Madison, WI 53701, USA Tel.: 1-800-322-1468 (order #481)
30
TITLE
Author/Agency:
Topic:
PRENATALLY EXPOSED KIDS IN SCHOOL: WHAT TO DO, HOW TO DO IT
Publisher:
Odom-Winn, D. & Dunagan, D. (1991). Freeport, N.Y: Educational Activities Inc.
FASD and Education
Teachers
Listed as reference by BC Ministry of Education/ Special Education
http://www.bced.gov.bc.ca/specialed/fas/books.htm
Educational Activities Inc.
TITLE
BETTER SAFE THAN SORRY – PREVENTING A TRAGEDY
Author/Agency:
Topic:
Publisher:
Distributor: TITLE
Author/Agency:
Topic:
Publisher:
Distributor: University of North Carolina Bowles Center for Alcohol Studies
Teaching Kit for FASD
Teachers
A curriculum kit developed by Dr. Kathy Sulik of the University of North Carolina Bowles
Center for Alcohol Studies which includes: “Hard copies of implementation directions
and background materials; a CD-ROM with a Power Point presentation introducing FAS,
as well as an introductory video; … colorful transparencies to provide teachers with
additional background information on FAS.”
National Institute on Alcohol Abuse and Alcoholism
Order free of charge by contacting:
J. Lazarow, M.Ed., Science Education Coordinator,
Office of Collaborative Research,
National Institute on Alcohol Abuse and Alcoholism,
6000 Executive Boulevard, Suite 302,
Bethesda, MD, USA 20892-7003.
Tel.: (301) 435-8043
Fax: (301) 480-2358
TEACHING STUDENTS WITH FETAL ALCOHOL SYNDROME/EFFECTS:
A RESOURCE GUIDE FOR TEACHERS.
Conry, J. (1996). B.C Ministry of Education. 94 pages.
FASD Resources for Teachers
Teachers
This guide provides teachers with information on challenges faced by children with FAS/
E and lists strategies for the classroom teacher.
Available on-line from BC Ministry of Education at: www.bced.gov.bc.ca/specialed/fas
FAS Bookshelf Inc. Item Number: B-102 $15.00
Tel.: (604) 942-2024
Fax: (604) 942-2041
Order from bookshelf online at Web Site: www.fasbookshelf.com
31
FASD Resource Guide
3
3
TITLE
Author/Agency:
Topic:
Publisher:
Distributor: TITLE
Author/Agency:
Topic:
TIPS: THOUGHTS, IDEAS, PRACTICES AND STRATEGIES FOR WORKING
EFFECTIVELY WITH CHILDREN WHO HAVE ALCOHOL RELATED DISORDERS
Froehlich, E., Robinson, M., Spack, C. & Tozeland, J. (2003).
Strategies for working with children with FASD
Teachers and caregivers
Paper. 73 pages. “A guiding principle of the authors was that, although all children
have the capacity to learn, they do not all learn in the same way. These suggestions are
intended for teaching children with ARD.”
Child Guidance Clinic
Tel.: (604) 942-2024
Fax: (604) 942-2041
Order from bookshelf online at
TOUGH KIDS AND SUBSTANCE ABUSE: A DRUG AWARENESS PROGRAM FOR
CHILDREN AND ADOLESCENTS WITH ARND, FAS, FAE AND COGNITIVE
DISABILITIES.
Cook, P., Kellie, R., Jones, K. & Goossen, L. (2000). Addictions Foundation of Manitoba.
Drug education for FASD-affected kids
Educators and community workers
Paper. 292 pages. This new drug awareness program targeted to “tough kids” provides
educators and other youth community professionals with practical strategies related to
educating this group about alcohol, inhalant and other drug issues.”
Available Languages: English
Publisher:
Addictions Foundation of Manitoba.
Distributor: FAS Bookshelf Inc. Item Number: B-103 $29.00
Tel.: (604) 942-2024
Fax: (604) 942-2041
TITLE
Author/Agency:
Topic:
YOUR VICTORY: A HAPPY CHILD…SUPPORTIVE STRATEGIES FOR THE STAFF OF
CHILDREN’S SUMMER CAMPS AND RECREATION PROGRAMS
deBree, R. (2001). Duncan, B.C
Strategies for Recreational programs for children with FASD
Summer camp and recreation staff
Paper Booklet. 23 pages. This booklet provides basic information on FAS and strategies
for staff who will be coordinating or working with children in recreational and summer
programs.
Tel.: (604) 942-2024
Fax: (604) 942-2041
32
TITLE
Author/Agency:
Topic:
Distributor:
TITLE
Author/Agency:
Topic:
Publisher:
Distributor:
TITLE
Author/Agency:
Topic:
Publisher:
Distributor: Educational Resources and Materials
CHALLENGES AND OPPORTUNITIES: A HANDBOOK FOR TEACHERS OF SPECIAL
NEEDS WITH A FOCUS ON FETAL ALCOHOL SYNDROME (FAS) AND PARTIAL
FETAL ALCOHOL SYNDROME (PFAS)
Lasser, P. (1999) Vancouver School Board.
Teaching strategies
Special Needs Teachers
Paper. 178 pages. Written by a teacher and reviewed by teachers, parents, and advocates
of students with FAS/E, this handbook puts a “human face” on FAS/E by providing
pictures and quotes of students who live with FAS/E and vignettes from their lives. It
contains 200+ teaching strategies.
Tel.: (604) 942-2024
Fax: (604) 942-2041
TEACHING FOR THE PREVENTION OF FETAL ALCOHOL SPECTRUM DISORDER,
GRADES 1-12: A RESOURCE FOR TEACHERS OF HEALTH AND LIFE SKILLS AND
CALM
(2002). Alberta Learning.
FASD Awareness
Teachers of Students grades 1 - 12
3 Hole Punched/Shrunkwrap &/or Stapled. 212 pages. “The goal of this resource is to
raise awareness of the effects and characteristics of Fetal Alcohol Spectrum Disorder
(FASD) through learning activities that teachers can incorporate into the health and life
skills, and Career and Life Management programs. It provides strategies, activities and
student information sheets focusing on the prevention of alcohol use and abuse during
pregnancy. A handout for community resource people offers tips for working with
students and outlines the specific goals and learning outcomes for the health program.”
Alberta Learning available online at
Web Site: www.education.gov.ab.ca/k_12/curriculum
Tel.: (604) 942-2024
Fax: (604) 942-2041
TEACHING STUDENTS WITH FETAL ALCOHOL SPECTRUM DISORDER:
BUILDING STRENGTHS, CREATING HOPE
(2004). Alberta Learning.
Teaching resources for FASD students
Teachers
Paper. 180 pages. This resource “is a revision and expansion of the resource Teaching
Students with Fetal Alcohol Syndrome and Possible Prenatal Alcohol-related Effects
(1997), a teacher handbook developed by Alberta Learning and the Alberta Partnership
on Fetal Alcohol Syndrome.
Alberta Learning
Tel.: (604) 942-2024
Fax: (604) 942-2041
33
FASD Resource Guide
3
3
TITLE
Author/Agency:
Topic:
KEYS TO A SUCCESSFUL ALCOHOL AND PREGNANCY COMMUNICATION
CAMPAIGN
Best Start Resource Centre, 2003
Prevention campaigns and education programs
Community workers
This resource supports service providers in developing effective campaigns on the topic
of alcohol use and pregnancy.
Publisher:
Best Start Resource Centre
Distributor: Item No. A01E or F. Cost is $2.50 per copy
Best Start: Ontario’s Maternal, Newborn and Early Child Development Resource Centre
c/o Ontario Prevention Clearinghouse
180 Dundas Street West, Suite 1900,
Toronto, Ontario M5G 1Z8
Tel.: 416.408.2249
Fax: 416.408.2122
Document also available in PDF Format on-line:
Web Site: www.beststart.org/resources/
TITLE
Author/Agency:
Topic:
A TRAINING MANUAL FOR TRAINERS: FETAL ALCOHOL SYNDROME & FETAL ALCOHOL RELATED CONDITIONS
Washington State Genetics Documents
FASD
Professional and Paraprofessional trainers
This is an advanced training manual for professional and paraprofessional trainers who
want to expand their knowledge of fetal alcohol syndrome and fetal alcohol related
conditions. Trainers who use this manual will be able to develop presentations for
various types of audiences, i.e., parents, teachers, social service professionals, medical
and treatment providers, as well as community groups. The manual contains modules
that discuss seven major topics related to fetal alcohol syndrome (FAS) and fetal alcohol
related conditions. Each module includes training content ideas and suggested training
materials such as overheads, handouts and other resources related to the theme of the
module.
Available as a PDF document for download at:
Web Site: http://mchneighborhood.ichp.edu/wagenetics/905189053.html
34
Outils pédagogiques 3
3.0
Outils pédagogiques
TITRE
ARRÊTEZ LE SYNDROME DE L’ALCOOLISME FŒTAL ET LES EFFETS DE L’ALCOOL
SUR LE FŒTUS DÈS MAINTENANT!
Auteur/Organisme :
Sujet :
Destinataire(s) :
Description :
Langues :
Éditeur :
Distributeur : Santé Canada
Prévention
Grand public
Dépliant d’information sur l’ETCAF, les symptômes et les moyens de prévenir cette
maladie.
Santé Canada
Santé Canada No de Cat H21-177/2001F
ISBN 0-662-31044-6
Disponible sur Internet en format PDF, Site web : www.hc-sc.gc.ca/fnih-spni/pubs/preg-gros/stop-arret-syndrome/index_f.html
TITRE
MODÈLE DE FORMATION D’INSTRUCTEURS EN MATIÈRE D’ETCAF
TITRE
BREAKING THE CYCLE EARLY INTERVENTION PROGRAM
Auteur/Organisme :
Organisation nationale des représentants Indiens et Inuit en santé communautaire
(ONRIISC)
Sujet :
Formation
Destinataire(s) :
Intervenants de première ligne des communautés des Premières Nations et inuites.
Description :
Grâce à une subvention du Fonds d’aide aux projets stratégiques pour le SAF et les
EAF de l’Agence de santé publique du Canada, l’ONRIISC a élaboré et mis en oeuvre un
modèle de « formation du formateur », dans les deux langues officielles, qui s’adresse
aux représentants en santé communautaire des Premières nations et inuits ainsi qu’aux
autres intervenants de première ligne dans les communautés autochtones.
Langues :
Outils supplémentaires : Non disponible
Éditeur :
ONRIISC et Agence de santé publique du Canada
Distributeur : ONRIISC
B.P. 1019, Kahnawake (Québec) J0L 1B0
Tél. : (450) 632-0892
Téléc. : (450) 632-2111
Site web : www.niichro.com
Auteur/Organisme :
Sujet :
Destinataire(s) :
Description :
Langues :
Margaret Leslie, Directrice, Early Intervention Programs
761, rue Queen ouest, local 107, Toronto, ON, M6J 1G1
Tél. : (416) 364-7373, ext. 204
Té;léc. : (416) 364-8008
Courriel : [email protected] Site web : www.breakingthecycle.ca
Formation et perfectionnement
Intervenants de première ligne
Grâce à ses activités d’échange d’information, Breaking the Cycle a rendu possible
l’élaboration des outils suivants en matière d’ETCAF :
1. Amélioration des interventions contre le syndrome d’alcoolisme foetal (SAF) au stade
prénatal et dans la petite enfance au Canada. Ottawa : Santé Canada (M. Leslie & G.
Roberts) 2001 (www.ccsa.ca);
2. Encourager le changement : Intervenir efficacement auprès des femmes à risque élevé
et des enfants touchés afin de prévenir et de réduire les effets nocifs de l’ETCAF. Ottawa :
Santé Canada (M. Leslie & G. Roberts 2004) (www.mothercraft.org; www.ccsa.ca)
35
3 Outils pédagogiques
Éditeur :
Distributeur : Santé Canada et coll.
75, rue Albert, bureau 300, Ottawa, ON K1P 5E7
Tél. : (613) 235-4048
TITLE
GUIDE À L’INTENTION DES INTERVENANTS SCOLAIRES
TITRE
LES CLÉS DU SUCCÈS D’UNE CAMPAGNE DE COMMUNICATION SUR LA CONSOMMATION D’ALCOOL DURANT LE GROSSESSE
Auteur/Organisme :
Sujet :
Destinataire(s) :
Description:
Éditeur :
Distributeur : Auteur/Organisme :
Sujet :
Destinataire(s) :
Description :
Langues :
Éditeur :
Distributeur :
SAFERA
La scolarisation des enfants ayant ETCAF
Les intervenants scolaires
96 pages. Pas de détails sur le site web.
SAFERA
Prix :30$; frais de port et de manutention inclus
SAFERA
845 Chemin du Bord de l’eau,
St-Henri de Lévis, Québec, G0R 3E0.
Téléphone: 1-418-882-2488 Télécopieur: 1-418-882-6373
Centre de ressources meilleur départ, 2003
Campagnes de prévention et programmes de formation
Ce guide vise à aider les intervenants à développer une campagne de communication
portant sur la consommation d’alcool durant la grossesse.
Centre de ressources Meilleur départ
No de produit : A01E ou F. Copies disponibles au prix de 2,50$ chacune.
Meilleur départ : Le centre de ressources sur la maternité, les nouveaux-nés et le
développement des jeunes enfants de l’Ontario.
a/s du Centre ontarien d’information en prévention
180, rue Dundas Ouest, bureau 1900, , Toronto (Ontario) M5G 1Z8
Tél. : 416.408.2249 Fax: 416.408.2122
Également disponible en format PDF à l’adresse suivante :
Site web : www.meilleurdepart.org/resources/alcool/index.html
36
Video, DVD and Cassette
4.0
Video, DVD and Cassette Resources
TITLE
PARENTING WITH FASD
Author/Agency:
Topic:
Publisher:
Distributor: TITLE
Author/Agency:
Topic:
Publisher:
Distributor: TITLE:
Author/Agency:
Topic:
Publisher:
Distributor: FAS/E Support Network of B.C.
Supporting FASD parents
Caregivers
Video featuring four adults living and parenting with Fetal Alcohol Spectrum Disorder,
this video focuses on parenting-related experiences and challenges they face.
Price $45.00
Tel.: 604-607-7715 Fax: 604-607-7751
On-line purchase at Web Site: www.fetalalcohol.com
FASD & EMPLOYMENT
FAS/E Support Network of BC and University of Victoria School of Social Work
Supporting Adults on the Job
Caregivers
Video featuring six adults living with FASD. This video focuses on employment related
experiences and challenges they face as well as suggestions and strategies.
FAS/E Support Network/ University of Victoria
Price $45.00
Tel.: 604-607-7715 Fax: 604-607-7751
On-line purchase at Web Site: www.fetalalcohol.com
PAINTING A FUTURE
Scott Dewitz (producer) (2001)
A Young Adult Succeeding with FAE
Caregivers, support groups
8-minutes VHS cassette, colour. This concise videotape features a teacher helping
middle school students learn about art--but what appears to be a typical classroom
scene is actually a powerful and visible example of what a young person with fetal
alcohol syndrome/effects can accomplish. Cindy Gere, a young woman with FAS/E,
graduated from college with an art degree, then became certified as a teacher. The
videotape also includes an interview in which Cindy talks about finding the courage
to overcome obstacles in her life. Parents and professionals find this short, crisp video
useful in showing skeptics what young people with FAS/E can do, and for showing young
people with FAS/E that the obstacles they face can indeed be overcome.
University of Alaska Press,
PO Box 756240, Fairbanks, AK 99775
Tel.: 1-888-252-6657
Fax: 907-474-5502
Web site: www.uaf.edu/uapress
Purchase on-line $14.95 NTSC Order: FAS V1
Web Site: www.uaf.edu/uapress
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TITLE
Author/Agency:
Topic:
Publisher:
LIVING WITH FETAL ALCOHOL SYNDROME
B.C. Learning Connection Inc.
Educational planning for FASD
Recommended for teachers of grades K - 12.
This video covers the characteristics of FAS, assessment and diagnosis, the Infant
Development Program in British Columbia, preschool settings and the team approach
for planning educational goals, educational planning, career planning and skills training.
Ministry of Education
Web Site: www.bclc.bc.ca/
TITLE
WHAT IS FAS?
TITLE
DAVID AND FAS
TITLE
DIFFERENT DIRECTIONS
Author/Agency:
Topic:
Publisher:
Author/Agency:
B.C. Learning Connection Inc.
FASD
Recommended for teachers of K to 12.
This video provides an overview of FAS.
BC Ministry of Education
Web Site: www.bclc.bc.ca/
Kanata Productions, National Film Board of Canada and CBC
Written and Directed by Gil Cardinal 1996
Topic:
Experiences of man with undiagnosed FASD
General Audience: Community workers and families
Description:
A 45-minute video about David Vandenbrink, a 21-year-old man with FAS whose
condition went undiagnosed for 18 years. This personal story, using video footage shot
by David himself, along with the experiences of his family members is a hard look into
the serious consequences of this little-understood but widespread health problem.
Available Languages: English and French versions available at National Film Board
Publisher:
Kanata Productions
Distributor: National Film Board of Canada
Cost: $19.95 Home Usage, $49.95 Institutional Usage
Web Site: www.nfb.ca
Author/Agency:
Topic:
Publisher:
Breaking the Cycle Program, Toronto 2000
Frameline Productions, Luis Garcia and Laura Heller
Understanding FASD; Videocassette 22 minutes
This video looks at two children with FASD, one a five-year old and the other a young
adult man, and their remarkable mothers. One is a birth mother, and one is an adoptive
mom. Topics include how to help, early diagnosis, interventions, preventions, and
making quite a difference.
Ontario’s North for the Children
Kirkland Lake Cost: $50.00
Tel.: (705) 567-5926 Fax: (705) 567-2466
Web Site: www.comeover.to/FASDAY/ABCEDEFG/buyvideos.htm
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TITLE
Author/Agency:
Topic:
Publisher:
Distributor: TITLE
Author/Agency:
Topic:
PRECIOUS GIFT
Produced by the Saskatchewan Institute on Prevention of Handicaps. Written and
directed by John Ogresko 1995
Video on Issues of drinking during pregnancy (18 mins)
Prenatal and Health classes
Filmed on the Beardy’s and Okemasis Reserve in Saskatchewan, Precious Gift deals with
the issue of drinking during pregnancy. This gentle film portrays a real life situation
focusing on the life of a young aboriginal woman, Celeste, who believes she is pregnant.
Saskatchewan Institute on Prevention of Handicaps
Cat. No. 3-V-210 Cost: $15.00
1319 Colony Street, Saskatoon, Sk. S7N 2Z1
Tel.: 1-306-655-2512
Fax. 1-306-655-2511
Web Site: www.preventioninstitute.sk.ca/index.php
JOURNEY THROUGH THE HEALING CIRCLE
Washington State Department of Social and Health Services
FASD
Children and adults
«Journey Through the Healing Circle» is a series of videotapes, video CDs, and
professionally illustrated workbooks. The series is narrated by Native American
Storyteller Floyd Red Crow Westerman, who uses animal stories to talk about children
with Fetal Alcohol Syndrome (FAS) and the problems families face with these effects.
