Dr Elizabeth A. Lobb - The University of Sydney

Transcription

Dr Elizabeth A. Lobb - The University of Sydney
Dr Elizabeth A. Lobb
Faculty: Psychology
Qualifications: B. Adult Ed, M.App.Sci., PhD.
Positions:
Senior member of CeMPED
Senior Lecturer
Adjunct Associate Professor WA Centre for Cancer & Palliative Care, Curtin
University of Technology and Edith Cowan University, Western Australia.
Contact information
Centre for Medical Psychology & Evidence-based Decision-making
Brennan MacCallum Building (A18)
University of Sydney NSW 2006
Phone: +61 2 9351 4597
Fax: +61 2 9036 5223
Email: [email protected]
Background:
Dr Liz Lobb has established national and international research collaborations and
pursued independent multi-disciplinary clinical collaborations in oncology,
haematology, cancer genetics and palliative care for 11 years. This research has
enhanced evidence based communication and psycho-social care across the
cancer continuum from diagnosis, through treatment, remission and survivorship
or relapse, palliative care and bereavement support for families and caregivers.
She has worked clinically as a bereavement counsellor for 16 years.
Liz spent 7 years in the Medical Psychology Research Unit and in 2003 was
awarded a 4 year NH&MRC Australian Clinical Research Fellowship and re-located
to the WA Centre for Cancer & Palliative Care in Perth. She was appointed
Deputy-Director of the Centre and Associate Professor of Psycho-oncology at
Edith Cowan University. She is an Adjunct Associate Professor at Curtin University
of Technology.
Academic & Professional Qualifications:
PhD (Medicine); M.App.Sci (Behavioural Science), B.Adult Ed. (Community). Post
Graduate Certificate in Bereavement Counselling
Membership of Professional Organisations (Affiliations):
Clinical Oncological Society of Australia (COSA)
Kathleen Cuningham Consortium for Research into Familial Breast Cancer
(kConFab)
Liz has also been invited to be on an international panel on risk communication
funded by a National Institute of Health Grant (USA) and will travel to Duke
University in North Carolina in September.
Research Interests:
Liz’s research interests include the communication of prognosis in early stage
breast cancer and metastatic cancer, the process of genetic counselling in familial
breast and ovarian cancer, dignity therapy in advanced breast and ovarian cancer
and complicated grief.
Current research projects:
Liz is currently CI on an NH&MRC funded group education program for family
caregivers of people receiving palliative care in an inpatient setting and a $1M
Strategic Partnership Research Program Grant with the Cancer Council NSW on
the psychological impact of hereditary cancer and the development and
evaluation of effective patient education and decision support strategies. She
was recently appointed to an NIH funded international risk communication panel
on familial cancer which will meet at Duke University in North Carolina in
September 2008. She has recently collaborated on a number of projects including
a study to identify ethical issues in cancer genetic consultations; an intervention
to address the unmet needs of survivors of haematological malignancies; a
protocol to address stress and burn-out in palliative care nurses; a
communication aid for women diagnosed with DCIS; and the appropriate timing,
sources and content for information on radiation therapy information for breast
cancer patients.
Teaching Area & Committee Activities:
Liz teaches sessions in End of Life Issues and Bereavement in the Health
Psychology Course at the University of Sydney.
She is involved in a number of Committees including:
Palliative Care Clinical Studies Collaborative - Trials Management Committee
Co-operative Trial Group for Neuro-Oncology (COGNO) – Strategic Planning
Committee
Commonwealth Rural Health Support Education and Training program (RHSET) as
COSA representative on the Advisory Committee.
Psycho-oncology Co-operative Research Group – Scientific Advisory Committee
Clinical Oncological Society of Australia - Education Working Group
Clinical Oncological Society of Australia - Research Working Group
Publications:
1.
Wakefield, CE, Meiser, B., Homewood, J, Peate, M., Lobb, EA, Young, MA,
Williams, R., Dudding, T., Taylor, A. A randomized controlled trial of a decision
aid in familial breast and ovarian cancer. Breast Cancer Research & Treatment
2008; 107:289-301 Impact Factor 4.67
2.