Floyd Red Crow Westerman is well known for his acting role in «Dances with Wolves. In
the videos he begins the stories with, «We have gathered here with Grandfather, our
Creator, the ones who fly, the ones who crawl, the ones who swim, the ones who walk on
four legs, and those beautiful spirits... those who have Fetal Alcohol Syndrome and Fetal
Alcohol-Related Conditions... who have come to earth as volunteers to teach us what we
need to know to heal in our communities».
The stories tell about a fox named Stays in the Moment, orphaned raccoon twins named
Best Day Ever and Little Mask, a teenage bear named Sees no Danger, and a grown-up
puffin named Travels in Circles. Each character dramatizes the challenges FAS and related
conditions present at different stages of life. Through a storyteller, the series offers frank
and honest information in a non-judgmental way. It provides insight and guidance into
some of the most challenging manifestations of the disease for families in all walks of life.
Written by Dr. Robin LaDue and Carolyn Hartness (both Native American professionals
in the field of fetal alcohol services) and illustrated by Raoul Imbert, these a way that
children and adults find inviting and even entertaining.
Publisher:
Publisher:
Distributor: Produced by the Washington State Department of Social and Health Services the series
has attracted national and international attention, receiving and being nominated for
several awards as an outstanding educational video.
Entire Set of 4 Books and 2 Tapes $37.00 (US)
Entire Set of 4 Books and 2 Tapes $37.00 (US)
Set of 4 Books ($22.00 US) Set of 2 Tapes ($15.00 US)
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Washington State Alcohol / Drug Clearinghouse
3700 Rainier Avenue South, Suite A
Seattle, Washington 98144 USA
Tel: 206.725.9696 Fax 206.760.0589
Web Site: www1.dshs.wa.gov/ca/Fosterparents/journey.asp
TITLE
Author/Agency:
Topic:
Publisher:
Distributor: TITLE
Author/Agency:
Topic:
Publisher:
A MOTHER’S CHOICE
Gryphon Productions
FASD
This video examines the root causes of FAS/FAE (Fetal Alchohol Syndrome/effects) from
the perspective of native mothers. «A Mothers Choice» focuses on an FAS support group
whose members provide strong messages about drinking while pregnant. The Video is
ideal for workshops, discussion groups as well as couples who are considering having a
child.
Gryphon Productions
Price: Home copy $29.95 Institutional Copy $175.20
Gryphon Productions Ltd.
P.0. Box 93009, 5331 Headland Dr.
West Vancouver, B.C. V7W 3C0
Tel.: 604-921-7627 Fax 604-921-7626
Web Site: www.gryphonproductions.com/Choice.htm
CREATING SOLUTIONS: WOMEN PREVENTING FAS. UNDERSTANDING WOMEN’S
SUBSTANCE MISUSE. (2001)
K-One Video Productions Prince George
Prevention of FASD in early childhood
Community workers
This video and the research report (41 pages) that accompanies it states: “Women who
struggle with substance misuse encounter numerous barriers and few supports in their
efforts to abstain from self-medicating.” … Prevention of FAS requires that we begin in
early childhood to prevent the traumas that drain young women of their ability to define
themselves...” Please note: This video contains sensitive material and may be disturbing
to some viewers. Please ensure that you have supports in place before viewing. VIEWER
DISCRETION IS ADVISED
Northern Family Health Society
1010-B 4th Ave. Prince George, B.C.
Fax 250-562-5459
Available online through:
FAS Bookshelf Inc. Item Number: V-322 $40.00
Tel.: (604) 942-2024 Fax: (604) 942-2041
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TITLE
Author/Agency:
Topic:
FAS/FAE: A COMMUNITY PERSPECTIVE
Community College of Lethbridge – (Alcohol Related Birth Injury Resources Site)
Video on Families coping with FASD
Health care professionals and social work professionals
(First video in a series of 3 videos from Lethbridge Community College).This video
provides a glimpse of families who are coping with alcohol affected children, children
with FAS/FAE. It provides information about the physical and psychological effects of
FAS/FAE as well as the physical, cognitive, developmental and behavioral characteristics
evident throughout the life span. This includes examining school performance, home
relationships and the ability to function in society.
This video provides information for health care professionals and social work
professionals and offers intervention strategies to deal with the special needs and
problems of families coping with FAS/FAE.
Publisher:
Distributor: Program specialists featured in the video are:
Dr. Sterling Clarren, M.D.
Dr. Robin LaDue, Ph.D.
Sandra Randels, R.N., M.S.N.
Barbara O’Hara
Lethbridge Community College
Video Price: $34.95 (single video) Any 2 videos $59.95 All 3 videos $89.95
Tel.: 1-800-572-0103 (ask for the bookstore) or (403) 320-3341
Fax: (403) 320-5170.
Web Site: www.arbi.org/shopmall/shopmall.html
TITLE
FAS/FAE: TEACHING STRATEGIES FOR THE CLASSROOM
Author/Agency:
Topic:
Publisher:
Distributor: Community College of Lethbridge
FASD and Education Video
Teachers and caregivers
(Second video in series from Lethbridge Community College) In «Teaching Strategies for
the Classroom,» you are placed in the middle of a frank group discussion dealing with
FAS/FAE affected children... from an educational standpoint. The group is a combination
of teachers, caregivers and social work professionals, all sharing their individual and
insightful experiences in growing with these children. The video allows you to look at
the development of FAS/FAE children throughout the various stages of education. Learn
more about what behaviours to expect, how to set academic goals, the relationship
between teachers and caregivers and the methods this group have found successful in
helping those children find success from within themselves.
Video Price: $34.95 (single video) Any 2 videos $59.95
All 3 videos $89.95
Tel.: 1-800-572-0103 (ask for the bookstore) or (403) 320-3341
Fax: (403) 320-5170.
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Author/Agency:
Topic:
Publisher:
Distributor: TITLE
Author/Agency:
Topic:
Publisher:
Distributor: TITLE
Author/Agency:
Topic:
Publisher:
FAS/FAE: COPING WITH CHALLENGING BEHAVIOUR
Community College of Lethbridge
FASD behaviours
Caregivers and professionals
The third video of the series takes a closer look at the behaviours FAS/FAE affect
individuals display. Again, you become part of a group discussion, a group of caregivers
and professionals, which struggle each day with the tasks of coping with these
behaviours. Alcohol affected individuals must learn to function in society... and the
learning begins at home.
Through their personal experiences, you are given a unique perspective... a first hand
lesson in what to expect and how to cope. They offer suggestions, strategies and
support for anyone living with the everyday challenges of FAS/FAE. The video will
hopefully change the way we look at behaviours and lead to a new understanding and
methods of positive programming for all whose lives are touched by individuals affected
by FAS/FAE
Video Price: $34.95 (single video) Any 2 videos $59.95
All 3 videos $89.95
Tel.: 1-800-572-0103 (ask for the bookstore) or (403) 320-3341 Fax: (403) 320-5170.
HEALING THE BROKEN CORD
National Organization on Fetal Alcohol Syndrome (USA)
Prevention in First Nations Communities
Community workers
Native American Indian leaders and health advocates talk about preventing FAS. (USA)
(Video 90 minutes)
Price $50.00
Tel.: (202) 785-4585, +1 (800) 66NOFAS Fax: (202) 466-6456
Order online at Web Site: www.nofas.org/estore/
A NORMAL LIFE
CTV/Magic Lantern 2001
Strategies for working with FASD
Families and Community Workers
This video “takes a compelling look at the challenges of FAS through the eyes of three
young … adults with FAS; and parents of … children with FAS describe strategies for
dealing with difficulties resulting from this condition. From a successful FAS-conscious
policing program in Lethbridge, Alberta, to a young woman graduating from university,
(this video) offers a cross-section of the problems of living with FAS and (with ongoing
support) a hope for a better future.”
CTV
Item Number: V-319
$79.00
FAS Bookshelf Inc.
Tel.: (604) 942-2024Fax: (604) 942-2041
Order online at Web Site: www.fasbookshelf.com
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TITLE
Author/Agency:
Topic:
Publisher:
Distributor: TITLE
Author/Agency:
Topic:
Publisher:
Distributor: TITLE
Author/Agency:
Topic:
FAS FORWARD: A FRESH LOOK AT FETAL ALCOHOL SYNDROME
(2001). Access Media. 30 minutes.
FASD
This video and its companion guide (32 pages) show four individuals “with FAS who, with
the support of people who love and care for them, lead rich and meaningful lives.”
Access Media
Tel.: (604) 942-2024Fax: (604) 942-2041
FAS: WHEN THE CHILDREN GROW UP
(2002). 40 min. Video Knowledge Network – B.C.
Adults living with FASD
Individuals, community workers and caregivers
This program tells the stories of adults living with FAS and FAE – some who were
diagnosed early and others who were not – and the events, programs, and people who
made a difference in their lives
BC Knowledge Network
FAS Bookshelf Inc. Item Number: V-313
$79.00
Tel.: (604) 942-2024Fax: (604) 942-2041
FETAL ALCOHOL SPECTRUM DISORDER AND EMPLOYMENT: SUPPORTING
ADULTS WITH FASD ON THE JOB
(2004). FAS/E Support Network of BC & School of Social Work, University of Victoria.
FASD and Adults
Community workers and caregivers
Video or DVD format - 34 minutes. “Featuring six adults living with FASD, this video
focuses on some of the employment related experiences and challenges faced by people
with FASD. Highlighted as well are suggestions and strategies found to be helpful – both
on and off the job.” Includes a 32 page guide.
Publisher:
Distributor: FAS Bookshelf Inc. Item Number: V-324 or DV-325 $50.00
Tel.: (604) 942-2024Fax: (604) 942-2041
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Author/Agency:
Topic:
Publisher:
Distributor: TITLE
Author/Agency:
Topic:
Publisher:
Distributor: TITLE
Author/Agency:
Topic:
Publisher:
HELPING FAMILIES, HELPING CHILDREN – PART 1
(1998). Yellowknife Association for Community Living / Yellowknife Films. Video 28
minutes.
FASD and families
Families and community workers
This video and companion guide (74 pages) provides clear information about FAS/FAE
and demonstrates ways that families can support their children (aged birth to 6 years). It
brings a message of hope for families that children with FAS/FAE can live productive and
satisfying lives.
Yellowknife Films
$35.00
Tel.: (604) 942-2024Fax: (604) 942-2041
HELPING FAMILIES, HELPING CHILDREN – PART 2
(2001). Yellowknife Association for Community Living. 29 minutes.
Children with FASD in Schools
Families, teachers, community workers and caregivers
This video, which shows children affected by FAS and pFAS with their families and in the
elementary school system, demonstrates ways that they can be supported to achieve
success.»
Yellowknife Association for Community Living.
$30.00
Tel.: (604) 942-2024Fax: (604) 942-2041
REDEFINING SUCCESS: RAISING CHILDREN PRENATALLY EXPOSED
TO ALCOHOL
(2001). BC Ministry of Children and Family Development
Families and FASD
Community workers and caregivers
Video 28 min. Five families who have adopted children prenatally exposed to alcohol
discuss how they have redefined success for their children by valuing different qualities,
achievements, and abilities. It demonstrates the range of effects of prenatal exposure
on development, behaviours, and needs across the lifespan, as well as approaches and
skills more effective for parenting. It clearly illustrates through personal perspectives
from parents and youth, the invisibility of this disability, as well as the triumphs and
challenges.” It includes a sixteen page User’s Guide.
BC Ministry of Children and Family Development
$28.00
Tel.: (604) 942-2024Fax: (604) 942-2041
44
TITLE
Author/Agency:
Topic:
Publisher:
Distributor:
TITLE
Author/Agency:
Topic:
Publisher:
Distributor: TITLE
Author/Agency:
Topic:
Publisher:
Distributor: Video, DVD and Cassette
THE FINAL SCORE: WINNING AGAINST FAS.
(2001). RurAl Cap
Drinking and pregnancy
Community workers and teenage girls
Video 14 minutes. This video “centers on a teenage girl who does not know she is
pregnant and has to make a decision about whether or not to drink alcohol.” Of special
note is its inclusion of peer pressure and the positive influence that her boyfriend has
when she is making her decision.
RurAl Cap
Tel.: (604) 942-2024
Fax: (604) 942-2041
WHAT’S WRONG WITH MY CHILD
ABC 20/20 Special Report hosted by Hugh Downs and Barbara Walters
FASD
Community workers
Special report focusing on the lifelong challenges faced by children and young adults
with FAS. Examines the lives of several children with FAS and forecasts the syndrome’s
implications for society.
ABC Special Report
$49.00
Tel.: (604) 942-2024
Fax: (604) 942-2041
VIDEO & PRESENTATION/PRESENTATION KIT: REMEMBERING WHAT WE KNOW
(1998). American Indian Institute. 7th Generation Fetal Alcohol Prevention Project
Prevention FASD
Use for prevention workshops
12minute video. «Information on FAS facts and consequences. Kit is user friendly and
has a video; lecture notes; colorful informative overheads; and handouts ready for
duplication …an informative, convenient teaching tool. Video has three parts: The
Message – uses Native Themes to speak about universal values of caring for the next
generation and the dangers of FAS; The Play – dramatizes the situation of whether
a pregnant friend drinks or not; The Questions – each character asks the viewers a
discussion question. Note: The American Indian Institute advises: The printed curriculum
is written for high school aged First Nation, American Indian, and Alaska Native Youth.
Therefore, many of the FAS/FAE statistics refer only to Native populations and not to
those of theGeneral population. To modify the curriculum for use with theGeneral
population, the teacher/facilitator will need to use statistics from theGeneral population.
The video draws from Native cultures to speak universally about the dangers of drinking
when pregnant and is appropriate for theGeneral population of high school and young
adult aged groups.
American Indian Institute
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Author/Agency:
Topic:
General Audience: Description: Publisher:
VIDEO «… AND DOWN WILL COME BABY
(1996). Scott Newman Center.
Prevention
Adolescents
17 minutes. «This video provides teenage role models with whom students can relate.
Video shows alcohol and drug exposure have far reaching effects that may extend
throughout the child’s life span, affecting physical, emotional, social, and educational
development. In addition, medical experts offer information, and mothers of alcohol and
drug-exposed babies share their personal experiences.» For organizational use.
Scott Newman Center.
$115.00
Tel.: (604) 942-2024 Fax: (604) 942-2041
TITLE
Author/Agency:
Topic:
Publisher:
Distributor: SUPPORTING CHANGE: EFFECTIVE PRACTICES IN SCREENING FOR ALCOHOL USE
IN PREGNANCY. TRAINING VIDEO AND FACILITATOR GUIDE
Best Start Resource Centre in collaboration with community partners, 2005
Training video for professionals
Physicians and professionals
Available in VHS and DVD. This 17-minute video is a training tool to support physicians
in effective practice of screening for alcohol use in pregnancy. Facilitator guide provides
ideas on how to use the video and includes suggestions for activities and hand-outs.
Best Start Resource Center
Video A12/ DVD A13
$35.00
Tel.: 416.408.2249 Fax: 416.408.2122
Web Site: www.beststart.org/resources/alc_reduction/index.html
TITLE
FETAL ALCOHOL AND OTHER DRUG EFFECTS
Part 1: Diagnostic Criteria: Effects of Prenatal Exposure
This video provides current information about FAS/ARND, including the history of
references to drinking and pregnancy outcomes, diagnostic criteria and the range
of effects of prenatal alcohol and drug exposure. Research on fathers’ drinking and
pregnancy outcome is also discussed. Numerous photographs of children and
adolescents with FAS/ARND are included.
Author/Agency:
Topic:
FASD Resource Guide
A FOUR-PART TRAINING SERIES FOR PARENTS AND PROFESSIONALS
FASCETS
Training on FASD and other Drug Effects
Four one-hour training videos were developed to provide information for parents and
professionals. These have been shown on cable access TV and are now available for
wider distribution. They were developed to provide accessible, practical information and
training to help parents, families, professionals, and to support program development.
They have also been used as discussion guides for information and support groups.
46
Part 2: Part 3: Part 4: Publisher:
Distributor: TITLE
Common Learning and Behavioral Characteristics
A visual model for linking the neurological differences associated with FAS/ARND is
introduced in this video. Stories illustrate what these differences mean for children,
adolescents and adults with FAS/ARND. Parents and professionals in the studio audience
participate in the discussion, contributing their stories of successful adaptations.
Behaviors and Overlapping Diagnoses
Many diagnoses are given to children with FAS/ARND as they grow. This video includes
a discussion of the most common overlapping diagnoses, for example Attention Deficit
Disorder, Conduct Disorder, and others. The fit between good parenting and professional
strategies and neurological differences is explored to clarify how it is that good
techniques may not be effective for people with FAS/ARND. The model for providing
environmental adaptations to prevent secondary behaviors is also introduced.
Barriers to Identification: Historical, Cultural, Professional and Personal
Judy Cropp, Cofounder of FASCETS, and grandparent of children prenatally exposed
to alcohol and drugs, and Debra Evensen, educational consultant and FAS specialist in
Alaska are interviewed on this video. Judy talks about her granddaughter, and how she
was able to talk with her daughter about FAS; Debra tells stories about the impact of
discovering FAS/ARND professionally. Both share examples of their successes in their
personal lives and work.
FASCETS
Parents and caregivers: $150.00 (U.S.) for the set (sliding fee scale is available on request)
Professionals and organizations $200.00 (U.S.) for the set.
FASCETS
PO Box 83175, Portland, OR 97283. Tel./Fax: 503-621-1271
HELPING FAMILIES - HELPING CHILDREN
Author/Agency:
Topic:
Publisher:
Distributor: Yellowknife Association for Community Living
Strategies for coping with FASD
Parents of children with FASD
This 28 min tape is a free guide for parents of young children with FAS/FAE.
Yellowknife Association for Community Living.
Yellowknife Association for Community Living
Tel.: (867)920-2644 Fax: (867)920-2348
TITLE
WORTH THE TRIP
Author/Agency:
Topic:
Distributor: Vida Health Communications
Development and learning styles of FASD children
Worth the Trip is the first comprehensive video resource about the health, development
and learning styles of children affected by fetal alcohol. The film presents strategies for
meeting the developmental and behavioural challenges faced by children with FAS and
the parents and professionals who care for them.
Vida Health Communications
6 Bigelow Street, Cambridge, MA 02139, USA.
Tel.: (617) 864-4334
Fax: (617) 864-7862
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FASD Resource Guide
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Vidéos
4.0
Vidéos
TITRE
DAVID WITH FAS
Sujet :
Destinataire(s) :
Description :
Langues :
Producteur :
Sujet :
Destinataire(s) :
Description :
Langues :
Producteur :
Sujet :
Destinataire(s) :
Description :
Éditeur :
Distributeur : Kanata Productions, Office national du film du Canada et Radio Canada.
Écrit et réalisé par Gil Cardinal (1996)
La vie d’un jeune homme atteint du SAF et dont la maladie n’a pas été diagnostiquée
avant l’âge de 18 ans.
Intervenants communautaires et parents
Vidéo de 45 minutes sur David Vandenbrink, un jeune homme de 21 ans atteint du
SAF et dont l’état n’a pas été diagnostiqué avant l’âge de 18 ans. En présentant des
séquences tournées par David lui-même, ce film raconte son histoire personnelle
ainsi que celle de sa famille et dévoile la sombre réalité de cette maladie méconnue et
pourtant si répandue.
Versions française et anglaise disponibles auprès de l’Office national du film du Canada.
Kanata Productions
Office national du film du Canada
Prix :19,95$ (usage personnel) 49.95$ (usage collectif )
Site web : www.nfb.ca
LE TRAVAIL ET L’ENSEMBLE DES TROUBLES CAUSÉS PAR L’ALCOOLISATION FŒTALE : SOUTIEN DES ADULTES AFFECTÉS PAR L’ETCAF.
FAS/E Support Network of BC & School of Social Work, University of Victoria (2004)
L’ETCAF chez l’adulte
Intervenants communautaires et fournisseurs de soins
En cassette vidéo ou DVD (34 minutes). Ce vidéo présente les difficultés et les défis
rencontrés par six adultes atteints du SAF dans le contexte du monde du travail. On y fait
des suggestions et des recommandations, d’ordre professionnel et personnel. Comprend
un guide de 32 pages.
FAS Bookshelf Inc. Code produit : V-324 ou DV-325 50,00$
6540, rue E. Hastings, bureau 438, Burnaby (B.C.) V5B 4Z5
Tél. : (604) 942-2024
Téléc. : (604) 942-2041
Site web : www.fasbookshelf.com
LE SYNDROME D’ALCOOLISATION FOETALE ET LES EFFETS RELATIFS À L’ALCOOL
SAFERA
ETCAF
Général
Les formats VHS ou DVD disponible. Pas d’autres détails sur le site web.
SAFERA
Prix :125$ canadiens (VHS) et 135$ (DVD); frais de port et de manutention inclus
SAFERA
845 Chemin du Bord de l’eau,
St-Henri de Lévis, Québec, G0R 3E0.
Tél. : 1-418-882-2488
Téléc. : 1-418-882-6373
48
Vidéos
TITRE
AKUSHUN SAF/LE SYNDROME D’ALCOOLISME FOETALE
Sujet :
Destinataire(s) :
Description :
Langues :
Éditeur :
Distributeur : Uashat mak Mani-Utenam
VHS et DVD
Général
Vidéo d’information sur le prévention de l’ETCAF. Durée: 15;12 minutes
Montagnais et français
Uauitshitun Santé et Services sociaux
15$ DVD ou Vidéo (frais de manutention inclus)
Directeur Uauitshitun Santé et Services sociaux
1084 Dequen, C.P. 8000, Sept-Îles (QC) G4R 4L9
Tél. : (418) 968-4595
Téléc. : (418) 962-0890
TITRE
PEIKUSHTEU PISNUM
Sujet :
Destinataire(s) :
Description :
Langues :
Publisher:
Distributeur : Web Site:
ETCAF
Général
CD - Chanson sur prévention de l’ETCAF
Montagnais (et traduction écrite français)
Tél. : (418) 968-4595
Téléc. : (418) 962-0890
Gratuit à l’achat du DVD ou VHS
TITRE
LES BÉBÉS DE L’ALCOOL
Sujet :
Destinataire(s) :
Description :
Distributeur : France 2 – Produit par Ex Nihilo
DVD sur le ETCAF
Général
DVD Prix Media 2005 de la Fondation pour l’Enfance – Un documentaire de 52 minutes.
Ecrit et réalisé par Laure Gratias et tourné en France. La réalisatrice s’interesse à deux
enfants différement touchés par leur alcoolisation in utero. Les témoinages des meres de
ces enfants permettent de mieux comprendre leurs difficultés et leur peine quotidienne.
Le film montre l’action de trois pediatres hors normes qui ont mobilisé toutes leurs
ressources pour s’attaquer le plus efficacement possible à cette pathologie.
Prix :75$ CAN
Laure Gratias
4 rue Urbanistes, 59000 Lille, France
Email : [email protected]
Téléc. : 033320285368
49
4
5
Materials and Didactic Resources
5.0 Materials and Didactic Resources
TITLE
FAS MANIKIN
TITLE
“THE GAMBLE TM LEARNING PROGRAM
Author/Agency:
Topic:
Realityworks
Prevention programming
Adolescents
“Show teens how drinking alcohol during pregnancy can have lasting physical and
mental effects on an infant.
Fetal Alcohol Syndrome (FAS) is THE leading cause of preventable mental disabilities.
This manikin was designed with the help of a nurse/consultant who specializes in FAS
education. The extremely detailed, lifelike sculpture was based on photos of real FAS
infants. It represents a small-for-gestational-age full-term infant with facial deformities
typical of severe cases of FAS.”
With each FAS Manikin you receive: Cloth Diaper, Receiving Blanket, National
Organization on Fetal Alcohol Syndrome (NOFAS) Video, Instructor Handbook
Available Languages: Accompanying materials in English
Publisher:
Realityworks
Distributor: FAS Bookshelf Inc. Item Number: R-714 $260.00
Tel.: (604) 942-2024
Fax: (604) 942-2041
Author/Agency:
Topic:
Distributor: TITLE
Author/Agency:
Topic:
Activity-based awareness and prevention program for FASD
Adolescents
a seven-day curriculum that explores the effects of drug and alcohol use during
pregnancy on an unborn infant. Lessons are prepared for you and curriculum pages are
easy to follow. (It) includes a variety of classroom activities. The FAS Baby Shower helps
personalize Fetal Alcohol Syndrome (FAS). Gift bags and colorful shower gift cutouts
add to the baby shower experience. Gift certificates have a FAS symptom printed on the
back; students read the cards aloud and share how the symptom would affect an infant’s
life. The team competition is a fast-paced, fun review in preparation for the final test.
Teams take turns using a spinner on a bottle to determine which type of questions to
answer. Worksheets include a crossword puzzle, quizzes, discussion sheets and photos
comparing healthy infants and … infants (with FAS).”
FAS Bookshelf Inc. Item Number: R-728 $285.00
Tel.: (604) 942-2024
Fax: (604) 942-2041
BE SAFE: HAVE AN ALCOHOL FREE PREGNANCY POSTER
Prevention Poster
General
This 43 cm by 33 cm color poster with contact information to the FAS-INFO line. (Also
available accompanying brochures)
Publisher:
FASD Resource Guide
50
Distributor: Item No. A06E or F $0.20 each (minimum of 5 copies)
Tel.: 416.408.2249
Fax: 416.408.2122
Also available in PDF format online at
TITLE
MY FAMILY WANTED ME TO BE AS HEALTHY AS POSSIBLE POSTER
TITLE
STOP FETAL ALCOHOL SYNDROME/FETAL ALCOHOL EFFECTS NOW!
PAMPHLET
Author/Agency:
Topic:
Best Start Resource Centre 2001
Prevention Poster
Expectant parents
60 cm by 30 cm color poster depicting a healthy, smiling baby with three key messages
for pregnant women and the Tel. number of the Motherisk Alcohol and Substance Use
Helpline.
Publisher:
Tel.: 416.408.2249 Fax: 416.408.2122
Also available in PDF format online at
Author/Agency:
Topic:
Health Canada
Alcohol and Pregnancy
General
Pamphlet from Health Canada. Provides information on FASD, and how it can be
prevented. Pamphlet is to support the fact that through education, awareness, support,
and healing, FAS/FAE can be prevented.
Publisher:
Available as PDF document online from Health Canada
Distributor: Cat. no H21-177/2001E
ISBN 0-662-31044-6
Web Site: www.hc-sc.gc.ca/fnih-spni/pubs/preg-gros/stop-arret-syndrome/index_e.html
51
FASD Resource Guide
5
5
TITLE
Author/Agency:
Topic:
Publisher:
FASD EDUCATIONAL BROCHURE FOR YOUTH
BC Society for Special Needs Adoptive Parents (SNAP)
FASD Prevention
Youth
This educational brochure provides introductory information on alcohol consumption
and pregnancy. Dynamic visuals and design ensure that this brochure is attractive to
teens. BC and Ontario-specific versions are available (to order Ontario version please go
to the «Buy Books» page). Double-sided card, 5-2/3¨ x 5-2/3¨, full color.
Society of Special Needs Adoptive Parent
$1.50 CDN each - includes shipping and handling
For wholesale or distributor sales, please contact Brad Watson at brad@
groundworkpress.com or call 604.687.3114.
Web Site: www.groundworkpress.com/_snap/gp_buybooks.php
TITLE
WHAT EVERYONE SHOULD KNOW ABOUT ALCOHOL AND PREGNANCY!
TITLE
FASD EDUCATIONAL BROCHURE FOR BEVERAGE SERVERS
Author/Agency:
Topic:
Traduit par le Conseil en Éducation des Premières Nations
Awareness among children
Children
This colouring book has been prepared for children 8-11 years old. This colouring book
is to be used as a teaching tool to create awareness about drinking alcohol during
pregnancy.
Available Languages: Available in English and French
Publisher:
Vancouver Native Friendship Center
Distributor 1: Contact Jennelle McMillan
Vancouver Native Friendship Center,
1607 East Hastings Street, Vancouver, B.C., V5L 1S7
Distributor 2:
FNQLHSSC Commission
250 Place Michel Laveau, Wendake, Qc G0A 4V0
Web Site: www.cssspnql.com
Author/Agency:
Topic:
Publisher:
Distributor:
FASD Resource Guide
BC Society for Special Needs Adoptive Parents (SNAP)
FASD Prevention and Awareness
Servers in bars and clubs
This educational brochure for beverage servers working in restaurants, pubs or clubs
provides introductory information on alcohol and pregnancy and drink options that
servers can suggest to pregnant women. Lively and timely, this brochure will catch and
hold the attention of beverage servers in any establishment. BC and Ontario-specific
versions are available (to order Ontario version please goes to the «Buy Books» page).
Folded card, 6¨ x 6¨, full colour.
BC Special Needs Adoptive Parents
$1.50 CDN each - includes shipping and handling
For wholesale or distributor sales, please contact Brad Watson at brad@
groundworkpress.com or call 604.687.3114.
Web Site: www.groundworkpress.com/_snap/gp_buybooks.php
52
Matériel didactique 5
5.0 Matériel didactique
TITRE
DÉPLIANTS SUR LE SAF
Auteur/Organisme :
Sujet :
Destinataire(s) :
Description :
Éditeur :
Distributeur :
TITRE
SAFERA
Informations
Familles et parents
Les 4 dépliants disponibles sont:
1. Alcool + Grossesse = Danger
2. La prévention du syndrome d’alcoolisation foetale
3. Dépistage et diagnostic
4. Stratégies pour les parents
SAFERA
Prix :gratuit
Frais de port et manutention de 3$ canadiens pour la série de 4 dépliants.
Pour plus d’une série, communiquer avec nous par courriel pour connaître le prix de port à payer.
SAFERA
Tél. : 1-418-882-2488
Téléc. : 1-418-882-6373
Site web : www.safera.qc.ca
AFFICHE DANGER, ALCOOL + GROSSESSE
Auteur/Organisme :
Sujet :
Destinataire(s) :
Description :
Éditeur :
Distributeur : SAFERA
Alcool et grossesse
Femmes et familles
Les dimensions ne sont pas données sur le site web.
SAFERA
Prix à l’unité: 5$ canadiens, frais de port et de manutention inclus
SAFERA
Tél. : 1-418-882-2488
Téléc. : 1-418-882-6373
TITRE
NE PRENEZ AUCUN RISQUE : ÉVITEZ L’ALCOOL PENDANT VOTRE GROSSESSE
- AFFICHE
Auteur/Organisme :
Sujet :
Destinataire(s) :
Description :
Langues :
Producteur :
Distributeur : Centre de ressources Meilleur départ
Affiche de prévention
Grand public
Affiche couleur 43 cm X 33 cm indiquant le numéro de téléphone de FAS-INFO.
(Brochures d’information également disponibles)
Code produit : A06E ou F 0,20 chaque (minimum de 5 exemplaires par commande)
180, rue Dundas Ouest, bureau 1900,
Toronto (Ontario) M5G 1Z8
53
5 Matériel didactique
Tél. : 416.408.2249 Téléc. : 416.408.2122
Site web : www.meilleurdepart.org/resources/alcool/index.html
TITRE
Auteur/Organisme :
Sujet :
Destinataire(s) :
Description :
Langues :
Producteur :
Distributeur 1 : Distributeur 2 :
TITRE
Auteur/Organisme :
Sujet :
Destinataire(s) :
Description :
Langues :
Producteur :
Auteur/Organisme :
Sujet :
Destinataire(s) :
Description :
Éditeur :
Distributeur : CE QUE NOUS DEVRIONS TOUS SAVOIR CONCERNANT L’ALCOOL ET LA
GROSSESSE (CAHIER DE COLORIAGE)
Traduit par le Conseil en Éducation des Premières Nations
Sensibilisation des enfants
Enfants
Cahier à colorier pour enfants de 8 à 11 ans. Un outil didactique pour conscientiser les
enfants sur la consommation d’alcool en cours de grossesse.
Français et en anglais
Centre d’amitié autochtone de Vancouver
Personne ressource : Jennelle McMillan
Vancouver Native Friendship Center,
1607, rue East Hastings, Vancouver (B.C.),V5L 1S7
CSSSPNQL
250, place Michel Laveau, Wendake (Québec) G0A 4V0
Site web : www.cssspnql.com
ARRÊTEZ LE SYNDROME DE L’ALCOOLISME FŒTAL ET LES EFFETS DE
L’ALCOOL SUR LE FŒTUS DÈS MAINTENANT !
Santé Canada
Prévention
Grand public
Dépliant de Santé canada qui fournit des renseignements sur l’ETCAF et les moyens de
prévenir cette maladie, notamment par le biais de l’information et de la sensibilisation du
public, du soutien et de la guérison.
Disponible en format PDF sur le site web de Santé Canada
Cat. no H21-177/2001F
ISBN 0-662-31044-6
Site web : www.hc-sc.gc.ca/fnih-spni/pubs/preg-gros/stop-arret-syndrome/index_f.html
L’ENSEMBLE DES TROUBLES CAUSES PAR L’ALCOOLISATION FOETALE
Uauitshitun Services santé Uashat
ETCAF
Général
Dépliant expliquant l’ETCAF
Français
Uashat mak Mani-Utenam
15$ pour 350 dépliants
Tél. : (418) 968-4595
Téléc. : (418) 962-0890
54
TITRE
Auteur/Organisme :
Sujet :
Destinataire(s) :
Description :
Langues :
Producteur :
Distributeur : Matériel didactique 5
MA FAMILLE VOULAIT QUE MA SANTÉ SOIT LA MEILLEURE POSSIBLE
Grand public
Affiche couleur. Parents qui attendent un nouveau-né
Code produit : A05E ou F 0,205chaque (minimum de 5 exemplaires par commande)
Tél. : 416.408.2249 Téléc. : 416.408.2122
Site web : www.beststart.org/resources/alc_reduction/index.html
55
6 Information Websites
6.0 Information Websites
TITLE
CANADIAN CENTRE ON SUBSTANCE ABUSE WEBSITE
TITLE
FASLINK (FETAL ALCOHOL SPECTRUM DISORDERS INFORMATION, SUPPORT &
COMMUNICATIONS LINK)
Agency Description:
Services:
National agency established by Parliament in 1988
Training and workforce development, reference and information services, research and
policy, publications.
General Audience: Caregivers, frontline workers, educators and parents
Description:
The Canadian Centre on Substance Abuse (CCSA) is Canada’s national addictions agency.
Their mission is to provide objective, evidence-based information and advice to help
reduce the health, social and economic harm associated with substance abuse and
addictions.
CCSA publications listed
Contact/Agency:
Topic:
E-mail: Web Site: Mr. Bruce Ritchie, Moderator
Support and Information
Individuals, Families and Professionals
Numerous reference articles and resources available on this website. FASlink provides
support and information for individuals, families and professionals who are working
with and caring for those affected by prenatal alcohol exposure. FASlink maintains both
an extensive FASD information website and a discussion listserv. The website serves
more than 400,000 people annually with more than 100,000 FASD related documents
in a searchable database. FASlink publishes the FASlink CDROM and FAS InfoDisk (for
download from the website) as well as other educational material. The FASlink Discussion
Forum is a moderated email discussion group that provides support and information
24/7 and serves parents (birth, foster and adoptive), caregivers, adults with FASD,
doctors, teachers, social workers, lawyers, students, psychologists, law enforcement,
judiciary and corrections professionals as well as government policy makers, etc. The
listserv shares 50 to 100 letters daily. Membership varies seasonally as we also help
to educate students. FASlink’s online discussion forum is the primary Canadian FASD
communications network and includes members worldwide.
2445 Old Lakeshore Rd. Bright’s Grove ON N0N 1C0
Tel.: (519) 869-8026 Fax: (519) 869-8026
[email protected]
www.faslink.org
TITLE
THE ASANTE CENTRE FOR FETAL ALCOHOL SYNDROME
Coordinates:
Author/Agency:
Topic:
Coordinates:
FASD Resource Guide
The Asante Centre
FASD
Community workers and parents
Provides information, resource listings and links for FASD
Web Site: www.asantecentre.org
56
TITLE
Information Websites 6
SASKATCHEWAN INSTITUTE ON PREVENTION OF HANDICAPS
Author/Agency:
Topic:
Coordinates:
Information
General
Information and resources on FASD
1319 Colony, Saskatoon, SK. S7N 2Z1
Tel.: (306) 655-2512 Fax: (306) 655-2511
Web Site: www.preventioninstitute.sk.ca
TITLE
FAS/E SUPPORT NETWORK OF BC
Author/Agency:
Topic:
Coordinates:
Email: Web Site:
FAS/E Support Network of British Columbia
Information, training, support and advocacy
General
The purpose of the FAS/E Support Network of British Columbia is to provide information,
support and education for families, professionals and the broader community around
prevention and intervention issues pertaining to alcohol related birth defects, including
Fetal Alcohol Syndrome and other disabilities caused by drug use during pregnancy.
Tel.: 604-607-7715 Fax: 604-607-7751
[email protected]
www.fetalalchol.com
TITLE
ALCOHOL RELATED BRAIN INJURY RESOURCE SITE
Author/Agency:
Coordinates: Alberta Family and Social Services and The Fetal Alcohol Syndrome Coordination
Committee of Lethbridge
FASD Information and resources
Community workers, professionals and families
We offer information about Fetal Alcohol Syndrome and Alcohol Related Birth Injury in a
format designed for quick access to information you require and quick access to links of
many related sites.
Web Site: www.arbi.org
TITLE
BRITISH COLUMBIA ABORIGINAL NETWORK ON DISABILITY SOCIETY (BCANDS)
Topic:
Author/Agency:
Topic:
Coordinates:
BCANDS
FASD
Information, resources and links
BCANDS,
1179 Kosapsum Crescent, Victoria, BC V9A 7K7 Tel.: (250) 381-7303 Fax: (250) 381-7312
Web Site: www.bcands.bc.ca
57
FASD Resource Guide
TITLE
FAS BOOKSHELF
Author/Agency:
Topic:
Coordinates:
FAS Bookshelf Inc.