Wakefield CE, Meiser B, Gaff CL, Barratt A, Patel MI, Suthers G, Lobb EA,
Ramsay J, Mann G. A multidisciplinary overview of the issues faced by unaffected
men with a family history of prostate cancer. Journal of Urology July 2008.
Impact Factor 3.95.
3.
Wakefield, CE, Meiser, B, Homewood, J, Peate, M, Warner, B, Lobb, EA,
Kirk, J, Gaff, C, Tucker, K. Development and pilot testing of two decision aids for
individuals considering genetic testing for cancer risk. Journal of Genetic
Counseling 2007; 16(3) 325-339.
4.
Halkett, G, Kristjanson, L., Lobb, EA. If we get to close to the bones they’ll
go brittle: women’s fears about radiotherapy for early stage breast cancer.
Psycho-oncology. Published online in Wiley InterScience
www.interscience.wiley.com). DOI: 10.1002/pon.1298. Impact Factor 2.77
5.
Lobb, EA, Clayton, J., Price, M. “Suffering, loss and grief in palliative care”.
Australian Family Physician, 35(10); 772-775, October, 2006. Invited.
6.
Lobb, EA, Kristjanson, L., Aoun, S., Monterosso, L. “Complicated Grief: An
overview of terminology and diagnostic criteria” Grief Matters: The Australian
Journal of Grief and Bereavement, 9(2); 28-32. Winter, 2006. Invited.
7.
Lobb, EA, Butow, PN, Moore, A., Barratt, A., Tucker, K., Kirk, J., Dudding,
T., Butt, D. “Development of a communication aid to facilitate risk communication
in consultations with women from high risk breast cancer families: A Pilot Study”
Journal of Genetic Counseling, 15(5);393-405 October, 2006.
8.
Lobb, EA, Butow, PN, Barratt, A., Meiser, B, Tucker, K. “Differences in
individual approaches: Communication in the familial breast cancer consultation
and the effect on patient outcomes” Journal of Genetic Counseling.
2005:14(1):43-54.
9.
Hagerty, RG, Butow, PN, Ellis, PA, Lobb, EA, Pendlebury, S, Leighl, N,
Goldstein, D, Tattersall, MHN “Communicating with realism and hope: Incurable
cancer patient’s views on the disclosure of prognosis” Journal of Clinical
Oncology, 2005, 23(6):1278-88. Impact Factor 10.86.
10. Kristjanson, L. and Lobb, EA. “Loss, grief and bereavement in palliative
care: Research directions” Grief Matters: The Australian Journal of Grief and
Bereavement, 2004, 7(3); 59-62. Invited.
11. Lobb EA, Meiser, B “Genetic counselling and prophylactic surgery in high
risk breast cancer families” Lancet, 2004; 363 (9424). Commentary. 1841-1842.
Impact Factor 18.4 Invited.
12. Butow, PN, Lobb, EA. “Analyzing the process and content of genetic
counseling in familial breast cancer consultations” Journal of Genetic Counseling,
2004;13(5):404-424
13. Lobb, EA, Butow, PN, Meiser, B, Barratt, A, Gaff, C, Young, MA, Haan, E,
Suthers, G, Gattas, M, Tucker, K. “Communication and information giving in high
risk breast cancer consultations: Influence on patient outcomes” British Journal
of Cancer, 2004, 90,321-327. Impact Factor 3.89.
14. Hagerty, RG, Butow, PN, Ellis, PA, Lobb, EA, Pendelbury, S, Leighl, N,
Goldstein, D, Tattersall, MHN “Cancer patient preferences for communication of
prognosis in the metastatic setting” Journal of Clinical Oncology, 2004,
22(9):1721-1729. Impact Factor 10.86.
15. Lobb, EA, Butow, PN, Meiser, B, Barratt, A, Gaff, C, Young, MA, Kirk, J,
Gattas, M, Gleeson, M, Tucker, K. “Women’s preferences and consultants’
communication of risk in consultations about familial breast cancer: impact on
patient outcomes”- Journal of Medical Genetics, 2003 40:e56. Impact Factor
6.36.