Resources
Community workers, educators, families and professionals
Internet and mail bookstore specializing in FAS resources
FAS Bookshelf Inc.
#438 – 6540 East Hastings St., Burnaby, B.C. V5B 4Z5
Tel.: (604) 942-2024
Fax: (604) 942-2041
TITLE
NATIONAL DATABASE OF FASD AND SUBSTANCE ABUSE DURING
PREGNANCY RESOURCES (ONLINE)
Author/Agency:
Topic:
Coordinates:
Canadian Centre for Substance Abuse
FASD specific
Community workers, professionals and parents
Database of resources
English and French
Canadian Centre on Substance Abuse (CCSA)
300 - 75 Albert St. Ottawa ON K1P 5E7
Tel.: 1-(800)-559-4514 (toll free in Canada);
Tel.: (613) 235-4048, ext. 223 Fax: (613) 235-8101
Web Site: www.ccsa.ca/fas
TITLE
BETTER ENDINGS NEW BEGINNINGS
Author/Agency:
Topic:
Coordinates:
Jodee Kulp
FASD
Families of children with FASD
Information website for families
Tel.: (763) 531-9548 Fax: (763) 533-3223
Web Site: www.betterendings.org
TITLE
NATIONAL ORGANIZATION ON FETAL ALCOHOL SYNDROME
Author/Agency:
Topic:
Coordinates:
FASD Resource Guide
FASD
Families
US-basedGeneral information website
Tel.: (202) 785-4585, 1 (800) 66NOFAS Fax: (202) 466-6456
Web Site: www.nofas.org
58
Information Websites 6
TITLE
FETAL ALCOHOL SPECTRUM DISORDER
TITLE
FETAL ALCOHOL SPECTRUM DISORDER: WHAT YOU SHOULD KNOW ABOUT
DRINKING DURING PREGNANCY
Author/Agency:
Topic:
Public Health Canada - Agence de santé publique du Canada
Information on FASD
General
The Public Health Agency of Canada has developed this site to provide basic information
on FASD and to let you know what they’re doing about FASD. This site also contains upto-date news on FASD, as well as links to important resources
Coordinates:
Web Site: www.phac-aspc.gc.ca/fasd-etcaf/index.html (English)
Author/Agency:
Topic:
Canadian Paediatric Society
FASD
Women
Website information on FASD developed by the Canadian pediatric society. Addressed
specifically to pregnant women.
Coordinates:
Web Site: www.caringforkids.cps.ca/babies/index.htm (English)
TITLE
Author/Agency:
Topic:
ABOUT KIDS HEALTH
Coordinates:
The Hospital for Sick Children Website
Health issues including FASD
Families and health workers
Information website with topics influencing children’s health and the quality of family
life. Clicking on F in the health issues index provides information on FASD.
Web Site: www.aboutkidshealth.ca/
TITLE
INFORMATION CENTER ON CHILDREN’S HEALTH (CISE)
TITLE
ABOUT: HEALTH AND FITNESS : ALCOHOL AND PREGNANCY
Author/Agency:
Topic:
Coordinates:
Author/Agency:
Topic:
Contact Info:
Information and web links
General
On-line documentation center for St. Justine Children’s Hospital
(English section to be developed)
Web Site: www.hsj.qc.ca/cise
About.com information website
Information and articles of FASD
General
Information website on many topics included health issues
About.com (Subsidiary of The New York Times)
249 West 17th Street
New York, NY, 10011 USA
Web Site: http://alcoholism.about.com/cs/preg/a/aa070997.htm
59
FASD Resource Guide
TITLE
PROJECT FACTS – FETAL ALCOHOL CONSULTATION AND TRAINING SERVICES
Author/Agency:
Topic:
Deb Evensen, Director
Information and Training Services
Community workers, parents and educators
This web site provides information on Fetal Alcohol Spectrum Disorders (FASD), a term
that includes Fetal Alcohol Syndrome (FAS), Fetal Alcohol Effects (FAE), Alcohol Related
Birth Defects (ARBD), and Alcohol Related Neurodevelopmental Disorder (ARND), with a
focus on intervention techniques for educators. There are 5 Five FAS brochures by Deb
Evensen and Teresa Kellerman downloadable in PDF format.
PO Box 1092, Homer, Alaska 99603, Tel.: 907-235-2544
Web Site: www.fasalaska.com/
TITLE
FAS COMMUNITY RESOURCE CENTER WEBSITE
TITLE
UNIVERSITY OF WASHINGTON, SCHOOL OF MEDICINE
TITLE
SAMHSA FETAL ALCOHOL SPECTRUM DISORDERS (FASD) CENTER FOR
EXCELLENCE WEB SITE
Author/Agency:
Topic:
Author/Agency:
Topic:
Author/Agency:
Topic:
Coordinates:
TITLE
Author/Agency:
Topic:
Coordinates:
FASD Resource Guide
FASCRC
Information, resources and links
General
Information about FASD with listings of resources and links
Web Site: http://come-over.to/fascrc/
Fetal Alcohol and Drug Unit, Department of Psychiatry and Behavioural Sciences
Information and resources on FASD
General
Information and Resources on FASD. Department founded by Dr Ann Streissguth, known
expert and writer in the field of FASD.
Web Site: http://depts.washington.edu/fadu/
SAMHSA is an Agency of the U.S. Department of Health & Human Services
FASD Resources and links
General
The FASD Center is a Federal initiative devoted to preventing and treating FASD. This
Web site provides information and resources about FASD. For more help, you can
request training and technical assistance. We also provide materials you can use to raise
awareness about FASD. Has an excellent database for resources.
SAMHSA FASD Center for Excellence
2101 Gaither Road, Suite 600, Rockville, MD 20850
1-866-STOPFAS (786-7327)
Web Site: www.fascenter.samhsa.gov/
ABOUT FETAL ALCOHOL SPECTRUM DISORDER
Alberta’s Children’s Services
FASD
General
Information website which includes materials, links and print documents
Web Site: www.child.gov.ab.ca/whatwedo/fas/page.cfm?pg=index
60
Sites web 6
6.0
Sites Web
TITRE
CENTRE CANADIEN DE LUTTE CONTRE L’ALCOOLISME ET LES TOXICOMANIES
TITRE
BASE DE DONNÉES NATIONALE SUR DES RESSOURCES AYANT TRAIT À L’ETCAF ET
À LA CONSOMMATION D’ALCOOL ET DE DROGUES PENDANT LA GROSSESSE (EN
LIGNE)
Organisme :
Services offerts :
Organisme national créé par le Parlement en 1988
Formation et perfectionnement de la main d’œuvre, services de référence et
d’information, recherche et politiques, publication de divers outils.
Destinataire(s) : Fournisseurs de soins, intervenants de première ligne, éducateurs et parents.
Description :
Le Centre canadien de lutte contre l’alcoolisme et les toxicomanies (CCLAT) est
l’organisme national canadien de renseignements sur les toxicomanies. Leur mission
consiste à fournir des renseignements et des conseils objectifs et factuels qui aideront
à réduire les méfaits de l’alcoolisme et des toxicomanies sur la santé, la société et
l’économie.
Langues :
Outils supplémentaires : Liste des publications du CCLAT
Coordonnées :
Sujet :
Destinataire(s) :
Description :
Langues :
Coordonnées :
ETCAF
Intervenants communautaires, professionnels et parents
Tél. : 1-(800) 559-4514 (sans frais, partout au Canada)
Tél. : (613) 235-4048 poste 223
Téléc. : (613) 235-8101
Site web : www.ccsa.ca/fas
TITRE
ENSEMBLE DES TROUBLES CAUSÉS PAR L’ALCOOLISATION FOETALE
Sujet :
Destinataire(s) :
Description :
Langues :
Coordonnées :
Public Health Canada - Agence de santé publique du Canada
Informations sur l’ETCAF
Grand public
L’Agence a mis ce site sur pied afin d’offrir des renseignements de base sur l’ETCAF et
de vous informer de ce qu’ils font pour le combattre. Ce site contient également des
mises à jour sur l’ETCAF ainsi que divers liens vers des ressources importantes en matière
d’ETCAF.
Site web : www.phac-aspc.gc.ca/fasd-etcaf/index_f.html (français)
61
6 Sites web
TITRE
Sujet :
Destinataire(s) :
Description :
L’ENSEMBLE DES TROUBLES CAUSES PAR L’ALCOOLISATION FŒTALE : CE QUE
VOUS DEVRIEZ SAVOIR AU SUJET DE LA CONSOMMATION D’ALCOOL PENDANT
LA GROSSESSE
Coordonnées :
Société canadienne de pédiatrie
ETCAF
Femmes enceintes
Site d’information sur l’ETCAF élaboré par la Société canadienne de pédiatrie. Destiné
aux femmes enceintes.
Site web : www.soinsdenosenfants.cps.ca/index.htm (français)
TITRE
ENSEMBLE DES TROUBLES CAUSÉS PAR L’ALCOOLISATION FOETALE (ETCAF)
Sujet :
Destinataire(s) :
Description :
Coordonnées :
Santé Canada
Page web
Général
Définition du syndrome et complications associées à la consommation d’alcool pendant
la grossesse.
Site web : www.phac-aspc.gc.ca/fasd-etcaf/faq_f.html
TITRE
CENTRE D’INFORMATION SUR LA SANTÉ DE L’ENFANT (CISE)
Sujet :
Destinataire(s) :
Description :
Langues :
Coordonnée :
TITRE
Sujet :
Destinataire(s) :
Description :
Coordonnées :
Renseignements et liens
Général
Centre de documentation de l’Hôpital Sainte-Justine, le CISE répond aux demandes
documentaires des parents et des intervenants. On y assure aussi la référence vers
différentes associations et groupes d’entraide. Le site Internet du Centre offre, entre
autres un Répertoire de groupes d’entraide et d’associations en santé et un Guide de
lecture pour les parents. Un lien permet aussi de consulter le site des Éditions de l’Hôpital
Sainte-Justine. Le Centre est ouvert à tous pour consultation.
Français (l’anglais en développement)
Site web : www.hsj.qc.ca/cise
ACCUEIL DE VOTRE NOUVEAU-NÉ SUITE À LA NAISSANCE D’UN ENFANT AVEC UN
PROBLÈME DE SANTÉ
Diane Pelchat, Ph.D. Université de Montréal - Faculté des sciences infirmières
La naissance d’un enfant avec un problème de santé
Parents et familles
Annonce du problème, réactions des parents, besoins des parents, besoins de votre
enfant, situation de stress suite à la naissance d’un enfant différent.
Site web : www.scinf.umontreal.ca/famille/information/ accueil/accueil_intro.htm
62
Support Groups and Websites
7.0
TITLE
ALCOHOL AND SUBSTANCE USE IN PREGNANCY HELPLINE
TITLE
LIFETIME NETWORKS OTTAWA (OTTAWA, ONTARIO)
Agency:
Contact:
The Hospital for Sick Children
Motherisk program
Pregnant and lactating mothers and professionals
By dialing the toll free number in Canada, individuals who have questions or concerns
related to alcohol and drug use during pregnancy and lactation will receive information,
counselling and access to care in their home communities. Motherisk counselors can
also make referrals for FAS diagnosis at the Motherisk Clinic, and can arrange hair and
meconium tests for drug and alcohol exposure in newborn babies. Members of the
medical profession who have questions or concerns about specific clients and their use
of alcohol and/or drugs during pregnancy and while breastfeeding may also wish to
consult this team of experts which includes pharmacologists, toxicologists, neurologists
and pediatricians. This Tel. service is available from 9:00 a.m. to 5:00 p.m. from coast to
coast, Monday to Friday.
Coordinates: Motherisk, The Hospital for Sick Children
555 University Ave. Toronto ON M5G 1X8
Tel.: 1-877-327-4636 (toll free in Canada)
Web Site: www.motherisk.org
Contact/Agency:
Topic:
Coordinates:
TITLE
Contact/Agency:
Topic:
c/o Pam Smart or Joy Ramjitsingh
Networks and support for individuals with a disability
Families and/or Individuals with a disability
Lifetime Networks Ottawa was created by, and for, families who have a relative with a
disability. We are affiliated with PLAN™ ...for the future, a British Columbia organization
committed to the development of personal networks.
#406 - 1390 Prince of Wales Dr.,
Nepean, ON K2C 3N6
Bus:(613) 748-7162 Fax (613) 226-7522
Web Site: www.lifetimenetworks.ca
FASAT (ONTARIO)
Ms. Chris Margetson, Senior FASD Consultant
Support, information and links
Families coping with FASD
Our mission is to improve the lives of children with Fetal Alcohol Syndrome/Effects
(FAS) by training the professionals and parents who work with and care for these
children, to provide assistance and support for them and their families, and to facilitate
activities related to the prevention of FAS. We are a charitable, non-profit organization
dedicated to developing efficient and effective community responses for children with
Fetal Alcohol Syndrome/Effects (FAS) in partnership with professionals and parents
throughout southern Ontario and beyond. FASAT provides an informational web site for
use by caregivers, professionals or others having an interest in FASD
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7
Coordinates:
c/o Homewood Health Center, CADS
100 - 49 Emma St., Guelph ON N1E 6X1
Tel.: (519) 822-2476; (519) 341-0295 Fax: (519) 822-4895
Web Site: www.fasat.ca
TITLE
NATIONAL ORGANIZATION ON FETAL ALCOHOL SYNDROME (USA) (NOFAS)
Author/Agency:
Topic:
FASD
Families
US-based support group for FAS- also provides information, links and resources
Tel.: (202) 785-4585, +1 (800) 66NOFAS Fax: (202) 466-6456
Web Site: www.nofas.org
TITLE
FASD CONNECTIONS: SERVING ADOLESCENTS AND ADULTS WITH FASD
TITLE
MOTHERISK HELP LINE
TITLE
HÔPITAL SAINTE-JUSTINE
Author/Agency:
Topic:
Author/Agency:
Topic:
Training center and support network FASD Connections
Specific information and resources for adults and adolescents with FASD
Individual Adolescents and adults with FASD and families
Training, information, resources and links
Web Site: www.fasdconnections.ca
Sick Children’s Hospital of Toronto
Help line support for drugs and alcohol consumption
Pregnant and lactating mothers
Call in support line for the recreational use of drugs and alcohol by pregnant or lactating
women. References to local services if required
Available Languages: Bilingual
Coordinates: Tel. line: (free) 1-877-327-4636
Author/Agency:
Topic:
Websites with links
General
Refer to different associations and support groups
3175, ch. de la Côte Sainte-Catherine
5e étage, bloc 9 Montréal (Québec), H3T 1C5
TéléTel.: (514) 345-4678
Fax: (514) 345-4806
Web Site: www.hsj.qc.ca/cise
64
TITLE
Author/Agency:
Topic:
SOCIETY OF SPECIAL NEEDS ADOPTIVE PARENTS (SNAP)
BC SNAP
FASD
Parents and families
Support Network with links to other services. Our support services include a library
of close to 15,000 items with up-to-date resources on many topics such as Attention
Deficit Disorder (ADD), Learning Disabilities (LD), attachment issues and Fetal Alcohol
Spectrum Disorder (FASD). In fact, we have one of the largest selections of resources
on FASD in Canada. These consist of science-based research materials as well as handson publications that deal with daily issues like bullying, respite care, difficulty fitting in
at school, behavioral issues and strategies for parents on what to do if your child has
experienced trauma or abuse.
Web Site: www.snap.bc.ca/_snap
TITLE
SASKATCHEWAN FETAL ALCOHOL SUPPORT NETWORK
Author/Agency:
Topic:
Saskatchewan Fetal Alcohol Support Network
FASD Support
Families and individuals with FASD
The Saskatchewan Fetal Alcohol Support Network, Inc. (SFASN) is a charitable, parent-run
organization whose primary goal is to support parents and caregivers of individuals with
FASD
John V. Remai Centre
510 Cynthia Street, Saskatoon, Saskatchewan S7L 7K7
Web Site: www.skfasnetwork.ca
TITLE
ABORIGINAL WOMEN’S SUPPORT CENTRE
Coordinates:
Author/Agency:
Topic:
Coordinates:
Ms. Castille Troy
Support and Counselling
Aboriginal Women
Support, counselling, referrals and resources to clients.
Minwaashin Lodge 1105 Cadboro Rd. Ottawa ON K1J 7T8
Tel.: (613) 741-5590 Fax: (613) 741-8311
Web Site: None provided
TITLE
AMETHYST WOMEN’S ADDICTION CENTRE
Contact/Agency:
Topic:
Coordinates:
Ms. Carol Wu, Coordinator
Advocacy and support/FASD parenting programs
Pregnant Women with addictions
Amethyst accommodates women who are pregnant by ensuring they can enter into the
treatment program well before their due date. Amethyst offers support to women with
children with FAS/FAE, provides a parenting group and children’s program and offers
referrals as necessary.
488 Wilbrod St. Ottawa ON K1N 6M8
Tel.: (613) 563-0363 Fax: (613) 565-2175
Web Site: www.amethyst-ottawa.org
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7
TITLE
Contact/Agency:
Topic:
Coordinates:
TITLE
Contact/Agency:
Topic:
Coordinates:
FASD Resource Guide
BREAKING THE CYCLE PROGRAM
Ms. Margaret Leslie, Director, Early Intervention Programs
Outreach, Counselling and Child Developmental Services
Women with addictions & Pregnant and/or with young children
Breaking the Cycle is a prevention and early intervention project designed to reduce
risk and enhance the development of substance-exposed children (prenatal - 6 yrs) by
addressing maternal addiction problems and the mother-child relationship in a singleaccess, community-based model. Through the efforts of 7 partner agencies (Mothercraft,
The Jean Tweed Centre, Children’s Aid Society of Toronto, Catholic Children’s Aid Society,
Hospital for Sick Children - Motherisk Program, St. Joseph’s Health Centre and Toronto
Public Health), the program offers integrated addiction counselling, parenting, health/
medical, pregnancy outreach and child developmental services to women who are
pregnant and/or have young children, and have substance use problems.
107 - 761 Queen St. West Toronto ON M6J 1G1
Tel.: (416) 364-7373, ext. 204
Fax: (416) 364-8008
Web Site: www.breakingthecycle.ca
Wabano Centre for Aboriginal Health
Ms. Cindy Peltier, FASD Coordinator
FASD and Child Nutrition
First Nations
Manages the Awashishak Project for the Aboriginal community focusing on Fetal Alcohol
Spectrum Disorder (FASD) and Child Nutrition. The goal is to build healthy families
and communities through: nutrition, education, support group for clients & families,
parenting and child support groups and preventing Fetal Alcohol Spectrum Disorder in
future generations. Presentations and information booths can be arranged upon request.
299 Montreal Road Ottawa ON K1L 6B8
Tel.: (613) 748-0657, Ext. 214 Fax: (613) 748-9364
Web Site: www.wabano.com/main.html
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Services d’aide 7
7.0
Services d’aide
TITRE
LIGNE D’AIDE SUR LA CONSOMMATION D’ALCOOL ET DE DROGUES
PENDANT LA GROSSESSE
Organisme :
Sujet :
Destinataire(s) : Description :
Langues :
Coordonnées : TITRE
Organisme :
Sujet :
Coordonnées : The Hospital for Sick Children
Programme Motherisk
Femmes enceintes, mères allaitantes et professionnels
Motherisk met à la portée des mères qui ont des questions ou des craintes reliées à la
consommation d’alcool ou de drogues au cours de la grossesse et de la lactation une
ligne téléphonique sans frais, qui leur permettra d’obtenir de l’information, des conseils,
ainsi que le nom des services appropriés dans leur communauté. Les conseillers du
programme Motherisk peuvent également orienter les intéressées vers la clinique
Motherisk pour l’établissement d’un diagnostic de SAF et prendre les dispositions
nécessaires à la réalisation de tests de dépistage des drogues et de l’alcool dans les
cheveux et le méconium des nouveau-nés. Les médecins qui ont des questions ou des
préoccupations au sujet de la consommation d’alcool ou de drogues chez certaines de
leurs patientes, qui sont enceintes ou qui allaitent, peuvent aussi consulter l’équipe de
spécialistes, qui se compose de pharmacologues, de toxicologues, de neurologues et de
pédiatres. Ce service téléphonique est offert 9 h à 17 h du lundi au vendredi, partout au
Canada.
Motherisk, The Hospital for Sick Children
555, av. University, Toronto ON M5G 1X8
Tél. : 1-877-327-4636 (sans frais partout au Canada)
Site web : www.motherisk.org
HÔPITAL SAINTE-JUSTINE ET LE CENTRE D’INFORMATION SUR LA SANTÉ DE
L’ENFANT (CISE)
Site web avec des liens
Général
La référence vers différentes associations et groupes d’entraide
3175, ch. de la Côte Sainte-Catherine
Tél. : (514) 345-4678 Téléc : (514) 345-4806
Site web : www.hsj.qc.ca/cise
67
7 Services d’aide
TITRE
Auteur :
Sujet :
Coordonnées :
SAFERA (SYNDROME D’ALCOOLISATION FOETALE EFFETS RELATIFS
À L’ALCOOL)
Mme Louise Loubier-Morin, Présidente
FASD
Support group
SAFERA est un organisme canadien oeuvrant en français dont la mission est la
prévention, l’information et la formation sur les effets de l’exposition prénatale à l’alcool,
le SAF/EAF, et accessoirement sur les effets de l’exposition aux solvants et autres drogues.
SAFERA a conçu et distribue des affiches, des dépliants et autres documents sur le SAF,
publie le SAFville Express, un bulletin trimestriel, et offre l’accès par son site Internet à
une liste de discussion électronique, SAF-fil. Service d’information sur l’ETCAF, CCLAT 84
845, chemin du Bord de l’eau St-Henri QC G0R 3E0
Tél. : (418) 882-2488; 1-866-272-3372 (sans frais au Canada)
Téléc. : (418) 882-6373
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Associations 8
8.0
Associations
TITLE
ASSOCIATION FOR THE NEUROLOGICALLY DISABLED OF CANADA
TITLE
CANADIAN ASSOCIATION FOR COMMUNITY LIVING
Contact/Agency:
Topic:
No contact information provided
Rehabilitation programs
Individuals and families
A.N.D. Canada provides functional rehabilitation programs to individuals with
non-progressive neurological disabilities. The programs are home-based, noninstitutionalized and are individualized to meet the needs of each client and family.
Individuals with a broad range of disabilities, including fetal alcohol syndrome, may
benefit from the program.
Coordinates:
59 Clement Rd.
Etobicoke ON M9R 1Y5
Tel.: (416) 244-1992; 1-800-561-1497 (toll free in Canada) Fax: (416) 244-4099
Web Site: www.and.ca
Contact/Agency:
Topic:
Coordinates:
TITLE
Contact/Agency:
Topic:
Coordinates:
Michael Bach, Executive Vice-President
Advocacy
Individuals and families
Canadian Association for Community Living (CACL) is Canada’s national association
dedicated to promoting the human rights, full citizenship and participation of people
with intellectual disabilities in all aspects of community life. Please contact CACL for
information or referral to local associations and programs.
Kinsmen Building, York University Campus
4700 Keele St. North York ON M3J 1P3
Tel.: (416) 661-9611Fax: (416) 661-5701
Web Site: www.cacl.ca
FASWORLD CANADA
Ms. Bonnie Buxton
Brian Philcox, Founders
Advocacy
Groups and individuals
FASworld Canada is a pro-active, non-profit organization which strives to dramatically
reduce the incidence of fetal alcohol disorders, reduce the incidence of secondary
disabilities among individuals living with mental or physical damage caused by
maternal drinking in pregnancy and to assist families and caregivers of people with
fetal alcohol spectrum disorder (FASD). FASworld Canada works with health units, family
support groups and other interested organizations who form the chapter network
in communities across the country. Individuals and groups are invited to apply for
membership or chapter status.
250 Scarborough Golf Club Road Toronto ON M1J 3G8
Tel.: (416) 264-8000 (Brian); (416) 264-8111 (Bonnie)
Fax: (416) 264-8222
Web Site: www.fasworld.com
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FASD Resource Guide
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TITLE
PAUKTUUTIT
TITLE
NATIONAL INDIAN AND INUIT COMMUNITY HEALTH REPRESENTATIVES
ORGANIZATION (NIICHRO)
Contact/Agency:
Topic:
Inuit Women of Canada
Resources and information
Resources specifically developed for Inuit communities
Pauktuutit develops resources and provides educational awareness on FASD for Inuit
communities.
Available Languages: English and Inuktitut
Coordinates:
131 Bank St., 3rd Floor, Ottawa ON K1P 5N7
Tel.: (613) 238-3977; 1-800-667-0749 (toll free in Canada) Fax: (613) 238-1787
Web Site: www.pauktuutit.ca
Contact/Agency:
Topic:
None provided
Train the Trainer Model for FASD
First Nations and Inuit Community Front-line Workers
Through funding from Public Health Agency of Canada’s FAS/FAE Strategic Project Fund,
NIICHRO developed and delivered a Train-the-Trainer model in both official languages for
First Nations and Inuit Community Health Representatives and other front-line workers
in Aboriginal communities.
Coordinates:
Tel.: (450) 632-0892 Fax: (450) 632-2111
Web Site: www.niichro.com
TITLE
Author/Agency:
Topic:
NEW BRUNSWICK FETAL ALCOHOL SYNDROME/EFFECTS NETWORK INC.
Ms. Lisa Beaulieu Roy, Coordinator, Tobique First Nation
Awareness and education
Individuals, families and communities
Provides links, leadership, awareness and education for the prevention, diagnosis and
intervention of FASD for individuals, families and communities in the province of New
Brunswick while ensuring cultural and regional sensitivity through a collaborative effort.
Coordinates:
23 Rehab Road Tobique First Nation NB E7H 3M9
Tel.: (506) 273-5537 Fax: (506) 273-4286
Web Site: www.nbfasnetwork.ca
FASD Resource Guide
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Associations 8
TITLE
ABORIGINAL NURSES ASSOCIATION OF CANADA
TITLE
QUEBEC OFFICE FOR THE HANDICAPPED (OPHQ)
TITLE
QUEBEC SOCIETY FOR HANDICAPPED CHILDREN
TITLE
FAS FOUNDATION
Contact/Agency:
Topic:
Ms. Margaret Horn, Executive Director
Professional support services
Aboriginal nurses and community health workers
The Aboriginal Nurses Association of Canada (ANAC) is a professional organization
working towards making a positive difference in the health of Aboriginal people in
Canada.
Coordinates:
56 Sparks St., Suite 502 Ottawa ON K1P 5A9
Tel.: (613) 724-4677 Fax: (613) 724-4718
Web Site: www.anac.on.ca
Author/Agency:
Topic:
Coordinates:
Author/Agency:
Topic:
Bureau de Montréal
Association for Handicapped
Handicapped persons and their families
Lobbying and promotion
Bilingual
500, boul. René Lévesque Ouest, bureau 15.700 Montréal (Québec), H2Z 1W7
Tel.: (514) 873-3905, Toll free: 1-888-873-3905 Fax: (514) 873-4299
Téléscripteur: (514) 873-9880
Web Site: www.ophq.gouv.qc.ca
Government Agency
Support and Links
Families
The agency provides assistance to families so that they may keep their handicapped
children in a family environment. Services offered include: le Camp Papillon (camp de
vacances), la Résidence et l’Auberge Papillon (séjours de répit), le Centre de la petite
enfance (garderie), andGeneral family asssitance.
Available Languages: Français (some English)
Coordinates:
2300, boul. René Lévesque Ouest
Montréal (Québec), H3H 2R5
Tel.: (514) 937-6171 Toll free: 1-877- 937-6171 Fax: (514) 937-0082
Web Site: www.enfantshandicapes.com
Author/Agency:
Topic:
Description:
Ms. Heather Cherrier
Prevention and education
The Foundation works in the area of prevention and education and provides assistance
in both French and English to families and their children.
Coordinates:
4367 King Edward Avenue, Montreal, QC H4B 2H4
Tel.: (514) 488-3388
Web Site: None listed
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FASD Resource Guide
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8.0
Associations
TITRE
ORGANISATION NATIONALE DES REPRÉSENTANTS INDIENS ET INUIT EN SANTÉ
COMMUNAUTAIRE (ONRIISC)
Organisme :
Sujet :
Destinataire(s): Description :
Langues :
Coordonnées :
TITRE
Personne ressource :
Sujet :
Destinataire(s) :
Description :
Langues :
Coordonnées :
TITRE
Non disponible
Modèle de formation d’instructeurs en matière d’ETCAF
Intervenants de première ligne des communautés des Premières Nations et inuites.
Grâce à une subvention du Fonds d’aide aux projets stratégiques pour le SAF et les
EAF de l’Agence de santé publique du Canada, l’ONRIISC a élaboré et mis en oeuvre un
modèle de « formation du formateur », dans les deux langues officielles, qui s’adresse
aux représentants en santé communautaire des Premières nations et inuits ainsi qu’aux
autres intervenants de première ligne des communautés autochtones.
B.P. 1019, Kahnawake (Québec) J0L 1B0
Tél. : (450) 632-0892
Téléc. : (450) 632-2111
Site web : www.niichro.com
RÉSEAU DU SYNDROME/DES EFFETS DE L’ALCOOLISATION FOETALE DU
NOUVEAU - BRUNSWICK INC.
Mme Lisa Beaulieu Roy, Coordonnatrice, Première Nation de Tobique
Sensibilisation et information
Individus, parents et communautés
Fruit d’un effort de collaboration, ce réseau vise à informer et à sensibiliser les
communautés et les parents du Nouveau-Brunswick sur l’ETCAF en les orientant vers
diverses sources d’information, dans le respect de leurs spécificités culturelles et
régionales.
23 Rehab Road
Tobique First Nation NB E7H 3M9
Tél. : (506) 273-5537 Téléc. : (506) 273-4286
Site web : www.nbfasnetwork.ca
ASSOCIATION DES INFIRMIÈRES ET INFIRMIERS AUTOCHTONES DU CANADA
Personne ressource : Mme Margaret Horn, Directrice générale
Sujet :
Services d’aide professionnelle
Destinataire(s) :
Infirmières et infirmiers autochtones, intervenants en santé communautaire
Description :
L’Association des infirmières et infirmiers autochtones du Canada (AIIAC) est un
organisme professionnel qui a pour but d’améliorer la santé des autochtones au Canada.
Langues :
Coordonnées :
56, rue Sparks, bureau 502, Ottawa, (Ontario) K1P 5A9
Tél. : (613) 724-4677 Téléc. : (613) 724-4718
Site web : www.anac.on.ca
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Associations 8
TITRE
Organisme :
Sujet :
Destinataire(s) :
Description :
Coordonnées :
TITRE
Organisme :
Sujet :
Destinataire(s) :
Description :
EMMANUEL, L’AMOUR QUI SAUVE
Association
L’adoption d’enfants ayant une déficience intellectuelle, physique ou sensorielle
Général
Association en faveur de l’adoption d’enfants ayant une déficience intellectuelle,
physique ou sensorielle et, pour cette raison, réputés inadoptables. Soutient les parents
biologiques à la naissance d’un enfant handicapé. Si nécessaire, leur apporte du
soutien dans leur démarche d’adoption. Trouve des parents intéressés à adopter de tels
enfants réputés inadoptables. Favorise l’entraide et suscite des rencontres entre familles
adoptives.
C.P. 352, Drummondville (Québec), J2B 6W3
Téléphone (répondeur): (819) 395-4889
Téléc. : (819) 395-6411
Site web : www.emmanuel.qc.ca
OFFICE DES PERSONNES HANDICAPÉES DU QUÉBEC (OPHQ)
Langues :
Coordonnées :
Bureau de Montréal
Personnes handicapées
Grand public
Organisme gouvernemental oeuvrant à promouvoir les intérêts des personnes
handicapées, à faciliter leur intégration scolaire, professionnelle et sociale, à coordonner
les services qui leur sont dispensés et à les informer et les conseiller. L’Office possède un
centre de documentation situé à Montréal et accessible à tous.
500, boul. René Lévesque Ouest, bureau 15.700
Montréal (Québec), H2Z 1W7
Téléphone: (514) 873-3905
Téléphone sans frais: 1-888-873-3905
Téléc. : (514) 873-4299
Téléscripteur: (514) 873-9880
Site web : www.ophq.gouv.qc.ca
TITRE
SOCIÉTÉ POUR LES ENFANTS HANDICAPÉS DU QUÉBEC
Organisme :
Sujet :
Destinataire(s) :
Description:
Coordonnées :
Société gouvernementale
Support et liens
Familles
La Société aide les parents à garder leur enfant handicapé en milieu familial. Les services
offerts sont : le Camp Papillon (camp de vacances), la Résidence et l’Auberge Papillon
(séjours de répit), le Centre de la petite enfance (garderie) ainsi qu’un service d’appoint
en ressources humaines pour les garderies désirant intégrer des enfants handicapés.
2300, boul. René Lévesque Ouest
Montréal (Québec), H3H 2R5
Téléphone : (514) 937-6171 Téléc. : (514) 937-0082
Téléphone sans frais: 1-877- 937-6171
Web Site: www.enfantshandicapes.com
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8 Associations
TITRE
Sujet :
Description : Langues :
Coordonnées :
FAS FOUNDATION
Mme Heather Cherrier
Prévention et information
La Fondation travaille dans le secteur de la prévention et de l’éducation et offre de l’aide
en français et en anglais aux familles et à leurs enfants.
4367, av King Edward, Montréal (Québec) H4B 2H4
Tél. : (514) 488-3388
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Clinics 9
9.0
Clinics
TITLE
CHILDREN’S HOSPITAL OF WESTERN ONTARIO
Contact/Agency:
Type of Services:
Coordinates:
Medical Genetics Program of Western Ontario
Dr. Jack Jung, Director
Dr. Victoria Siu, Medical Geneticist / Pediatrician
Tel.: (519) 685-8140 Fax: (519) 685-8214
Provincial IODE Genetics Resource Centre
Ms. Janice Little, Resource Associate
Tel.: (519) 685-8453 Fax: (519) 685-8214
Diagnosis
All individuals with possible FASD
The program provides medical consultations for possible FAS/FAE diagnosis, by
referral. Dr. Siu also sees patients by referral at the Child and Parent Resource Institute,
Sanitorium Road, P.O. Box 2460, London, ON N6A 4G6.
Tel.: (519) 858-2774.
Children’s Hospital of Western Ontario
800 Commissioners Rd. East, Room 2250 London ON N6C 2V5
Tel.: (519) 685-8140
Fax: (519) 685-8214
Web Site: www.lhsc.on.ca/programs/rmgc
TITLE
CHILDREN’S HOSPITAL OF EASTERN ONTARIO (CHEO)
TITLE
FETAL ALCOHOL SPECTRUM DISORDER (FASD) DIAGNOSIS CLINIC
Contact/Agency:
Topic:
Dr. Judith Allanson, Clinical Geneticist
Assessment
Children and adults
Dr. Allanson provides assessment of children and adults to determine the likelihood of
an FAS/FAE diagnosis.
Coordinates:
CHEO
401 Smyth Rd. Ottawa ON K1H 8L1
Tel.: (613) 737-2275 Fax: (613) 738-4822
Contact/Agency:
Topic:
Coordinates:
Dr. Brenda Stade, St. Michael’s Hospital
Diagnostic services and plans of care
Individuals of all ages
St. Michael’s Hospital’s FASD diagnostic clinic is located in the inner city of Toronto.
The multidisciplinary clinic provides diagnostic services to all ages. It holds a weekly
developmental clinic for infants and toddlers who were exposed to alcohol and/or other
substances during gestation. The clinic also provides diagnostic services and plans of
care for infants, children and adults prenatally exposed to alcohol.
St. Michael’s Hospital,
61 Queen St., 2nd Floor, Pediatric Clinic Toronto ON M5C 2T2
Tel.: (416) 867-3655 Fax: (416) 867-3736
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FASD Resource Guide
9 Clinics
TITLE
MOTHERISK, HOSPITAL FOR SICK CHILDREN
Contact/Agency:
Topic:
Coordinates:
Dr. Irena Nulman, Associate Director
Testing and assessment
Infants and children
The clinic undertakes psychological and physical testing of infants and children.
English and French
Tel.: (416) 813-7887 Fax: (416) 813-7562
TITLE
KAHNAWAKE PRECONCEPTIONAL HEALTH PROGRAM
TITLE
FASD TEAM
Agency:
Type of Services:
Kateri Memorial Hospital Centre, Community Health Unit
Prevention program
Adolescents and adults
The Preconceptional health program has a primary focus on prevention with the
following goals: to provide women of childbearing age, and their partners, with
information that will enable them to make timely, informed decisions about their
reproductive health; to empower and support community members and organizations
in their culturally-relevant efforts to promote healthy babies.
Publications/Material: On-site
Coordinates:
Kahnawake Preconceptional Health Program,
Tel.: (450) 638-3930, Local 212 Fax: (450) 638-4634
Author/Agency:
Type of Services:
Coordinates:
Public Health Agency of Canada
Referral
Not provided
Not provided
English and French
Public Health Agency of Canada
Tunney’s Pasture, PL: 1909C2 Ottawa ON K1A 0K9
Tel.: (613) 952-1229 Fax: (613) 946-2324
Web Site: www.phac-aspc.gc.ca/fasd-etcaf/index.html
TITLE
HEALTH CANADA FIRST NATIONS AND INUIT HEALTH BRANCH
Author/Agency:
Type of Services:
Coordinates:
FASD Resource Guide
Diane de Berardinis
Ensemble des troubles causés par l’alcoolisation fœtale (ETCAF)
First Nations and Inuit
Assistance et referrals
English and French
Complexe Guy-Favreau,
200 boul. René-Lévesque Ouest, Tour Est, 2ieme étage,
Montréal, Québec H2Z 1X4
Tél : (514) 283-1348 Fax: (514) 283-8067
Web Site: www.hc-sc.gc.ca/dgspni/pc/saf_eaf/
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Clinics 9
TITLE
CHU-SAINTE JUSTINE
Author/Agency:
Topic:
Coordinates:
Ste. Justine Hospital
Clinic
Families
Clinical assessment by appointment
English and French
3175, chemin de la Côte Sainte-Catherine
Tel.: (514) 345-4678 Fax: (514) 345-4806
Web Site: www.hsj.qc.ca/
TITLE
C.H.U.L.