16. Butow, PN, Lobb, EA, Meiser, B, Tucker, K. Barratt, A. Psychological
outcomes of genetic testing and counselling in familial breast cancer: A summary
of the literature for clinicians Medical Journal of Australia, 2003; 178(2): 76-81.
Impact Factor 1.73.
17. Lobb, EA, Butow, P. Tucker K, Barratt A, Kirk, J. Dudding, T. Gaff C,. Butt
D, and Moore A., A communication aid to facilitate risk communication with
women from high-risk breast cancer families. Psycho-Oncology, 2003. 12(4): p.
S258-S258. Impact Factor 2.77
18. Duric, V, Butow, P, Sharpe, L, Lobb, EA, Meiser, B, Tucker, K. (2003)
“Reducing psychological distress in genetic counselling consultation for breast
cancer” Journal of Genetic Counseling, 12(3) 243-263.
19. Lobb, EA, Butow, PN, Meiser, B, Tucker, K. Barratt, A, Gaff, C, Young, MA,
Kirk, J, Suthers, G, “Tailoring communication in consultations with women from
high risk breast cancer families” British Journal of Cancer, 2002; 87(5): 502508. Impact Factor 3.89.
20. Lobb, EA, Butow, PN, Meiser, B, Tucker, K. Barratt, A, Kirk, J, Gattas, M,
Haan, E. The use of audiotapes in consultations with women from high risk breast
cancer families: A randomised trial Journal of Medical Genetics, 2002; 39(9):
697-703. Impact Factor 6.36.
21. Lobb, EA, Butow, PN, Meiser, B, Tucker, K. Barratt, A (2000) How Do
Geneticists and Genetic Counselors Counsel Women from High Risk Breast Cancer
Families Journal of Genetic Counseling 2001, 10:2; 185-199
22. Lobb, EA, Kenny, DT, Butow, PN, Tattersall MHN, Women’s Preferences for
Communication of Prognosis in Early Stage Breast Cancer. Health Expectations
2001, 4:1; 48-57. Impact Factor 2.08
23. Lobb, EA, Butow, PH, Kenny, DT, Tattersall, MHN, Communication of
Prognosis in Early Stage Breast Cancer: Speaking the same language. Medical
Journal of Australia 1999, 171:6;290-294. Impact Factor 1.73.
24. Lobb, EA, Butow, PN, Brown, R “How to Break Bad News” (2000) Australian
Doctor, October Issue.
Published Abstracts
25.
high
Lobb, EA., Hallowell, N., Kristjanson, L., Meiser, B., Butow, P. Men from
risk families: Some seek information, some don’t – why?. COSA, Adelaide,
November 2007. A59. Asia-Pacific Journal of Clinical Oncology, 3(Supp 2),
2007.
26.
Halkett, G., Nowak, A., Oldham, L., Lobb, EA. “You can’t ask question
about what you don’t know”: determining the needs of patients with high grade
gliomas”. COSA, Adelaide, November 2007. A49. Asia-Pacific Journal of Clinical
Oncology, 3(Supp 2), 2007.
27.
Sundquist K, Robotin, M., Butow P, Lobb EA. Who cares for the health
professional? An intervention to reduce stress and burnout. Cancer Nurses. COSA
Adelaide, November, 2007. A72. Asia-Pacific Journal of Clinical Oncology, 3(Supp
2), 2007.
28.
Wakefield, CE, Meiser, B., Barratt, A., Patel, M., Suthers, G., Gaff C,
Mann, G., Lobb, EA, Ramsay, J. Risk assessment and information needs
regarding their screening options of unaffected men with a strong family history
of prostate cancer. COSA, Adelaide, November, 2007. A52 Asia-Pacific Journal of
Clinical Oncology, 3(Supp 2), 2007.
29.
Wakefield, C., Meiser, B., Peate, M., Lobb, EA, Homewood, J. Randomised
controlled trial of a decision aid for individuals considering genetic testing for
hereditary non polyposis colorectal cancer (HNPCC). A67 Asia-Pacific Journal of
Clinical Oncology, 3(Supp 2), 2007.
30. Halkett, G., Kristjanson, L., Spry, N., Taylor, M., Lobb EA Information
provision during radiotherapy. COSA, Adelaide, November, 2007 – Poster. AsiaPacific Journal of Clinical Oncology, 3(Supp 2), 2007.