TITLE
MONTREAL CHILDREN’S HOSPITAL
TITLE
HOPITAL NOTRE DAME DU CHUM
Author/Agency:
Topic:
Coordinates:
Author/Agency:
Dr. Rachel Laframboise
Clinic
Families
Spécialiste en médicine génétique au CHUQ-CHUL
French
CHUL,
2705 boul. Laurier, Ste-Foy,
Qc G1V 4G2
Tel : (418) 525-4444, poste 47130
McGill University Health Center
Dr. Kent Taylor and Dr. Emmett Francoeur
Topic:
Assessment and diagnosis FASD
General Audience: Families
Description:
Clinic
Coordinates:
2300 rue Tupper, D-280
Montreal, Quebec H3H 1P3
Tel.: (514) 412-4400
Dr. Taylor, ext 23548
Dr. Francoeur, ext 23050
Author/Agency:
Topic:
Coordinates:
Dr. Nora Setton
Assessment and Diagnosis FASD
Families
Clinic
French and English
2025 rue Duplessis,
Montreal, Qc H2L 2Y4
Tel : (514) 890-8227 Fax: (514) 412-7604
Office: 281-6000 ,ext. 6884
77
FASD Resource Guide
9 Clinics
TITLE
DIAGNOSTIC PRÉNATAL (HOPITAL SAINTE-JUSTINE)
Author/Agency:
Topic:
Coordinates:
Dr. Valerie Désilets, Director
Families
Diagnostic Clinic
English and French
3175 Chemin Cote Ste-Catherine
Montreal, Qc. H3T 1C5
Tel.: (514) 345-4931 Fax: (514) 412-4385
Office: (524) 842-1231 ext. 6947 Fax: (524) 843-1678 / (514) 934-4432
TITLE
CLINIQUE DE SANTÉ INTERNATIONALE DE L’HOPITAL SAINTE-JUSTINE
Author/Agency:
Topic:
Coordinates:
FASD Resource Guide
Dr. Jean-Francois Chicoine (Pediatrics)
Families
Diagnostic Clinic
English and French
3175 Chemin Cote Ste-Catherine
Montreal, Qc. H3T 1C5
Web Site: www.meanomadis.com/content/index.asp
78
Cliniques 9
9.0 Cliniques
TITRE
CENTRE HOSPITALIER POUR ENFANTS DE L’EST DE L’ONTARIO (CHEO)
Sujet :
Destinataire(s) :
Description :
Langues :
Coordonnées :
TITRE
Dr Judith Allanson, généticienne médicale
Évaluation
Enfants et adultes
Le Dr Allanson évalue les enfants et les adultes afin de déterminer le risque d’un
diagnostic de SAF/EAF.
CHEO
401, chemin Smyth, Ottawa (Ontario) K1H 8L1
Tél. : (613) 737-2275 Fax: (613) 738-4822
MOTHERISK, HOSPITAL FOR SICK CHILDREN
Sujet :
Destinataire(s) :
Description :
Langues :
Coordonnées :
Dr Irena Nulman, directrice adjointe
Dépistage et évaluation
Enfants et nourrissons
Offre des services d’évaluation physique et psychologique de l’enfant et du nourrisson.
555, av. University, Toronto (Ontario) M5G 1X8
Tél. : 1-877-327-4636 (sans frais, partout au Canada)
Site web : www.motherisk.org
TITRE
ÉQUIPE SUR L’ETCAF
Organisme :
Services offerts :
Destinataire(s) :
Description :
Langues :
Coordonnées :
Agence de santé publique du Canada
Référence
Non disponible
Non disponible
Agence de santé publique du Canada
Pré Tunney, Indice de l’adresse : 1909C2, Ottawa (Ontario) K1A 0K9
Tél. : (613) 952-1229 Téléc. : (613) 946-2324
Site web : www.phac-aspc.gc.ca/fasd-etcaf/index_f.html
TITLE
C.H.U.L.
Services offerts :
Destinataire(s) :
Description :
Coordonnées :
Dr. Rachel Laframboise
Clinique
Familles
Spécialiste en médicine génétique au CHUQ-CHUL
CHUL,
2705 boul. Laurier, Ste-Foy, Qc G1V 4G2
Tél : (418) 525-4444, poste 47130
79
9 Cliniques
TITRE
Organisme :
Services offerts :
Destinataire(s) :
Description :
Langues :
Coordonnées :
TITRE
HÔPITAL DE MONTRÉAL POUR ENFANTS
Centre universitaire de santé McGill
Dr Kent Taylor et Dr Emmett Francoeur
Évaluation et diagnostic de l’ETCAF
Familles
Clinique
2300, rue Tupper, D-280
Montréal (Québec) H3H 1P3
Tél. : (514) 412-4400
Dr Taylor : poste 23548
Dr Francoeur : poste 23050
HÔPITAL NOTRE DAME DU CHUM
Services offerts :
Destinataire(s) :
Description :
Langues :
Coordonnées :
Dr Nora Setton
Familles
Clinique
2025, rue Duplessis,
Montréal (Québec) H2L 2Y4
Tél. : (514) 890-8227
Téléc. : (514) 412-7604
Bureau : 281-6000 poste 6884
TITRE
DIAGNOSTIC PRÉNATAL (HÔPITAL SAINTE-JUSTINE)
Services offerts :
Destinataire(s) :
Description :
Langues :
Coordonnées :
Dr Valerie Désilets, directrice
Familles
Diagnostic clinique
3175, chemin Côte Ste-Catherine,
Montréal (Québec) H3T 1C5
Tél. : (514) 345-4931
Téléc. : (514) 412-4385
Bureau : (524) 842-1231 poste 6947 Téléc. : (524) 843-1678 / (514) 934-4432
80
Cliniques 9
TITRE
CLINIQUE DE SANTÉ INTERNATIONALE DE L’HÔPITAL SAINTE-JUSTINE
Services offerts :
Destinataire(s) :
Description :
Langues :
Coordonnées :
Dr Jean-Francois Chicoine (Pédiatre)
Familles
Clinique
3175, chemin Côte Ste-Catherine, Montréal (Québec) H3T 1C5
Site web : www.meanomadis.com/content/index.asp
TITRE
FRANCE POTVIN PSYCHOLOGUE
TITRE
DIRECTION GÉNÉRALE DE LA SANTÉ DE PREMIÈRES NATIONS ET DES INUITS
Organisme :
Services offerts :
Destinataire(s) :
Description :
Coordonnées :
Centre Jean-Patrice Chiasson Masion Saint-Georges
FASD
Familles
Psychological services
1930 rue King ouest,
Sherbrooke, Qc. J1J 2E2
Services offerts :
Destinataire(s) :
Description :
Langues :
Coordonnées :
Diane de Berardinis
Premières nations et Inuits
Aide et référence
Français et anglais
200, boul. René-Lévesque Ouest, Tour Est, 2eme étage,
Montréal (Québec) H2Z 1X4
Tél. : (514) 283-1348 Téléc. : (514) 283-8067
Site web : www.hc-sc.gc.ca/dgspni/pc/saf_eaf
TITRE
COMMISSION DE LA SANTÉ ET DES SERVICES SOCIAUX DES PREMIÈRES NATIONS
DU QUÉBEC ET DU LABRADOR (CSSSPNQL)
Services offerts :
Francine Vincent, coordonnatrice technique
Aide et référence
Information destinée aux centres de santé communautaires
La Commission à pour but de sensibiliser les communautés des Premières Nations sur la
problématique de l’ETCAF en leur fournissant des outils, de l’information et des séances
de formation.
250, place Chef Michel Laveau, Local 102
Wendake (Québec) G0A 4V0
Tél. : (418) 842-1540 Téléc. : (418) 842-7045
Langues :
Coordonnées :
81
10
Educational and Training Centres
10.0 Educational and Training Centres
TITLE
UNBI TRAINING INSTITUTE
Contact/Agency:
Topic:
Coordinates:
TITLE
Contact/Agency:
Topic:
Coordinates:
TITLE
Contact/Agency:
Topic:
Coordinates:
FASD Resource Guide
Ms. Ellen Bubar, Vice-Principal/Facilitator
FASD Training Certificate and Workshops
Frontline Workers
The Applied Studies in Fetal Alcohol Syndrome/Effects Certificate Program offered in
cooperation with Red River Community College, Manitoba is made up of 16 modules
that can be taken either on a full-time or part-time basis in either Fredericton, NB or
Miramichi, NB.
Prevention and training/ education workshops and information sessions on FASD can be
delivered throughout Canada using the Manual for Community Caring (FAS/E Support
Network of BC). FASD and Law Enforcement training is available to those employed in
the field. Resource materials may also be borrowed.
370 Wilsey Rd. Fredericton NB E3B 6E9
Tel.: (506) 458-9444, Ext. 120 Fax: (506) 458-2850
Web Site: None provided
UNION OF ONTARIO INDIANS – ANISHINABEK HEALTH COMMISSION
No names provided
Training and resource library
First Nations
Provides culturally-based training to Aboriginal frontline workers located throughout
the Anishinabek Nation. Four regional FASD program workers provide capacity building
training and support services to 42 First Nations. Workshops are conducted on a wide
range of FASD related topics. An FASD resource library is maintained and a number of
culturally-based resources have been developed
P.O. Box 711 North Bay ON P1B 8J8
Tel.: (705) 497-9127, Ext. 2296;
Web Site: www.anishinabek.ca
FETAL ALCOHOL SYNDROME CONSULTATION,EDUCATION AND TRAINING
SERVICES, INC.
FASCETS is a non-profit private organization
FASD
Services available through FASCETS are designed to increase understanding, build
on strengths, expand options for developing effective parenting and professional
techniques, enhance existing programs and support the development of new programs.
Short term goals include increased effectiveness, reduced frustration, and attainment of
improved outcomes, including burnout prevention in professionals. The long term goal
of this work is to contribute to the prevention of FAS/ARND.
FASCETS supports the development of a family-centered, community-based,
multidisciplinary continuum of care. This collaborative design has been found to be
effective in enhancing communication among parents and professionals for their mutual
benefit.
Range of Services::
Community Education, Professional Development, Consultation Services, Workshops,
Library
Email: [email protected] Web Site: www.fascets.org/
82
TITLE
Contact/Agency:
Topic:
Coordinates:
TITLE
Contact/Agency:
Topic:
Coordinates:
TITLE
Agency:
Topic:
Educational and Training Centres
FASD CONNECTIONS
FASD Connections, British Columbia
Training programs for those caring for or working with Adolescents and Adults with
FASD. Information and consultation services also available
Community workers and professionals
In addition to website information resources and consultation services, FASD
Connections provides a variety of training courses of all types, formats, and lengths
delivered by highly qualified trainers with experience working with adolescents and
adults with FASD.
Individual modules are usually 3 hour blocks, designed to be linked together as time
permits. Courses can be customized to accommodate time, needs, and format desired.
Comprehensive courses are offered in 5 day, 10 day and 15 day formats, and are
delivered in a manner to best meet your needs. Individual modules range from basic
level through to specialized areas designed for social services, justice system, mental
health, addictions, program development, and working with individuals with FASD. Also
included are modules on ethics and economics, self-care, modules for parents, partners,
and families, panel presentations, and follow-up modules.
Web Site: www.fasdconnections.ca/index.htm
SUZANNE BOIVIN (TRAINER)
Caring for children having FASD
Families and workers
Trainer and speaker, mother of two adopted children with FASD, now living in Quebec.
Bilingual
51, rue de Condé, Gatineau, Qc. J8M 1G4 Tel.: (819) 281-9096
FIRST NATIONS OF QUEBEC AND LABRADOR HEALTH AND SOCIAL SERVICES
COMMISSION (FNQLHSSC/CSSSPNQL)
Francine Vincent, Technical Coordinator
FASD Website and documentation center
Information for Community Health Centers
The Commission works towards increasing awareness in First Nations communities on
FASD by providing resources, information, and training.
Coordinates: 250 Sondakwa Place, Local 102 , Wendake QC G0A 4V0
Tel.: (418) 842-1540 Fax: (418) 842-7045
Web Site: www.csspnql.com
TITLE
Agency:
Topic:
General Audience: Available Languages:
Coordinates: ÉRIKE GOUDREAULT
Early Childhood consultant
Fetal Alcohol Syndrome Parenting programs
Intervention strategies for parents, educators, teachers
English and French
154, Route 155 nord, La Tuque, Qc G9X 3N6
Tel.: (819) 523-5668 Cell.: (819) 676-6596
83
FASD Resource Guide
10
10 Formation
10.0
Formation
TITRE
SUZANNE BOIVIN (INSTRUCTRICE)
Sujet :
Langues :
Coordonnées :
TITLE
Sujet :
Langue(s) :
Coordonnées :
TITRE
Soins aux enfants atteints de l’ETCAF
Familles et intervenants
Instructrice et conférencière, mère adoptive de deux enfants atteints de l’ETCAF.
Elle vit actuellement au Québec.
Bilingue
51, rue de Condé, Gatineau (Québec). J8M 1G4
Tél. : (819) 281-9096
SAFERA (SYNDROME D’ALCOOLISATION FOETALE EFFETS RELATIFS
À L’ALCOOL)
Mme Louise Loubier-Morin, Présidente
ETCAF
Familles et travailleurs communautaires
Formation sur les effets de l’exposition prénatale à l’alcool, le SAF/EAF, et accessoirement
sur les effets de l’exposition aux solvants et autres drogues. SAFERA a conçu et distribue
des affiches, des dépliants et autres documents sur le SAF
Français
845, chemin du Bord de l’eau
St-Henri QC G0R 3E0
Tél. : (418) 882-2488; 1-866-272-3372 (sans frais au Canada)
Téléc. : (418) 882-6373
DIRECTION GÉNÉRALE DE LA SANTÉ DE PREMIÈRES NATIONS ET DES INUITS
Services offerts :
Destinataire(s) :
Description :
Langues :
Coordonnées :
Diane de Berardinis
Premières nations et Inuits
Aide et référence
200, boul. René-Lévesque Ouest, Tour Est, 2eme étage, Montréal (Québec) H2Z 1X4
Tél. : (514) 283-1348 Téléc. : (514) 283-8067
Site web : www.hc-sc.gc.ca/dgspni/pc/saf_eaf
TITRE
Services offerts :
Aide et référence
de formation.
Wendake (Québec) G0A 4V0 Tél. : (418) 842-1540 Téléc. : (418) 842-7045
Langues :
Coordonnées :
84
Formation 10
TITRE
Sujet :
Services offerts :
Destinataire(s) :
Langues :
Coordonnées : ÉRIKE GOUDREAULT
Consultante en petite enfance
Programme de compétences parentales
Stratégies d’intervention pour parents, éducateurs et enseignants
154, Route 155 nord, La Tuque, Qc G9X 3N6
Tél. : (819) 523-5668 Cell. : (819) 656-6596
85
11 Documentation Centres
11.0
Documentation Centers
TITLE
FIRST NATIONS HEALTH AND SOCIAL SERVICES RESOURCE CENTER
(KAHNAWAKE)
Author/Agency:
Topic:
Ms. Andrea Brisebois, Librarian/Researcher
Information and documentation
General
This is a regionally funded program serving First Nations Communities in Quebec. The
Center enables resource people to access FAS documents, pamphlets, etc. free of charge
and offers FAS videos for loan.
Available Languages: English
Coordinates:
Tel.: (450) 638-3199; 1-800-363-3199 (toll free in Quebec) Fax: (450) 635-1019
Web Site: www.fnhssrc.ca
TITLE
Agency:
Topic:
FIRST NATIONS OF QUEBEC AND LABRADOR HEALTH AND SOCIAL SERVICES
COMMISSION (FNQLHSSC/CSSSPNQL)
Francine Vincent, Technical Coordinator
FASD Website and documentation center
Information for Community Health Centers
The Commission works towards increasing awareness in First Nations communities on
FASD by providing resources, information, and training.
Coordinates: 250 Sondakwa Place, Local 102
Wendake QC G0A 4V0
Tel.: (418) 842-1540 Fax: (418) 842-7045
Web Site: www.csspnql.com
TITLE
Agency:
Topic:
FASD INFORMATION & CONSULTATION SERVICE
Canadian Centre on Substance Abuse (CCSA)
National Services
A reference desk staffed by a bilingual information specialist can be accessed from across
Canada through the 1-800 number, fax, email and written request. Since April 2003, the
National Database of FASD and Substance Use During Pregnancy Resources has been
available. Funded through Public Health Agency of Canada’s FAS/FAE Strategic Project
Fund, this is a database of Canadian resources that have been authored, produced or
published in Canada or that have Canadian content but have been published outside
of Canada and is currently available to be ordered or purchased from the organization
responsible.
Coordinates: Canadian Centre on Substance Abuse (CCSA)
300 - 75 Albert St. Ottawa ON K1P 5E7
Tel.: 1-(800)-559-4514 (toll free in Canada);
Tel.: (613) 235-4048, ext. 223 Fax: (613) 235-8101
Web Site: www.ccsa.ca/fas.
FASD Resource Guide
86
Centres de documentation
11.0
TITRE
CENTRE QUÉBÉCOIS DE DOCUMENTATION EN TOXICOMANIE
Sujet :
Coordonnées :
Mme Karine Bélanger, Bibliothécaire
Centre d’information sur l’ETCAF
General
Le Centre pourrait fournir de l’information et des renseignements sur le SAF/EAF.
950, rue de Louvain est Montréal QC H2M 2E8
Tél. : (514) 385-3490, poste 1153 Téléc. :(514) 385-5728
Site web : www.centredollardcormier.qc.ca
TITRE
Services offerts :
Langues :
Coordonnées :
TITRE
Organisme :
Services offerts :
Langues :
Coordonnées :
Site Web sur l’ETCAF et centre de documentation
de formation.
Wendake (Québec) G0A 4V0
Tél. : (418) 842-1540 Téléc. : (418) 842-7045
Site web : www.cssspnql.com
SERVICE D’INFORMATION ET DE CONSULTATION SUR L’ETCAF
Centre canadien de lutte contre l’alcoolisme et les toxicomanies (CCLAT)
Base de données
Services nationaux
Le Service compte par ailleurs un bureau des renseignements, auquel est affectée une
spécialiste bilingue de l’information, que l’on peut contacter de partout au Canada,
soite par la ligne téléphonique sans frais, par télécopieur, par courrier électronique ou
par la poste. Depuis avril 2003, la Base de données nationale sur des ressources ayant
trait à l’ETCAF et à la consommation d’alcool et de drogues pendant la grossesse est
disponible. Financé par le Fonds d’aide aux projets stratégiques pour le SAF/EAF, il s’agit
d’une base de données sur des ressources documentaires canadiennes, c’est-à-dire des
ressources rédigées, produites ou publiées au Canada ou avec un contenu canadien
qui ont toutefois été publiées à l’extérieur du pays et qu’il est actuellement possible de
commander ou d’acheter auprès de l’organisation responsable.