31.
Lobb, EA, Butow, PN., Meiser, B., Tucker, K., Barratt, A., Kirk, J.,
Dudding, T., Gaff, C., Butt, D. (2004) A pilot study of a communication aid to
facilitate risk communication with women from high risk breast cancer families.
European Journal of Human Genetics 12(1). Impact Factor 6.36.
32. Lobb, EA., Hallowell, N., Pepall, E., Kristjanson, L., Meiser, B. (2006) What
do Men Want?: The Expectations of the Familial Clinic of Men from High Risk
Breast Cancer Families. Psych-oncology 15 (Supp.2) S1-S478. Impact Factor
2.32.
33. Lobb, EA., Butow, PN., Meiser, B., Tucker, K., Barratt, A., Kirk, J., Dudding,
T., Gaff, C., Moore, A., Butt, D. (2003) Development of a risk communication aid
in familial breast cancer. Psycho-oncology. Impact Factor 2.32.
34. Hagerty, R., Butow, P., Ellis, P., Pendlebury, S., Lobb, EA (2006) Meaning of
Hope and Preferences for Communicating Hope in the prognosis in the metastatic
cancer setting. S232 Psycho-oncology 15 (Supp.2) S1-S478. Impact Factor 2.32.
35.
Lobb, EA. “Loss, grief and bereavement in adolescent cancer patients”.
Journal of Adolescent Health Vol. 29(6): A45
Invited Book Chapters
Lobb, EA. Book Chapter “Communicating gentic risk”. Handbook of
Communication in Cancer and Palliative Care, Oxford University Press (OUP) Eds.
D. Kissane, B. Bultz, P. Butow, I. Finlay. In press. 2008
Lobb, EA. Book Chapter: Loss, grief and bereavement in “Gynaecological Cancer
Care: A Guide to Practice, Ausmed Publications Pty Ltd. 2005.
Lobb, EA. Book Chapter “Working with others” in Reflection on research: the
realities of doing research in the social sciences. Open University Press,
September 2004.
Commissioned Reports
1.
Lobb, EA, Butow, PN, De Morgan, S., Price, M. Communication Skills
Module for Ductal Carcinoma in Situ, National Breast Cancer Centre, July 2007.
2.
Lobb, EA, Butow, PN, Prince, M. An evaluation of Resilience in the
Workplace: A workshop for oncology and palliative care nurses. Cancer Council
NSW, April 2007.
3.
Lobb, EA A review of the literature on outcome measures in bereavement
counselling. Calvary Health, July 2007.
4.
Lobb, EA, Chauhan, D., Butow, PN. Report on Focus Groups held at
Calvary Health Care Sydney on The development of a validated outcome
assessment tool for bereavement counselling November 2007.
5.
Lobb, E.A., Elliott, D., Norjin, K., Davis, S. Evaluation of the Sir Charles
Gairdner Hospital Bereavement Service: Impact on Bereaved Families, Hospital
Staff and General Practitioners. 2006.
6.
Thorogood, C., Sim, M., Lobb, EA. Report on the review and update of
Western Australian government publications on abortion counselling for medical
practitioners, counsellors, women and the community. WA Department of Health,
Perth, WA. 2006.
7.
Kristjanson, L., Lobb, EA, Aoun, S., Monterosso, L. A Systematic Review
of the Literature on Complicated Grief. Commonwealth Department of Health &
Ageing, Canberra. 2006.
8.
Lobb, EA, Butow, P., Tattersall, MHN, Girgis, A., Mann, L. White, K.,
Wilson, J., Hobbs, K. (1998) "Talking about prognosis with women who have
early breast cancer: what they prefer to know and guidelines to help explain it
effectively" Report NHMRC National Breast Cancer Centre, 1998.
9.
Lobb EA, Butow P, Tattersall M, et al., Development of guidelines for the
communication of absolute and comparative risk to women with early breast
cancer. 1998, NBCC Report.
10.
Lobb, EA. “A Training Program for State Co-Ordinators of CanTeen
(Australian Teenage Cancer Patient’s Society). 1996 Peer-support of siblings of
teenage cancer patients”.