Centre canadien de lutte contre l’alcoolisme et les toxicomanies (CCLAT)
75, rue Albert, bureau 300, Ottawa (Ontario), K1P 5E7
Tél. : 1-(800)-559-4514 (sans frais, partout au Canada);
Tél. : (613) 235-4048, poste 223
Téléc. : (613) 235-8101
Site web : www.ccsa.ca/fas
87
11
11
TITRE
Organisme :
Services offerts :
Langues :
Coordonnées :
SERVICE D’INFORMATION SUR LE SAF ET LES EAF (EFFETS DE L’ALCOOL SUR LE
FOETUS)
Centre de documentation
Général
Le service d’information fournit des liens essentiels aux groupes de soutien, aux
responsables des projets de prévention, ainsi qu’aux centres d’information et aux
experts en SAF/EAF. Il diffuse en outre de l’information bilingue à toutes les personnes
intéressées.
Français (Les publications en anglais du CCLAT figurent dans une liste distincte)
75, rue Albert, bureau 300, Ottawa (Ontario), K1P 5E7
Téléphone : (613) 235-4048
Téléphone sans frais : 1-800-559-4514
Téléc. : (613) 235-8101
Site web : www.ccsa.ca/CCSA/FR/Topics/Populations/ FASDInformationService.htm
88
Resources for Professionals
12.0
Information and Material Resources for professionals
TITLE
FASNET SCREENING TOOL SERIES
Author/Agency:
Topic:
Publisher:
TITLE
Author/Agency:
Topic:
Publisher:
Distributor: TITLE
Author/Agency:
Topic:
FASNET Screening Tools 1995
Screening Tools
Professional
Paper. 13 pages. «There are different screening tools available to assess individuals as to
the need for referral to determine the possibility of alcohol related birth defects. Please
ensure that you use the appropriate screening tool as the indicators vary depending on
the age of individuals.» Screening Tools for Ages 0-36 months, 3-5 years, 6-9 years, 10-13
years, 14-18 years, 19 years and up.
Online resources
Available on-line $10.00 per series
Tel.: 604-607-7715 Fax: 604-607-7751
FAS Bookshelf Inc. Items Number: B-110 - B115 (by age grp) $10.00 each
Tel.: (604) 942-2024 Fax: (604) 942-2041
Order from bookshelf online at:
FETAL ALCOHOL SYNDROME: AN ISSUE OF CHILD AND FAMILY HEALTH.
A POLICY DISCUSSION PAPER
CCSA National Working Group on Policy
Community Policy
Policymakers and professionals
Canadian Centre on Substance Abuse, 1994. 5 p.
CCSA Record: 4978 available in PDF format on-line
FASLINK (FETAL ALCOHOL SPECTRUM DISORDERS INFORMATION, SUPPORT &
COMMUNICATIONS LINK)
Mr. Bruce Ritchie, Moderator
Professional references and resources available on website
Professionals (and families)
FASlink provides support and information for individuals, families and professionals
who are working with and caring for those affected by prenatal alcohol exposure.
FASlink maintains both an extensive FASD information website and a discussion listserv.
The website serves more than 400,000 people annually with more than 100,000 FASD
related documents in a searchable database. FASlink publishes the FASlink CDROM and
FAS InfoDisk (for download from the website) as well as other educational material.
The FASlink Discussion Forum is a moderated email discussion group that provides
support and information 24/7 and serves parents (birth, foster and adoptive), caregivers,
adults with FASD, doctors, teachers, social workers, lawyers, students, psychologists,
law enforcement, judiciary and corrections professionals as well as government policy
makers, etc. The listserv shares 50 to 100 letters daily. Membership varies seasonally as
we also help to educate students.
89
FASD Resource Guide
12
12
Coordinates:
TITLE
Author/Agency:
Topic:
Publisher:
Web Site:
FASlink’s online discussion forum is the primary Canadian FASD communications
network and includes members worldwide.
2445 Old Lakeshore Rd.
Bright’s Grove ON N0N 1C0
Tel.: (519) 869-8026 Fax: (519) 869-8026
Web Site: www.faslink.org
FETAL ALCOHOL SYNDROME: DIAGNOSIS, EPIDEMIOLOGY, PREVENTION, AND
TREATMENT
Stratton, K. et al (eds.) 1996
FASD
This volume will be of special interest to physicians, nurses, mental health practitioners,
school and public health officials, policymakers, researchers, educators, and anyone else
involved in serving families and children, especially in high-risk populations.
The committee discusses levels of preventive intervention, reviews available data about
women and alcohol…explores the psychological and behavioral consequences of FAS at
different ages… In summary, it discusses FAS and other possibly alcohol-related effects
from two broad perspectives: diagnosis and surveillance, and prevention and treatment.
In addition, it includes several real-life vignettes of FAS children.
National Academy Press. Hardcover. 230 pages.
Provided free of charge as an online book at the following URL: http://www.nap.edu/
books/0309052920/html/index.html
TITLE
FETAL ALCOHOL SPECTRUM DISORDER: CANADIAN GUIDELINES FOR DIAGNOSIS
TITLE
FETAL ALCOHOL SPECTRUM DISORDERS: THE FOUR DIGIT CODE
Author/Agency:
Chudley A., Conry J., Loock C., Rosales T., & Leblanc N. (March 2005) Canadian Medical
Association Journal
Topic:
Guidelines for FASD Diagnosis
General Audience: Professionals
Description:
Journal article
Publisher:
Online journal
Web Site: Available online: www.cmaj.ca/cgl/reprint/172/5_suppl/S1 (English)
http://www.cmaj.ca/jamc/ (Rechercher - ETCAF) (for French)
Author/Agency:
Topic:
Publisher:
FASD Resource Guide
Third Edition, 2004
University of Washington FASDPN
Diagnosis and assessment
Professionals
The 4-Digit Diagnostic Code was developed by FAS pioneers Drs. Susan Astley and
Sterling Clarren. This diagnostic tool provides for an objective assessment of the four
diagnostic landmarks of FAS resulting in a definitive rating from 111 (normal growth) to
444 (classic FAS.)
Available online
Web Site: http://depts.washington.edu/fasdpn/pdfs/guide2004.pdf
90
TITLE
Author/Agency:
Topic:
Publisher:
FETAL ALCOHOL SYNDROME: A RESOURCE FOR PROFESSIONALS - BOOKLET
Saskatchewan Institute on Prevention of Handicaps, 2000
Basic information on FASD
Professionals
The intent of this booklet is to educate a broad cross section of professionals with the
basic information about FAS. The booklet includes information about how FAS occurs,
how a diagnosis is made, what the consequences of FAS are to the individual and the
family, and some common characteristics of the syndrome. This booklet provides basic
information about the syndrome, leading to a better understanding of the behaviour
and characteristics of individuals with FAS.
1319 Colony, Saskatoon, SK. S7N 2Z1
Tel.: (306) 655-2512
Fax: (306) 655-2511
Booklet is $10.00 a copy
Web Site: www.preventioninstitute.sk.ca/pdf/ResourceCatalogue.pdf
TITLE
JOURNAL OF FAS INTERNATIONAL
TITLE
UNDERSTANDING THE OCCURRENCE OF SECONDARY DISABILITIES IN CLIENTS
WITH FETAL ALCOHOL SYNDROME (FAS)
Author/Agency:
Topic:
Publisher:
Author/Agency:
Topic:
Publisher:
Distributor: TITLE
Author/Agency:
Topic:
Motherisk
Journal articles on FASD
Professionals
Professional journal articles on FAS
Available online
Web Site: www.motherisk.org/JFAS
Ann Streissguth Ph D
Secondary Disabilities with FASD
Professionals and community workers
Examines the types and the magnitude of secondary disabilities associated with FAS and
FAE. Also provides an assessment of the risk and protective factors that might alter the
rates of occurrence.
National Organisation on Fetal Alcohol Syndrome
Price: $3.00 (US)
Tel.: (202) 785-4585, +1 (800) 66NOFAS Fax: (202) 466-6456
Order online: Web Site: www.nofas.org/estore/
THE CHALLENGE OF FETAL ALCOHOL SYNDROME: OVERCOMING SECONDARY
DISABILITIES.
Streissguth, A. (1997). University of Washington Press
Needs of FASD individuals
Paperback. 256 pages. “Experts describe how to help people with FAS. A summary of
recent findings and recommendations is presented. Experts from the fields of human
services, education, and criminal justice respond by describing their solutions…
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FASD Resource Guide
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Publisher:
Distributor: TITLE
Author/Agency:
Topic:
This book acknowledges the diverse and multifaceted needs of people with FAS/FAE
across a lifetime.
University of Washington Press
Tel.: (604) 942-2024Fax: (604) 942-2041
DRINKING ALCOHOL WHILE BREASTFEEDING – PHYSICIANS DESK
REFERENCE
Best Start Resource Centre, 2002, updated 2005
Reference which includes a table to indicate time clearance of alcohol from breast milk
Physicians and professionals
Tool for health care providers to assess and inform pregnant patients about the risk
of alcohol use in pregnancy and includes a table that illustrates the time clearance of
alcohol from breast milk of women, according to mother’s weight, amount of alcohol
consumed and hours since consumption.
Publisher:
Distributor: Item No. A03 E or F. Cost is $0.25 per copy (Minimum of 5 copies)
Tel.: (416) 408.2249Fax: (416) 408.2122
TITLE
Author/Agency:
SCREENING FOR ALCOHOL USE DURING PREGNANCY, PHYSICIANS DESK
REFERENCE
Best Start Resource Centre in collaboration with Motherisk, adapted from the College of
Physicians and Surgeons of Manitoba (2000) and Sokol et al., (1989), 2003
Topic:
Screening tool
General Audience: Physicians and Professionals
Description:
A screening tool for physicians on how to assess risk status of pregnant women with
regard to alcohol use. Includes contact information for the Motherisk Alcohol and
Substance Use Helpline.
Publisher:
Distributor: Item No. A04 E or F. Cost is $0.25 per copy (Minimum of 5 copies)
Tel.: (416) 408.2249Fax: (416) 408.2122
FASD Resource Guide
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TITLE
Author/Agency:
TRAINING LOCAL PHYSICIANS ON ALCOHOL USE AND PREGNANCY. PLANNING
GUIDE
Best Start Resource Centre in Collaboration with Motherisk, Centre for Addiction and
Mental Health, City of Hamilton Social and Public Services, Health Canada Population
and Public Health Branch, Ontario Region, Breaking the Cycle, FAS World, AWARE, Focus
Resource Centre, Equay wuk, and concerned physicians, 2002.
Topic:
Training sessions with physicians
General Audience: Professionals
Description:
This guide was designed to support training for physicians on alcohol use in pregnancy.
It provides useful information for event planners and facilitators on how to engage
physicians in a training session and includes self-assessment questionnaires for
physicians, evaluation forms and referrals for further information.
Publisher:
Item No. A02 E or F. Cost is $0.75 per copy
Tel.: (416) 408.2249Fax: (416) 408.2122
TITLE
Author/Agency:
Topic:
Publisher:
TITLE
Author/Agency:
Topic:
BE SAFE: HAVE AN ALCOHOL FREE PREGNANCY BOOKMARK
Prevention FASD
Health care providers
Color bookmark for health care providers. One side provides contact information for
several organizations (Motherisk, Health Canada, etc.) and the other side reproduces the
alcohol and pregnancy screening tool for physicians (the T-ACE questionnaire).
Best Start Resource Guide
Item No. A10. Cost is $0.15 per copy (Minimum of 5 copies)
Tel.: (416) 408.2249Fax: (416) 408.2122
BE SAFE: HAVE AN ALCOHOL FREE PREGNANCY TEAR-OFF PADS
Prevention FASD
Professionals and Health Care Workers
Pad of tear-off color sheets (10 cm by 10 cm) with information for expectant parents on
alcohol use in pregnancy. One side says «Be Safe: Have an alcohol-free pregnancy» and
includes visuals that illustrate the dangers to the baby of alcohol.
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Publisher:
Distributor: TITLE
The other side repeats the poster, as above, and includes tel. contact information for
Motherisk, FAS-INFO and the Ministry of Health’s INFO line.
Tel.: (416) 408.2249Fax: (416) 408.2122
BE SAFE: HAVE AN ALCOHOL FREE PREGNANCY STATIC CLINGS
Author/Agency:
Topic:
Publisher:
Distributor: Best Start Resource Centre, 2004
Prevention FASD
Professionals and Health Care Workers
Small static cling reproduction of the poster with no contact information.
Bilingual
Tel.: (416) 408.2249Fax: (416) 408.2122
TITLE
BE SAFE: HAVE AN ALCOHOL FREE PREGNANCY POSTER
Author/Agency:
Topic:
Prevention Poster to accompany previous items
General
This 43 cm by 33 cm color poster with contact information to the FAS-INFO line.
(Also available accompanying brochures)
Publisher:
Item No. A07E or F $0.20 each (minimum of 5 copies)
Tel.: (416) 408.2249Fax: (416) 408.2122
Also available in PDF format online at :
FASD Resource Guide
94
TITLE
BE SAFE: HAVE AN ALCOHOL FREE PREGNANCY BROCHURE
Author/Agency:
Topic:
Publisher:
Prevention Brochures
Expectant parents
This color brochure provides information and tips for expectant parents.
English and French
Item No. A06E or F $0.15 each (minimum of 5 copies)
Tel.: (416) 408.2249Fax: (416) 408.2122
TITLE
ALCOHOL AND PREGNANCY WARNING SIGN POSTER
TITLE
FETAL ALCOHOL SYNDROME AND FETAL ALCOHOL EFFECTS: STRATEGIES FOR
PROFESSIONALS
Author/Agency:
Topic:
Best Start Resource Centre 2004
Prevention Poster
Expectant parents
25 cm by 21 cm color poster, depicting a pregnant woman’s torso embraced by a male
from behind. The poster says «Warning: Drinking alcohol during pregnancy can cause
birth defects and brain damage to your baby».
Publisher:
Tel.: (416) 408.2249Fax: (416) 408.2122
Author/Agency:
Topic:
Diane Malbin, MSW
FASD Strategies for professionals
Professionals
This booklet is written for Hazelden Publishing Company, for chemical dependency
professionals. It provides useful information for parents and other professionals as well.
Topics covered are:
1. Alcohol’s effects on pregnancy
2. The difference between FAS and FAE
3. Understanding behaviors associated with FAS/FAE, with vignettes and case examples
that illustrate these behaviors. In addition, this booklet includes personal stories that
provide hope and encouragement for people with FAS/FAE, their families and their
communities. (illustrated, 44 pages)
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Publisher:
Available through FASCETS Inc.
FASCETS Cost: $10.00 (US)
PO Box 83175, Portland, OR 97283 USA
Tel./fax: 503-621-1271
TITLE
TRYING DIFFERENTLY RATHER THAN HARDER
Author/Agency:
Topic:
Publisher:
TITLE
Author/Agency:
Topic:
FASD Resource Guide
Diane Malbin, MSW (revised 2002)
Strategies for working with children having FASD
This booklet is a sequel to the earlier publication, Fetal Alcohol Syndrome and Fetal
Alcohol Effects: Strategies for Professionals. It provides a readable, narrative discussion of
the model for working effectively with children, adolescents and adults with FAS/ARND.
After a brief review of the diagnosis, the focus is on understanding behaviors differently
- primary and secondary learning and behavioral characteristics. One section explores
the most common behavioral symptoms by providing case examples, interventions, and
outcomes. The model for Trying Differently Rather Than Harder is illustrated by stories of
how alternative interventions lead to less frustration.
There is a section of common questions with answers and discussion, for example, “How
much alcohol does it take to cause FAS?” and “Every year we seem to get the latest ‘pop’
diagnosis, like a fad. How do we know FAS/ARND isn’t just one more in a long line of hit
topics?” or “I have other children in my class. How can I do things differently for just one
child?” and others. 80 pages, Second Edition, illustrated.
FASCETS
FASCETS
Cost: $15.00 (US)
PO Box 83175, Portland,
OR 97283 USA
Tel./fax: 503-621-1271
INTERDISCIPLINARY CLINICAL ASSESSMENT OF YOUNG CHILDREN WITH
DEVELOPMENTAL DISABILITIES
Edited by Michael J. Guralnick, Ph.D. 2000
Interdisciplinary Practice for various developmental disabilities
Professionals and educators
Good practice calls for the formation of an interdisciplinary clinical assessment team
when a developmental problem is recognized or suspected in a young child. Offering
insight from veteran team members, this useful resource demonstrates how to create
new interdisciplinary assessment teams or expand existing teams to ensure that
children and their families receive the best care possible. Readers will find this reference
unbeatable for gaining perspective on how practitioners gather information, make
decisions, and face the challenges of their individual disciplines. State-of-the-art in their
approach to clinical assessment, the contributors to this volume represent the fields of
• audiology • nursing • nutrition • psychology
• social work • physical therapy
• speech-language pathology • developmental pediatrics
• occupational therapy
96
Publisher:
Case studies provide an inside look at how these team members collaborate to design
effective intervention plans. With an appendix of photocopiable questionnaires for
clinicians and parents, this resource provides all the information and tools necessary to
make interdisciplinary clinical assessments successful. (One case study is provided on
FASD)
Hardcover 496 pages / 6 x 9
Brookes Publishing
ISBN 1-55766-450-1 Stock# 4501 $44.95 (US)
Attn: Customer Service, Brookes Publishing Co.
P.O. Box 10624, Baltimore, MD 21285-0624 USA
Tel.: 1-410-337-9580 Fax: 1-410-337-8539
Order online at:
Web Site: www.brookespublishing.com/store/books/guralnick-4501/index.htm
TITLE
DEVELOPMENTAL DISABILITIES IN INFANCY AND CHILDHOOD, 2ND EDITION
Author/Agency:
Topic:
Publisher:
Edited by Arnold J. Capute, M.D., M.P.H., & Pasquale J. Accardo, M.D. 1996
Developmental pediatrics with mention of FASD
Professionals
Broad in scope and meticulous in detail, these two volumes encompass the second
edition of the developmental pediatrics textbook. Written by physician experts, these
texts contain fully revised chapters and more than 30 new chapters that explore
advances in assessment and treatment, retain a clinical focus, and incorporate recent
developments in research and theory. Developmental pediatricians, medical students,
interns on rotation in a developmental pediatrics clinic, and other professionals who
work with children with developmental disabilities will find these texts indispensable.
The volumes can be purchased as a set or individually.
Volume I ISBN 1-55766-178-2 Hardcover / illus. 656 pages / 7 x 10. The text offers
an extensive discussion ofGeneral issues in the theory, assessment, and treatment
of developmental disabilities. Among the topics covered are brain development,
the epidemiology and etiology of developmental disabilities, neurodevelopmental
screening and assessment, computer technology, and the shift toward family-focused
intervention.
Volume II ISBN 1-55766-194-4 Hardcover / illus.560 pages / 7 x 10. The volume explores
a broad range of specific disorders, describing their effects from infancy through
adolescence and explaining the latest assessment and intervention strategies for each.
It provides in-depth coverage of important topics including preterm development,
chromosome-related disorders, neurology and neuroscience, and learning and
behavioral disorders.
Paul H. Brookes Publishing
Volume I/ Stock# 1782
$125.00 (US)
Volume II/ Stock# 1944 $115.00 (US)
Order Volumes I and II as a set! Stock# 0CAP/ $220.00
Tel.: 1-410-337-9580 Fax: 1-410-337-8539
Order online at:
Web Site: www.brookespublishing.com/store/books/capute-0cap/index.htm
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TITLE
CHILDREN WITH DISABILITIES, 5TH EDITION
Author/Agency:
Topic:
Edited by Mark L. Batshaw, M.D. 2002
Working with children with Disabilities
Professionals and Educators
This comprehensive textbook gives students in any discipline extensive coverage of the
developmental, clinical, educational, family, and intervention issues they’ll face in their
work with children with disabilities. They’ll explore the beginning of life from conception
to infancy, including factors in each stage that can cause disability; learn about child
development, including physical development and preventable threats; go in-depth
on specific developmental disabilities they’ll likely encounter; and find guidelines on
conducting interventions, managing outcomes, and working with families.
This classic text includes learning objectives, case stories, a glossary of key terms, and
appendices about medications and syndromes & inborn errors of metabolism. Plus its
FREE Course Companion Web Site — featuring links for each chapter, PowerPoint slides,
new case studies, and study guides — cements this as the perfect text for any class!
ISBN 1-55766-581-8 Hardcover 912 pages / 7 x 10
Brookes Publishing
Stock# 5818 $69.95 (US)
Tel.: 1-410-337-9580 Fax: 1-410-337-8539 Order online at:
Web Site: www.brookespublishing.com/store/books/batshaw-5818/index.htm
Publisher:
TITLE
Author/Agency:
Topic:
Publisher:
Distributor : TITLE
Author/Agency:
Topic:
Publisher:
Distributor : FASD Resource Guide
FETAL ALCOHOL SYNDROME AND THE CRIMINAL JUSTICE SYSTEM
Julianne Conry, Ph.D. and Diane K. Fast, M.D., Ph.D.
FASD adults and the legal system
Para-judicial, community workers and families
This book provides information about people with Fetal Alcohol Syndrome and Fetal
Alcohol Effects in the criminal justice system. Judges, Lawyers, probation and parole
offices, those working within the legal system, individuals and their families will find this
tool an excellent resource.
BC FAS Resource Society
Available for $49.95 + $5.00 S&H from:
BC FAS Resource Society , P.O. Box 525, Maple Ridge, BC V2X 3P2
Tel.: (604) 467-5591 Fax: (604) 467-7102
Web Site: Not provided
LIVING AND WORKING WITH FAS/E.
Mayer, Lorna (ed.) Winnipeg, MB: Interagency FAS/E Program, 1999
FASD support strategies
Professionals and parents
This is a reference manual for parents and professionals and is the result of the
collaborative work of individuals who live and work with those affected by FAS, PFAS,
ARND and ARBD. It is written in reader friendly language and includes stories by birth
mothers, foster parents, and a young woman living with FAS. The manual provides useful
strategies to support children at home, daycare and school and information on the
development of program models to address FAS.
Interagency FAS/E Program
To order: Interagency FAS/E Program,
#49 - 476 King Street, Winnipeg, MB. R2W 3Z5.
Tel.: (204) 582-8658Fax: (204) 586-1874
Email: [email protected] Web Site: Not listed
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12.1
Websites
TITLE
ALCOHOL AND SUBSTANCE USE IN PREGNANCY HELPLINE
TITLE
FASEOUT: FETAL ALCOHOL SYNDROME/EFFECTS OUTREACH PROJECT
Author/Agency:
Topic:
The Hospital for Sick Children
Motherisk program
Professionals
Motherisk counselors can make referrals for FAS diagnosis at the Motherisk Clinic, and
can arrange hair and meconium tests for drug and alcohol exposure in newborn babies.
Members of the medical profession who have questions or concerns about specific
clients and their use of alcohol and/or drugs during pregnancy and while breastfeeding
may also wish to consult this team of experts which includes pharmacologists,
toxicologists, neurologists and pediatricians. This teleTel. service is available from 9:00
a.m. to 5:00 p.m. from coast to coast, Monday to Friday.
Coordinates:
Tel.: 1-877-327-4636 (toll free in Canada)
Author/Agency:
Topic:
Coordinates:
TITLE
Author/Agency:
Topic:
Publisher:
Canadian Institute of Child Health
Ms. Diana Fox, Project Coordinator
Best Practices
Organizations involved in FASD issues
Funded through Public Health Agency of Canada’s FAS/FAE Strategic Project Fund,
FASEout is a four-year project that will coordinate a national, collaborative effort to
develop a comprehensive set of best practices and implement them at the national,
regional and community levels. FASEout will also establish a broad new network
of organizations involved in FASD issues that can continue to work together in
disseminating best practices.
FASEout: Fetal Alcohol Syndrome/Effects Outreach Project
300 - 384 Bank St. Ottawa ON K2P 1Y4
Tel.: (613) 230-8838, ext. 228 Fax: (613) 230-6654
Web Site: www.cich.ca
TEACHING STUDENTS WITH FETAL ALCOHOL SYNDROME/EFFECTS
– A RESOURCE GUIDE FOR TEACHERS
BC Ministry of Education – Special Education On-line Resources
Teaching students with FASD
Teachers K - 12
On-line resource manual available on website
Listed on website
Ministry of Education of British Columbia
Web Site: www.bced.gov.bc.ca/specialed/fas/
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TITLE
Author/Agency:
SUPPORTING CHANGE: PREVENTING AND ADDRESSING ALCOHOL
CONSUMPTION DURING PREGNANCY (ONLINE DOCUMENT)
Best Start Resource Centre, 2005 (in collaboration with Motherisk, Centre for Addiction
and Mental Health, City of Hamilton Social and Public Services, Health Canada
Population and Public Health Branch, Ontario Region, Breaking the Cycle, FAS World,
AWARE, Focus Resource Centre, Equay wuk, and concerned physicians).
Topic:
FASD
General Audience: Physicians and professionals
Description:
This guide, designed as part of a training module, informs physicians about alcohol
use and abuse in pregnancy and to support physicians in appropriate screening and
assessment of their pregnant patients and provides tools and resources.
Available Languages: English (Some other resources and training programs are available in French from this
website)
Publisher:
Distributor:
Tel.: (416) 408.2249 Fax: (416)408.2122
Document available in PDF Format online:
Website: www.beststart.org/resources/alc_reduction/index.html
TITLE
Author/Agency:
Topic:
FETAL ALCOHOL SYNDROME: IMPLICATIONS FOR CORRECTIONAL SERVICE
Fred J. Boland, Ph. D., Rebecca Burrill, Michelle Duwyn and Jennifer Karp July, 1998
FASD individuals and the justice system - 0nline document
Parajudicial community workers and families
Provides detailed information on FASD. Describes that we are only now learning about
adults with FAS/FAE and know little about how to treat their multiple problems and
nothing about their response to treatment efforts. Report states that they do know
that many will come into contact with the criminal justice system and CSC in particular.
A primary requirement is to identify these individuals in order that researchers can
identify their treatment need and design, offer and evaluate correctional programs
that will consider the particular cognitive and behavioral deficits of these individuals.
The recommendations are based on a review of the literature on FAS/FAE and how
this information might be applied to assessment and programming strategies used by
Correctional Service Canada.
Publisher:
Correctional Services Canada Document No. R-71 1998
Web Site: www.csc-scc.gc.ca/text/rsrch/reports/r71/r71e_e.shtml English publication
FASD Resource Guide
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Ressources pour professionnels
12.0
Outils destinés aux professionnels
TITRE
ENSEMBLE DES TROUBLES CAUSÉS PAR L’ALCOOLISATION FŒTALE : LIGNES
DIRECTRICES CANADIENNES CONCERNANT LE DIAGNOSTIC
Sujet :
Langues :
Éditeur :
TITLE
Sujet :
Éditeur :
TITRE
Sujet :
Langues :
Éditeur :
Distributeur : Albert E. Chudley, Julianne Conry, Jocelynn L. Cook, Christine Loock, Ted Rosales et
Nicole LeBlanc (Mars 2005) Journal de l’Association médicale canadienne
Lignes directrices canadiennes concernant le diagnostic de l’ETCAF
Professionnels
Article de journal
Journal en ligne
Site web : www.cmaj.ca/jamc/ (Rechercher - ETCAF) (version française)
LE SYNDROME D’ALCOOLISME FŒTAL : UNE TRAGÉDIE ÉVITABLE
Par le Dr Philippe DEHAENE, pédiatre, médecin honoraire du Centre Hospitalier de
Roubaix
Association Nationale de prévention en alcoologie et addictologie. Article de journal.
France 1996
Professionels
Les informations sur le syndrome d’alcoolisme fœtal et le prévention.
A.N.P.A.A.
Site web : www.anpa.asso.fr/html-fr/milieu/alcool_ou_sante _articles/f_milieu_
recherche_syndrome.html
LA CONSOMMATION D’ALCOOL PENDANT L’ALLAITEMENT - TABLEAU DE
RÉFÉRENCE POUR MÉDECINS
Centre de ressources Meilleur départ, 2002, mis à jour en 2005
Outil de référence qui comprend un tableau indiquant la quantité d’alcool présente dans
le lait maternel en fonction de divers facteurs.
Médecins et professionnels de la santé
Permet aux professionnels de la santé d’évaluer et d’informer les femmes enceintes des
risques liés à la consommation d’alcool pendant la grossesse. On y trouve un tableau
qui indique la quantité d’alcool présente dans le lait maternel en fonction de la quantité
d’alcool absorbée par la mère, son poids et le temps qui s’est écoulé depuis la dernière
prise.
Code produit : A03 E ou F. Prix :0,25$ chaque (minimum de 5 exemplaires par
commande)
Tél. : (416)408.2249 Téléc. : (416)408.2122
Site web : www.beststart.org/resources/
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TITRE
Sujet :
Destinataire(s) : Description : Langues :
Éditeur :
Sujet :
Langues :
Éditeur :
Distributeur : RESSOURCES EN FRANÇAIS
DÉPISTAGE DE LA CONSOMMATION D’ALCOOL – TABLEAU DE RÉFÉRENCE POUR
MÉDECINS
Cette ressource a été adaptée par le Centre de ressources Meilleur départ à partir d’une
ressource du Collège des médecins et chirurgiens du Manitoba (2005) et Sokol et coll.
(1989).
Outil de dépistage
Médecins et professionnels de la santé
Outil de dépistage à l’intention des médecins qui explique comment reconnaître les
femmes enceintes à risque de présenter des problèmes de consommation d’alcool.
Indique le numéro de téléphone de la ligne d’aide de Motherisk sur la consommation
d’alcool et de drogues pendant la grossesse.
Centre de ressources meilleur départ
Code produit : A04 E ou F. Prix :0,25$ chaque (min. de 5 exemplaires par commande)
Tél. : (416) 408.2249
Téléc. : (416) 408.2122
FORMATION SUR LA CONSOMMATION D’ALCOOL PENDANT LA GROSSESSE À
L’INTENTION DES MÉDECINS – GUIDE DE PLANIFICATION
Produit par le Centre de ressources Meilleur départ, en collaboration avec Motherisk,
le Centre de toxicomanie et de santé mentale, la Division de la santé publique et des
services communautaires de la ville de Hamilton, Santé Canada - Direction générale de
la santé de la population et santé publique - Région de l’Ontario, Breaking the Cycle,
FAS World Canada, AWARE, Centre de ressource de FOCUS, Equay wuk et un groupe de
médecins engagés. 2005.
Séances de formation pour les médecins
Professionnels de la santé
Ce guide est destiné à faciliter la formation de médecins au sujet de la consommation
d’alcool durant la grossesse. Contient des renseignements utiles pour l’organisation de
séances de formation, l’élaboration de questionnaires d’autoévaluation, de formulaires
d’évaluation et diverses suggestions pour impliquer les médecins.
Code produit : A02 E ou F. Prix :0,75$ chaque (min. de 5 exemplaires par commande)
Tél. : (416) 408.2249
Téléc. : (416) 408.2122
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TITRE
Sujet :
Langues :
Éditeur :
Sujet :
Langues :
Éditeur :
TITRE
Sujet :
Langues :
Éditeur :
NE PRENEZ AUCUN RISQUE : ÉVITEZ L’ALCOOL PENDANT VOTRE GROSSESSE – ÉTIQUETTE STATIQUE
Centre de ressources Meilleur départ, 2004
Prévention de l’ETCAF
Reproduction miniature de l’affiche sur une étiquette autocollante. Ne porte pas de
numéro de téléphone.
Bilingue
Code produit : A08 E ou F. Prix :0,20$ chaque (min.de 5 étiquettes par commande)
180, rue Dundas Ouest, bureau 1900, Toronto (Ontario) M5G 1Z8
Tél. : (416) 408.2249 Téléc. : (416) 408.2122
– AFFICHE
Affiche de prévention qui accompagne les articles précédents.
Grand public
Affiche couleur 43 cm X 33 cm indiquant le numéro de téléphone de FAS-INFO
(brochures complémentaires disponibles).
Code produit : A07 E ou F. Prix :0,20$ chaque (min. de 5 affiches par commande)
Tél. : (416) 408.2249 Téléc. : (416) 408.2122
- BROCHURE
Brochure de prévention
Parents qui attendent un enfant
Cette brochure couleur donne des renseignements et des conseils aux parents qui
attendent un bébé
Code produit : A06 E ou F. Prix : 0,15$ chaque (min. de 5 exemplaires par commande)
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Tél. : (416) 408.2249 Téléc. : (416) 408.2122
Site web : www.meilleurdepart.org/resources/alcool/pdf/brochure.pdf
TITRE
Sujet :
Langues :
Éditeur :
Sujet :
Destinataire(s) :
Description :
Langues :
Éditeur :
AFFICHE D’AVERTISSEMENT : ALCOOL ET GROSSESSE
Centre de ressources Meilleur départ, 2004
Parents qui attendant un enfant
Affiche couleur 25 cm X 21 cm. Montre une partie du torse d’une femme enceinte
accompagnée d’un homme. L’affiche porte le message suivant : « Avertissement :
La consommation d’alcool pendant la grossesse peut occasionner des anomalies
congénitales et des lésions cérébrales à votre bébé. »
Code produit : A11 E ou F. Prix : 0,30$ chaque (min.de 5 exemplaires par commande)
Tél. : (416) 408.2249 Téléc. : (416) 408.2122
SYNDROME D’ALCOOLISME FŒTAL : RÉPERCUSSIONS POUR LE SERVICE
CORRECTIONNEL
BOLAND, F.J., Ph. D., BURRIL, R., DUWYN, M. et KARP, J., juillet 1998.
Les personnes atteintes de l’ETCAF et la justice (document en ligne)
Conseillers para-judiciaires et familles
Donne des informations détaillées sur l’ETCAF. Explique que l’on commence tout
juste à accumuler des connaissances sur les adultes atteints du SAF/EAF, que l’on ne
sait pas précisément comment traiter leurs multiples problèmes, et que l’on ignore
complètement leurs différentes réactions aux traitements. On sait cependant que
beaucoup d’entre eux auront des démêlés avec le système de justice pénale et
des contacts avec des services correctionnels au Canada. La première exigence à
satisfaire consiste à repérer ces personnes pour que les chercheurs puissent aider
à définir leurs besoins en matière de traitement et contribuer à la conception et
à l’évaluation de programmes correctionnels qui tiennent compte des déficits
cognitifs et comportementaux qui leur sont propres. Ce document émet une série de
recommandations issues d’une analyse bibliographique sur le SAF et les EAF et tente de
déterminer la manière dont ces renseignements pourraient être appliqués aux stratégies
d’évaluation et d’élaboration de programmes utilisées par le Service correctionnel du
Canada.
Service correctionnel du Canada, Rapport R-71 1998
Site web : www.csc-scc.gc.ca/text/rsrch/reports/r71/r71e_f.shtml
104
12.1 Sites Web
TITRE
LIGNE D’AIDE SUR LA CONSOMMATION D’ALCOOL ET DE DROGUES PENDANT LA
GROSSESSE
Sujet :
Destinataire(s) :
Description :
Langues :
Coordonnées :
Site web : TITRE
Sujet :
Destinataire(s) :
Description :
Langues :
Éditeur :
Site web : The Hospital for Sick Children
Programme Motherisk
Les conseillers du programme Motherisk peuvent orienter les intéressées vers la clinique
Motherisk pour l’établissement d’un diagnostic de SAF et prendre les dispositions
nécessaires à la réalisation de tests de dépistage des drogues et de l’alcool dans les
cheveux et le méconium des nouveau-nés. Les médecins qui ont des questions ou des
préoccupations au sujet de la consommation d’alcool ou de drogues chez certaines de
leurs patientes, qui sont enceintes ou qui allaitent, peuvent aussi consulter l’équipe de
spécialistes, qui se compose de pharmacologues, de toxicologues, de neurologues et de
pédiatres. Ce service téléphonique est offert 9 h à 17 h du lundi au vendredi, partout au
Canada.
555, av. University, Toronto ON M5G 1X8
Tél. : 1-877-327-4636 (sans frais partout au Canada)
www.motherisk.org
SYNDROME D’ALCOOLISME FŒTAL : RÉPERCUSSIONS POUR LE SERVICE
CORRECTIONNEL
BOLAND, F.J., Ph. D., BURRIL, R., DUWYN, M. et KARP, J., juillet 1998.
Les personnes atteintes de l’ETCAF et la justice (document en ligne)
Conseillers para-judiciaires et familles
Donne des informations détaillées sur l’ETCAF. Explique que l’on commence tout
juste à accumuler des connaissances sur les adultes atteints du SAF/EAF, que l’on ne
sait pas précisément comment traiter leurs multiples problèmes, et que l’on ignore
complètement leurs différentes réactions aux traitements. On sait cependant que
beaucoup d’entre eux auront des démêlés avec le système de justice pénale et
des contacts avec des services correctionnels au Canada. La première exigence à
satisfaire consiste à repérer ces personnes pour que les chercheurs puissent aider
à définir leurs besoins en matière de traitement et contribuer à la conception et
à l’évaluation de programmes correctionnels qui tiennent compte des déficits
cognitifs et comportementaux qui leur sont propres. Ce document émet une série de
recommandations issues d’une analyse bibliographique sur le SAF et les EAF et tente de
déterminer la manière dont ces renseignements pourraient être appliqués aux stratégies
d’évaluation et d’élaboration de programmes utilisées par le Service correctionnel du
Canada.
Service correctionnel du Canada, Rapport R-71 1998
www.csc-scc.gc.ca/text/rsrch/reports/r71/r71e_f.shtml
105
12
CSSSPNQL / FNQLSSC
250, Place Michel Laveau, Wendake, Québec G0A 4V0
Téléphone / Phone : (418) 842-1540, Télécopieur / Fax : (418) 842-7045
Site web /Web Site: www.cssspnql.com

FASD Resource Guide

Transcription

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